Frontotemporal Disease Support Group

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The Frontotemporal Disease Support Group (formerly The Pick's Disease Support Group) offers information, support and understanding to carers throughout the UK. They recognise that there are few facilities tailored for the younger person with dementia. The Group aims to help put people in touch with others who understand the distress and burden caused by this disease.

The group supports carers of patients with a wide range of rarer dementia diagnoses including:

  • Frontotemporal Lobar Degeneration or Pick's which includes Frontotemporal Dementia, Frontal Lobe Degeneration, Semantic Dementia and Primary Progressive Aphasia
  • Corticobasal Degeneration
  • Dementia with Lewy Bodies
  • Alcohol Related Dementia
  • Korsakoff Syndrome.

The group produces booklets, leaflets, awareness cards and a quarterly newsletter which include descriptions of the conditions and their symptoms together with additional contact information. Meetings and seminar information is available on the website.

Last updated on 24/04/2015

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