Worried I have pancreatic cancer...
Posted , 7 users are following.
Hello, first post here and am looking for any help available. [Smile]
Apologies for the length of the post but I wanted to be thorough.
OK, so I have felt unwell since I had a tooth taken out which had infection after infection and resulted in about 6 antibiotic courses over 2 months.
Around the same time, I thought I'd pulled a muscle whilst sleeping as I had that kind of pain in my left side (torso area) with a feeling of something under/behind the bottom of my left ribcage. The pulled muscle pain has subsided but the weird rib sensation has remained (I likened this feeling to the feeling you get when you are pregnant and the baby has a foot in your ribcage).
Along with this my bowel movements have been a bit crazy with more diarrhea than normal and more of an urgency to go. Couple of times movement's have been eggy smelling but mostly OK. It can be normal for me not to go to the toilet for 3/4 days and I can have solid motions too.
I have had sharp pains under ribcage area too but not always. My stomach/gut area in general feels like it has been turned inside out, like when you have been sick many times. Sometime on my left hand side it feels like something is twisting/pinching inside.
All of the pains/sensations have been constant as in everyday but sometimes I can get in a position which alleviates the ribcage foot feeling. I am eating OK but not huge amounts but I think this is due to my anxiety.
In the last couple of days (bearing in mind this has been going on overall for weeks), I have had period like pains in my lower abdomen and lower back and a discomfort/ache in my very upper right back in between my shoulder blade and spine. This feels like posture ache and like the muscle could be massaged out of a knot.
My shoulders and upper arms have also been aching.
Tests so far:
Chest Xray - clear
VQ Scan (for clots) - clear
Blood tests (including FBC, LFT, U&E, Pancreas, Haemoglobin...that is all I can remember) - all clear
Stool sample - clear
Abdomincal Xray - clear
I have seen a gastro consultant and he think this may be IBD, possibly Chron's. Due to have an abdominal ultrasound Thursday morning and colonoscopy Friday.
Previous history of 2 perinanal abscesses which the consultant thought was 'interesting' as it is rare to get one let alone two for my age/gender/race etc. Apparently I should have had my colon checked after the second abscess but this never happened.
I have been googling (I know I shouldn't) and have come across so may things that point to pancreatic cancer and I'm absolutely worried sick, more so about this diagnosis than another cancer as the survival rate is so poor.
Does anyone have any experience of my symptoms or pancreatic cancer to comment? I would really appreciate some advice.
Thank you in advance to any who reply X
0 likes, 18 replies
marcelle61640 boogagirl41
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In mummy's case, she went to live in California with my sister about six months after my Father died (dementia first followed by Prostate Cancer). They are vey thorough being more or less private as without insurance you are in trouble. At 50 you have a colonoscopy automatically. You do not mention endoscopy or colonoscopy? MRI/CT. Mummy had that followed by scan then CT. They saw a shadowish something behind the stomach, only tiny. Pancreatic is so hard to diagnose as they cannot see it without special scans at all and usually stage four by then. I think she had been very tired all the time, used to go to bed most afternoons for about two years before going to the U.S, feeling generally lethargic and poorly. This continued even as soon as she got to my sisters. She said no pain, tummy was a bit like William's had been, and her bowell movements were fairly regular and ok. Almost 12 months later, having had scans, MRI, every endoscopy under the sun including colon, then triple scans they said stage 2 to 3 in the pancreatic head. She had the op (which we did not want her to have, my feeling being best not to "wake" it up, like a spot don't pick at it), never got better and 2nd August passed away.
