UK sources of information and / or support
Includes various leaflets on Cancer.
Main umbrella organisations
A UK charity which helps to provide the expert care, and practical and emotional support that make a real difference for people living with cancer.
CancerHelp UK is a free information service about cancer and cancer care for people with cancer and their families. It is brought to you by Cancer Research UK. They believe that information about cancer should be freely available to all and written in a way that people can easily understand. They also run a site called CancerCampaigns - a campaigning initiative. This site aims to engage their supporters, staff, scientists and the public in campaigning in partnership with the charity on issues related to cancer and cancer research. (For example, a campaign calling on the government to implement smoke free workplaces for all).
Offers information and support for cancer patients, families, friends and health professionals. "Tak Tent" runs a network of support groups across Scotland, meeting monthly in the evening, including a group specifically for people aged 16-25.
If you're aged between 19 and 24 and have been diagnosed with cancer, you may have a choice about where to receive your care. This website aims to guide you through some of the decisions you're able to make.
Committed to cancer research and patient support.
A Northern Ireland cancer charity established with the vision that people in Northern Ireland would be free from the risk of cancer. The charity continues the fight for freedom from cancer and maintains a pioneering role in the development of cancer services.
Provides support to children and young people with cancer and leukaemia and their families.
Provides specialised cancer care, without charge, across the UK.
The aim of the Network is to work towards the continuous improvement in cancer care and cancer survival for the people of Northern Ireland. It does this by supporting groups of health professionals, patients and charities to work together in a coordinated way, ensuring good communication and sharing good practice.
A vast range of national cancer information resources under one roof. These pathways provide information to patients, carers and health professionals at the touch of a button.
A national NHS Programme that supports local cancer service teams (networks) to improve their cancer and diagnostic services and help reduce their waiting times.
Health Challenge Wales provides a wide range of information including one in this area.
Information from the Pain Relief Foundation.
Other information and support sites include the following
Provides information about brachytherapy - one type of treatment that is used for some cancers.
The Association for Multiple Endocrine Neoplasia Disorders (AMEND) is a patient support group set up in 2002 in order to offer help and information for the rare genetic conditions of MEN1 and Men2.
A Registered UK charity which exists to match volunteer bone marrow donors with patients throughout the world, who are in need of life-saving bone marrow transplants.
Clear, quality health information from the BBC. This site offers you a look at the forms of cancer, details on treatments available, medical terms explained, and organisations which offer medical and emotional support. Further sources of information are listed too along with factsheets on lung cancer, skin cancer, dietary cancer, men's and women's cancers, that you can print off and keep for reference.
Funded by Macmillan Cancer Support, the Bereaved Partners Support Group (BPSG) is for people who have lost their partners to cancer.
Information and support on breast cancer; for those who fear they may have breast cancer and for those who have other breast health concerns.
A patient organized and administered information and mutual aid group, founded in 1993. Exists for mutual support, information exchange and sympathetic listening.
Provides support, reassurance and practical information to anyone who is about to have a colostomy, or who already has a colostomy.
Addresses the cultural and emotional needs of black people affected by cancer. Aims to be at the forefront in cancer education, prevention and t address the quality of life for black and minority ethnic patients. Provides information and advice on all aspects of cancer and its treatment. Also has details of Specialist National Cancer Organisations, Specialist in Cancer Centres and Units, and details of Black and Ethnic Minority Community Groups.
The trust provides in person and telephone counselling for cancer patients, their families, friends and care givers who seek counselling to help them through the difficult issues precipitated by a cancer diagnosis.
A breast cancer support organisation. Emotional and practical support services for patients and their relatives. .
CancerPartnersUK is an independent organisation offering a different approach to cancer care. They work with the NHS and other providers to create modern cancer centres where the latest technology in radiotherapy and chemotherapy is seamlessly delivered in a comfortable, welcoming environment.
A website for patients, healthcare professionals and research workers looking at all aspects of Cancer and its treatment.
Cancer support charity for patients, their families and close friends. Based in Aberdeen, they cover all of Grampian, Orkney and Shetland. They offer support, information and complementary therapies.
National charity dedicated to bowel cancer patients, their families and friends, CCCs Infoline and fact sheets are a valuable source of information. CCC produces leaflets and question cards for every stage from the first visit to the GP to treatment for advanced colorectal cancer.
The Department of Health outlines policy and provides guidance documents concerning cancer.
Leukaemia Research and Funding is the primary aim. Also provides aftercare resources and organises fund-raising events.
Information from the Northern Primary Care Genetics Website which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.
Not a self help group but their web site provides links to many cancer support and information resources for patients and carers. Includes Everyman - action against male cancer - the Institute of Cancer Research's campaign to raise awareness of testicular and prostate cancer.
