PO Box 773
Tel: (Helpline) 01483 306637, (Admin) 01483 447122
The Perthes Association is an association for people with Perthes' disease and other forms of osteochondritis. The Association is an entirely voluntary organisation founded in 1976. The Association aims to help and advise families of children suffering from Perthes' disease and associated conditions. These include the following:
- MED (multiple epiphyseal dysplasia).
- Other forms of osteochondritis such as Sever's disease, Köhler's disease, Osgood-Schlatter disease and Scheuermann's disease.
The Association gives advice on practical and financial help available. Perthes Association volunteers are 'at the end of the telephone line' for any worried or distressed parents, and will visit them if possible or put them in touch with a family living locally. They produce a quarterly newsletter, and have a flourishing pen pal programme.
Last updated on 15/05/2014