I don't think you have pancreatic, and the colon looks much more likely from all you say. Have you any cysts? My sister was first to get them from 6 years old, they run from my grandparents, over the years has had many ops often to remove cancerous, has 5 benign being monitored now. I had suspected Ovarian, large cyst, they took out both ovaries and cyst to be safest. Cyst was begnign. My daughter had one removed from her "tubes", my son his back. My Granny had breast cancer at 73, one removed. You do learn to know your own body, I can tell you I was in awfull pain with the Ovarian problem and had a hernia at the same time. Neither William nor my mother seemed to have any real pain till last knockings, that is always the problem in that there is no build up, no warnings until it is too far along. I am sure you don't have it so many things that don't connect up to that type of cancer compared to what I have seen, too much pain, bowels funny, all point to tummy to me. Have you done the bowel cancer check? I did last year and it came back fine, it was an NHS free check available to anyone, maybe only in my area. When I had the ovarian probs they did loads of checks, talked about Crohns, colon all sorts, but my cyst was hard to find apparently which is why it escaped for so long. I understand that colon, crohns etc are manageable so you need to concentrate on that now. I wish you all the best, I will keep my fingers crossed and I am sure you will be getting a result that you can manage and get your world back to how you want it to be. Big hugs, we all need one x Marcelle
boogagirl41 marcelle61640
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I do have a colonoscopy booked for this Friday and an ultrasound on Thursday. I never get any pains etc for long periods so this has really shaken me. I can't accept the way GP's in this county automatically put abdominal issues straight down to IBS as in my consultant's own words 'they can't know that until they have ruled out every other possibility as symptoms for IBS and other conditions are so alike'. I have paid privately for my consulations and will pay privately for my diagnostics and treatment if needs be. The wait on the NHS to see a gastro consultant is 1 year plus 6 months added on if you need a colonoscopy.
The pancreatic cancer has stuck in my head as it's such a hard to beat cancer and I've read about some who only have left sided pain etc. This is why I'm jumping over the heads of the NHS and going solo for some answers.
Big hug back to you Marcelle, you're right, we all need one. I would acutally be happy to be diagnosed with Chron's or something similar; I am that worried about cancer.
X
marcelle61640 boogagirl41
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boogagirl41 marcelle61640
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I will update you asap. Take care Marcelle X
marcelle61640 boogagirl41
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boogagirl41 marcelle61640
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marcelle61640 boogagirl41
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boogagirl41 marcelle61640
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marcelle61640 boogagirl41
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boogagirl41 marcelle61640
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Colonoscopy clear, don't know all details as I see consultant next week to discuss but he did tell me he saw nothing sinister or inflamed. Whilst I am relieved, I still have no answers. I think the next thing is to check the small intestine via MRI with contrast if I remember rightly.
I still have the pain but it gas eased off a lot. I am keeping a food and bowel movement diary too.
X
sheryl23096 boogagirl41
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boogagirl41 sheryl23096
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marcelle61640 boogagirl41
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so glad it sounds as though the colonoscopy went well, as you say it rather only gives you something else to be thinking about, if it isn't that then what could it be? An MRI is about the most intense scan you can have I believe, that really does show so much in depth. I have had 3, I think they are a real help for the consultant.I do tend to think about the food we eat too, that was a sensible remark by Sheryl, also any medication can have detrimental effect in some cases. It is true that we eat so differently to say the forties and fifties, all was cooked from scratch. When my two were younger they were day pupils at the same school and it took an hour to get to and then from on the bus. I was working and so was not home necessarly when they got in so would make dinners and pud, plate up so they could just ping it up, before I went to work. We did spenf hours in the kitchen then, I was brought up that the main meal was meat and two veg followed by pud and that was how we did it. The Xmas lunch took about a month of pre planning! Let me know how it goes wth the consultant, good luck with that and the MRI. The thing is with all the scans etc., it is being very thorough so somewhere along the line an answer must pop up, and you wll have the satisfaction of knowing that you have had a very good check up of your body. Take care, I have to go and water the plants, patio garden with a million pots, some of them look positively geriatric where I have not had the chance to plant them out since I got them. The French Marigolds have no leaves, just stalks with a flower on top cos the slugs are about in droves. I reckon could hear them chomping away at night if I stood outside for a while, they form an army out there to march on my plants. Bye for now, plant emergency rescue
x Marcelle
Becka35 boogagirl41
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boogagirl41 Becka35
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youngatheart1 boogagirl41
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