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Yet to be diagnosed - scared and sick of dealing with this?

Posted , 9 users are following.

SB14
SB14

Hi,

i'm 18, and have symptoms, such as frequent/looser bowel movements, hand tremors, visible heartbeat, which vary, along with other symtoms such as anxiety. I believe my symptoms began to show up last M

1 like, 18 replies

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  • SB14
    SB14

    Posted

    Sorry, that posted unfinished. Last March is when i think it began showing up. However, it wasn't until last summer i connected it to a thyroid problem, as my aunt has one. I went to the doctors a couple of times, about sypmtoms, and expressed concerns over a thyroid disorder. However, he just referred me to a muscular place because i complained of neck pain! After that, it almost seemed my symptoms eased a bit, but my heartbeat has been visible probably since last May, i think. However, it meant i almost seemed to forget a little bit that i hadn't been diagnosed as i began to feel a bit more 'normal'. But now i feel i just need a diagnosis, and don't want to mess around at the doctors for them to tell me rubbish - so would suggest just asking atriaght out to just give the blood test as i suspect a thyroid problem?

    Thanks

     

    • MCamp
      MCamp SB14

      Posted

      I don't know if this is an option for you, but if it is, change your doctor to someone who is both a general doctor and an endocrinologist. That is what I did and she pretty much knew what I had before the lab results came back. Find a doctor who you trust and who respects you. I know, not easy, but trying to change the behavior of your current doctor is a waste of time and stress. Maybe someone on this forum can refer you to one close to you.
    • SB14
      SB14 MCamp

      Posted

      Thanks for the advice. I may see a different doctor or just ask my GP just to do the tests straight out. Thanks!
  • Elise888
    Elise888 SB14

    Posted

    Hi

    Don't let the doctor fob you off. Insist they take you seriously and yes at least get a blood test done. Don't take no for an answer where your health is concerned.

    Good luck

    • SB14
      SB14 Elise888

      Posted

      Thank you. Nice to have the support of this forum and knowing people have gone through this. Sometimes I just feel alone
  • emmaj43
    emmaj43 SB14

    Posted

    Hi

    I would definitely get your thyroid tested - not sure why the haven't already.   Your symptoms are the same as mine when diagnosed with Graves' disease, took them a while to work out my issues, fortunately finally saw a doctor who recognised the symptoms - I couldn't have been more grateful.  I am well now, so just go and get it sorted so you can get back on track or see what else it could be.  Once tested come back on this forum with your results so people can advise.  X

    • zizinb
      zizinb emmaj43

      Posted

      Hi EmmaJ43

      Can I ask how long it took to get you "well"??

      Are you euthyroid now? have you stopped all meds? Just curious as I have only just began to feel ok after a 3 year battle with Graves!!

    • SB14
      SB14 emmaj43

      Posted

      I'm not sure why they haven't either. They should really test with one symptom a patient has. Do you know how long it took you to be diagnosed? Since the symptoms started showing up? I'm practically positive I have Graves and I think I will just be relieved to be diagnosed or moving forward and tested. Thanks for your support😀
    • emmaj43
      emmaj43 zizinb

      Posted

      Hi, I came off block and replace after 18 months of awful illness, had a ovarian cyst removed which was caused by the graves and over active thyroid - had very high blood pressure - 200/150 and diagnosed with general anxiety disorder due to the horrendous stress of it all - I thought I would never feel well or socialise again - came off Carbimazole and levothyroxine 11 months ago and feeling better physically and mentally all the time.  I was signed off work until Jan this year and then made redundant when I was well enough to return - I have removed all stress from my life and ensure I take it carefully as I rebuild my life - I am getting back on track and don't want it ever to return. X
    • emmaj43
      emmaj43 SB14

      Posted

      As soon as the saw my thyroid results they thought I did - I then saw a consultant and he agreed and the thyroid scan proved positive with a highly active red thyroid. X
  • ariadne43
    ariadne43 SB14

    Posted

    Hi there, definitely get your bloods checked asap. A good doctor should have done that.  I was running to the doc for months  before diagnosis and they tried to tell me the lump in my throat was all in my head. Get your bloods done tomorrow. Good luck xx
    • SB14
      SB14 ariadne43

      Posted

      I may try and avoid talking of symptoms with them just yet, as I feel I should demand tests and then go from there. Thanks for your help😀
  • zizinb
    zizinb SB14

    Posted

    Hi SB14

    As others have said, please INSIST on a full blood test including thyroid levels. My GP fobbed off for over 6 months and I ended up having 2 thyroid storms and nearly DIED. I was eventually diag with SEVERE Graves Disease and my GP then immediately got her senior GP to see me...presumably because sshe knew how badly she had Treated me (or NOT as the case may be.

    3 years on I am very bitter about that horrible doc who nearly cost me my life.

    You are likely not have such a serious condition as mine but the earlier you get do=iag the sooner they can give you meds to balance you out and keep you healthy.

    Good luck and do not give up!!

    • lilian05079
      lilian05079 zizinb

      Posted

      Hi zizinb

      Yes, your symptoms do sound like u have a thyroid disorder. Go back to your doc and be sure to tell him/her that it is hereditary and genetic as your aunt has a thyroid disorder....best wishes..

    • SB14
      SB14 zizinb

      Posted

      Sorry to hear of your serious level of graves and hope your feeling well. I'm trying not to give up cause it needs to be sorted but I suppose I've almost gotten used to the symptoms, especially on better days so I guess I sort of 'forget' and I probably should talk about my concerns more with people. Thanks for the great support😀
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