Tel: 0845 603 5338
The WHST is a support group that helps parents with children with Wolf Hirschhorn syndrome . Parents are put in touch with each other and the group also liaises with doctors and professionals doing research into this condition. It also compiles information about the syndrome and can forward this to interested parties. Regional and annual meetings are held every one and two years respectively. There is a modest annual membership fee.
Last updated on 25/09/2013