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I have a young boy that has the inherited form of nephrogenic diabetes Insipidus. He is currently 4 years old and was diagnosed at 4 months. Im looking for other parents with young children of the same age group to compare different ways this condition is treated across the country. Currently my son has been treated with a medication that is causing his kidneys to fail. Outside of the health side of things, we are getting to school age. Facing a feeding tube. Maxed doses of medication. No salt diets allergies and sensitivites. We are trying to plan school, activities and there are so many restrictions I'd like to see what other families do to manage to provide a "normal" life for their kids.
2 likes, 3 replies
clivealive meagan58879
Posted
Wow! Meagan58879 that is so hard and sad for you and your lad.
I'm not a medically qualified person so cannot comment but I wish you well hoping that someone on here can give you advice.
glenn26771 meagan58879
Posted
Hello i have diabetes insipdus! Not shore yet which version I have how's things? With you an child
ljubica263 meagan58879
Posted
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