SOFT UK - Support Organisation for Trisomy 18 and 13

Tel: (Enquiry line) 07923 056132


SOFT UK (the Support Organisation For Trisomy 18 & 13) is a registered charity and is the support organisation for trisomy 13 (Patau's syndrome), trisomy 18 (Edwards' syndrome), and related disorders such as translocations and mosaicism. SOFT has strong links with the medical profession, including several professional medical advisers.

SOFT provides help and information for families after a diagnosis of one of these conditions. Families are put in touch with befrienders who are willing to listen and share their experiences. Each year a 'Family Day' is organised when members can meet together and talk to other families and medical professionals.

SOFT publishes a range of free literature and a newsletter.

Last updated on 25/03/2014

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