Tuberous Sclerosis Association

PO Box 8001

Tel: 01332 250734


The Tuberous Sclerosis Association has the following aims:

  • To support those with tuberous sclerosis complex and their carers.
  • To provide education, publicity and information to promote an understanding and an awareness of the problems caused by the condition.
  • To support fund-raising to support research into the causes and management of tuberous sclerosis complex.

The Association offers the following services to individuals with tuberous sclerosis complex and their carers:

  • Wide range of literature on tuberous sclerosis complex and associated topics, with special leaflets for teachers, nurses, doctors and those only mildly affected by tuberous sclerosis.
  • Telephone advice and support.
  • Tuberous sclerosis TSC advisers for support, advice, and advocacy.
  • Specialist tuberous sclerosis clinics in Leeds, Bath, Cambridge, London, Liverpool, Belfast and Scotland.
  • Support fund and travel bursary (members).
  • Family fun days, conferences, gatherings (members).
  • Meetings with expert talks.
  • Access to TSC professional advisers.

Last updated on 25/10/2013

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