the Cornelia de Lange Syndrome FoundationThe Gatehouse
104 Lodge Lane
Tel: 01375 376439
Fax: 01375 404478
The CdLS Foundation UK & Ireland is part of a federation of CdLS family support groups around the world.
The CdLS Foundation exists to ensure early and accurate diagnosis of CdLS ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime.
In the UK the Foundation is run entirely by volunteers including parents and professionals.
Please see website for more information.
Last updated on 21/07/2012