Cystic Fibrosis

This page has been archived. It has not been updated since 24/01/2012. External links and references may no longer work.

UK sources of information and / or support

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Patient UK

Has a leaflet called Cystic Fibrosis.

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Cystic Fibrosis Trust

The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of cystic fibrosis.

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TOBI

For CF patients, their families and friends. Contains resource links, games, news, articles, and tips, as well as product information about Chiron Corporation's TOBI (an inhalable antibiotic indicated for the treatment of CF patients with Pseudomonas aeruginosa),proper maintenance of the nebuliser used in administering TOBI, etc.

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Cystic Fibrosis Medicine

A non profit website with the aim of providing free information to professionals involved with the treatment of cystic fibrosis, it has an open access (public) section available to both patients and family.

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Cochrane Cystic Fibrosis & Genetic Disorders Review Group

Comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

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Breathing Games for Young Children with Cystic Fibrosis

Information from Cambridge University Hospital NHS Foundation Trust.

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Cystic Fibrosis

Young person's experience of cystic fibrosis from Youthhealthtalk.

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Cystic Fibrosis

Information from emc Medicine Guides.

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Cystic fibrosis

Information from NHS Choices - the government's patient information portal.


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

Author:
Dr Tim Kenny
Document ID:
7389 (v9)
Last Checked:
24 January 2012

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.