Epilepsy

This page has been archived. It has not been updated since 24/01/2012. External links and references may no longer work.

UK sources of information and / or support

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Patient UK

Has a range of information leaflets on epilepsy:

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Epilepsy Action

Lots of useful information on epilepsy, and a special area for kids and for medical practitioners.

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Epilepsy Bereaved?

Help for people bereaved through epilepsy.

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Epilepsy and Pregnancy Register

For pregnant women with epilepsy a major concern may be whether their anti-epileptic drug treatment will cause any harm to their unborn child. A major study has been established in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy.

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Epilepsy Research UK

Epilepsy Research UK funds research into the causes, treatment and prevention of epilepsy. Their website also has general information about epilepsy.

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Epilepsy Society

Is striving for a world without epilepsy. In the meantime the society seeks to enhance the health and well-being of people with epilepsy by improving clinical treatment and care and by the provision of health information to people with epilepsy, to health professionals and the general public.

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Epilepsy Scotland

Exists to improve the quality of life for people with epilepsy and their families. Provides advice, information and support, both to the public and to professional people, on any aspect of epilepsy.

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Epilepsy Wales

Aims to help people with epilepsy in Wales, their families and carers by offering various services. A bi-lingual service is provided wherever possible.

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Matthew's Friends

Aims to aid and support people with epilepsy and their carers who undertake the Ketogenic Diet treatment for epilepsy.

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National Centre for Young People with Epilepsy

An organisation dedicated to helping children and young people with epilepsy and other needs.

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St. Elizabeth's Centre

The St. Elizabeth's Centre at Much Hadham, near to Bishop's Stortford in East Hertfordshire is one of only two national epilepsy centres offering services to all age groups. For 100 years the Centre has been providing education, care and medical support to people with epilepsy and associated disabilities.

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UpBeat

Website for teenagers with epilepsy including factsheets, email helpline and more.

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Youth Epilepsy

Youth Epilepsy is for young people by young people living with epilepsy.

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Epilepsy

A patient guide to complement the NICE guideline of the same name for health professionals.

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Epilepsy (children) - newer drugs

A patient guide to complement the NICE guideline of the same name for health professionals.

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Epilepsy (adults) - newer drugs

A patient guide to complement the NICE guideline of the same name for health professionals.

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Vagus nerve stimulation for refractory epilepsy in children

A patient guide to complement the NICE guideline of the same name for health professionals.

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Epilepsy (partial) - retigabine (adjuvant)

A patient guide to complement the NICE guideline of the same name for health professionals.

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Epilepsy in children and young people

A patient guide to complement the SIGN national guideline for health professionals.

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Living with Epilepsy

Patient experience from Healthtalkonline.

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Epilepsy

Information from emc Medicine Guides.

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Convulsions

Information from emc Medicine Guides.

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Young People Living with Epilepsy as a Long Term Condition

Young person's experience from Youthhealthtalk.

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Young People and Epilepsy

Young person's experience from Youthhealthtalk.

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Epilepsy

Information from the British Brain and Spine Foundation.

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Epilepsy

Information from NHS Choices - the government's patient information portal.


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

Author:
Dr Tim Kenny
Document ID:
7441 (v17)
Last Checked:
24 January 2012

Disclaimer: This article is for information only and should not be used for the diagnosis or treatment of medical conditions. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Consult a doctor or other health care professional for diagnosis and treatment of medical conditions. For details see our conditions.