Proteus Family Network UK

Jean Harrison
10 Overhill Road
Weeping Cross
ST17 0QA

Tel: 01785 661263


Proteus Family Network has been established as a support group since 1998. The aims of the Network are as follows:

  • To preserve and protect the health and promote the welfare of persons affected by Proteus Syndrome and associated conditions.
  • To advance the education of the medical profession and the general public on the subject of Proteus Syndrome and associated conditions and its implication for the individual and their family.
  • To support research into the management of Proteus Syndrome and associated conditions.

They provide:

  • Support to families and individuals encountering Proteus for the first time.
  • Information on specialist clothing and footwear.
  • Support for ongoing research into the causes of Proteus.
  • Regular newsletters.
  • Host family get-togethers.

Last updated on 04/12/2014

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