78 York Street
Tel: (Helpline) 0800 121 4518, (General) 0870 241 1857
The Duchenne Family Support Group (DFSG) was founded in 1987 by a small group of parents who had children diagnosed with Duchenne muscular dystrophy (DMD). Since then the number of families has increased dramatically and they now have a membership of more than 550 families across the UK, plus some families living overseas.
The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of information and experiences, and social activities.
They have a national network of contact families, who are there for support and advice, and a national helpline which is run by volunteers who are themselves affected by DMD.
Last updated on 29/04/2013