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Yet another interesting ME/CFS study

Posted , 8 users are following.

jackie00198
jackie00198

I'm including a link to yet another ME/CFS study, which was published in the Journal of Nuclear Medicine. This study found, through PET scans, nerve cells in CFS patiends inflammed throughout the brain. This makes a lot of sense to me, as I've been having intense nerve symptoms for several months now. I only wish they would study a larger group of people. Here's the link:

http://www.ncbi.nlm.nih.gov/pubmed/24665088

This study again confirms that there is a physical, and NOT a psychological, basic for ME/CFS.

6 likes, 7 replies

7 Replies

  • OliverTatlow
    OliverTatlow jackie00198

    Posted

    This seems to make sense. I was diagnosed with ME for 5 years before recently being diagnosed with a brain tumor thought to be the cause of my illness all along.

    I also know somebody else who had ME like symptoms for years before they suddenly died of a brain hemorrhage. The post mortem showed that they had a berry anyurism that could have been there for a long time.

    I know this is just a small amount of anecdotal evidence but think it's a line of investigation that should certainly be persued with ME.

    My advice to anyone who's been diagnosed with ME is to go to their doctor and demand a referral for an MRI scan to at least rule out the possibility of any neurological abnormalities. The earlier these things are found the more likely they can be effectively treated.

    • jackie00198
      jackie00198 OliverTatlow

      Posted

      You advice is spot-on. And I'm so sorry about your experience. We have to advocate for ourselves, or bring in a close friend to advocate for us. Sadly, many doctors don't make the time, simply can't be bothered, or are downright ignorant.
    • OliverTatlow
      OliverTatlow jackie00198

      Posted

      Absolutely right. I've seen many different doctors over the past 5 years and while some are decent there are others who are just patronizing bullies who treat you like you're making it up or imagining it.
  • MSME
    MSME jackie00198

    Posted

    I had a car accident, not been same since Christmas 2011, then got dx with ME/CFS Nov 13, maybe due to brain being shaken by the impact!
  • kittey
    kittey jackie00198

    Posted

    I was told I had M.E nearly twenty years ago.  Since then I have been treated for mental illness. and ME is very rarely mentioned by my health providers.

    I have been stuck at home for months now and most people believe that I am depressed and that I should 'work on' making an effort to get myself out.

    I AM Depressed. By the total lack of understanding .

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