Worried

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I am from South Africa and I Have been Diagnosed with vigorous Achalasia, and I have been referred to a professor in Pretoria to do a longitudinal myotomy. Could anyone tell me about the risks associated with this procedure, I have to do something about this achalasia as I cannot live like this anymore, any information about this procedure will be highly appreciated

 

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7 Replies

  • Posted

    I am not medically qualified, but  the myotomy means cutting the muscles that are clamping your lower oesophageal sphincter tight shut.   This should allow food to pass through, probably because of gravity, more easily, and means you can then take in relatively normal food, soft at first and regain nutritional feeding.   The chances are that the extreme pressure that causes much of the pain of spasms will be relieved, but this is not necessarily guaranteed.

    The lower oesophageal sphincter is a valve by your diaphragm that is there to stop stomach acid rising into your oesophagus, not least because the lining of your oesophagus is different, and cannot cope with the strong acid, leading to heartburn.   So what would also be considered is a 'wrap' of the top part of your stomach (the fundus) around the base of your oesophagus to recreate a valve-like effect.   This is a procedure to prevent acid reflux occurring that would be a side efefct of the surgery.

    I am not sure precisely what would be meant by longitudinal myotomy, other than the obvious implication that the myotomy would be along the length of the oesophagus rather than across its width.   The details of this are for the surgeon to explain, and it could conceivably be an alternative to a 'wrap'.   I do not know.

    The majority of people who have these surgical procedures do find that they benefit from it, and have a great improvement in their quality of life.   You need to be treated by an experienced specialist, which appears to be what is happening.   The underlying causes of what creates the condition will not have disappeared, however, and you will always have to be careful about eating, and avoiding stress that might exacerbate the nerve system around the oesophagus that creates the problem in the first place.   The longer you leave it untreated, the worse it will be to try and rectify, and your oesophagus can become big and baggy from the weight of undigested food left in it, and this make the muscle tone deteriorate.

  • Posted

    William,

    I too have Achalasia and it sounds like your Doc is wanting to do a Heller Myotomy that is the standard procedure for Achalasia. The other is called POEM and depending on your situation and the doctors experience will determine which one. I have lived with Achalasia now and I have spasms too but I have managed to stay away from surgery. It's important to change your diet and don't force food down. Also you need support and in the states there are good groups available. Go to Achalasia.us and get on the world map for Achalasia. Also you can get ahold of me and I can get you names of other good groups to be involved with. 

    I would recommend a second option if your not sure. This disease is too rare to be unsure of your self and the doctors. I spent over a year looking for a good doctor to support me. The main thing is to know that there is information available. Good luck Williiam 

    • Posted

      Thx Jamie my situation is getting more serious by the day i have lost 37 kg so far and i am constantly dehydrated and feel really bad every day i am starting if it is worth living like this, thx for the info
    • Posted

      It can indeed be very serious in relation to taking in water and nutrition.   This is easier said than done, but try taking frequent small sips of water.   There are special nutritional drinks that you can get, sometimes from the doctor on prescription.   Some are milk-based but some can be more fluid than that.

      Do not keep swallowing or sipping if the last lot has not gone through.

      Try massaging your chest.   And standing up and dropping on to your heels.   Whether this works may depend on the shape of your oesophagus and whether it has got 'baggy' or not.

      It is a serious assault on morale and quality of life so you are entitleds to feel depressed about your situation, but the specialists can very often improve things so do not give up hope.  Again, easier said than done, but try to relax around eating so that you reduce tension and anxiety as much as possible, because the nerve system is at the heart of why achalasia is such a problem - the nerve endings do not send the right signals to the muscles to work to propel the food through into your stomach.

       

  • Posted

    Oh my WILLIAM are you able to keep anything down or swallow at all? Here is what I know about rehydration get some good coconut water and sip on it throughout the day. It will give you more nutrients than just water. I have been in your shoes where I couldn't get anything to go down. That is when I put myself on liquids and fortunately for me it helped to eliminate the pressure on my E. It sounds like you are having big difficulties! Please keep me posted. J
  • Posted

    Also William the nerve that is effected is called the vagus nerve and it starts in the brain. That nerve also regulates heart, lungs and swallowing too. Relaxation does help but it is hard to relax when you feel like you are choking. 

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