The IMF (UK) website has been developed to provide immediate, 24/7 access to information about myeloma and related diseases to individuals affected by the condition and the people caring for them, either professionally or informally.
Aims to provide UK kidney cancer patients and their carers with improved access to reliable information about kidney cancer and its treatment, and to establish a network of individuals and groups capable of offering mutual support.
Includes information on leukaemia, Hodgkins disease, lymphomas, myeloma etc.
Their website provides information, advice and treatment from four of the UK's leading cancer specialists. Includes extensive information on causes, diagnosis, treatment options and latest research into the disease..
Lymphoedema is not a well documented condition. This group of Lymphoedema patients and medical advisors can offer support, help and information to those affected by lymphoedema due to cancer or other causes.
Formerly the Hodgkins disease and lymphoma association. Helping those affected by lymphatic cancer
This free mailing list is for discussion of medulloblastoma and PNET brain tumours by parents, patients and professionals.
This official site provides information on the NHS Breast Screening Programme, NHS Cervical Screening Programme and the UK Colorectal Cancer Screening Pilot.
Aims to raise funds to increase public awareness and improve and simplify treatment of Men's cancer (testicular and prostate cancers) and to help people understand these cancers and their treatment.
Ovacome is a UK-wide support group for all those concerned with ovarian cancer, involving sufferers, families, friends, carers and health professionals.
Currently offers publications, a telephone helpline, a list of support contacts, newsletters as well as carrying out scientific research into the causes and treatments for prostate cancer.
PSA is a national association of self-help and support groups. It is managed by and for men with prostate cancer, their families and other interested groups. The site includes information on the disease and therapies.
A support organisation for men with prostate cancer and their families.
Support for men and their loved ones who are concerned about prostate cancer and its consequences.
A prostate cancer support group. It is run by its members and the services offered are for men, their families and those affected by prostate cancer.
Offers free brouchures on all prostate diseases (cancer, benign prostatic hyperplasia, prostatitis), a DVD/Video on treatment options for early prostate cancer, a quarterly newsletter and other publications. Also funds research into all aspects of prostate disease and awards grants for the training of medical professionals.
The primary purpose of the organization is to disseminate information and provide support to rare cancer patients. Most members are rare cancer patients themselves, who have had to go through the process of wading through the information (or lack of information) on the internet for their rare cancer
Activities include: Offers general advice and information and, where possible, patient-to-patient support; Collects up-to-date information, and puts patients with 'rarer' cancers in contact with one another; Raises awareness about the less common cancers; Has involvement in securing the best possible services for people living with rarer cancers.
A national organisation offering support, friendship and information for people with retinoblastoma and their families.
Lung cancer information and support.
A leading UK cancer centre, recognised worldwide for the quality of its services. Site includes comprehensive, authoritative patient information.
A small self-help group of thyroid cancer patients who wish to raise the profile of thyroid cancer and to provide support for new and existing patients to talk to.
The Foundation funds and organises 'Special Days' for seriously ill young adults between the ages of 16 and 40.
WCRF is dedicated to saving lives by funding cancer research and providing education programmes that expand the understanding of the importance of food and lifestyle choices in the cancer process. Site includes leaflets on specific cancers, cancer prevention and nutrition.
And some information from NICE.
Cytoreduction surgery followed by hyperthermic intraoperative peritoneal chemotherapy for peritoneal carcinomatosis
A patient guide to complement the NICE national guideline for health professionals called Cytoreduction surgery followed by hyperthermic intraoperative peritoneal chemotherapy for peritoneal carcinomatosis.
A patient guide to complement the NICE national guideline for health professionals called Complete cytoreduction for pseudomyxoma peritonei (Sugarbaker technique).
A patient guide to complement the NICE national guideline for health professionals called Colorectal cancer (advanced) - irinotecan, oxaliplatin and raltitrexed (review).
A patient guide to complement the NICE national guideline for health professionals called Head and Neck cancer (squamous cell carcinoma) - cetuximab.
A patient guide to complement the NICE national guideline for health professionals called Gastro-intestinal stromal tumours (GIST) - imatinib.
A patient guide to complement the NICE national guideline for health professionals called Radiofrequency ablation for the treatment of colorectal metastases in the liver.
A patient guide to complement the NICE national guideline for health professionals called Selective internal radiation therapy for colorectal metastases in the liver metastases in the liver.
A patient guide to complement the NICE national guideline for health professionals called Metastatic malignant disease of unknown primary origin.
A patient guide to complement the NICE national guideline for health professionals called Thoracoscopic excision of mediastinal parathyroid tumours .
Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat various cancers.
Information from NHS Choices - the government's patient information portal.
Information from BUPA.
Information from BUPA.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.