Fanconi Hope

PO Box 905

Tel: 0845 271 2811

Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
  • To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
  • To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
  • To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
  • To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, eg, in the treatment of cancers in general.
Fanconi Anaemia is a genetic disorder affecting children that causes bone marrow failure and predisposes to cancer. The UK and Ireland Fanconi Anaemia Family and Clinical Network has been set up to promote research to benefit FA-affected patients and provide information for FA families. Fanconi Hope is the charity set up to support the aims of the Family and Clinical Network.

Last updated on 21/07/2012

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