ĥi does anyone have any tips for coping with the day to day of ms? emotionally, physically, spiritua

Posted , 6 users are following.

emotionally, physically, spiritually, mentally...

0 likes, 10 replies

10 Replies

  • Posted

    I pray,cry,get angry and go through a myriad of emotions. It's a lot to deal with because things change daily. I almost chopped my finger off yesterday because it didn't move when I needed it to. Try to find someone to talk to that understands. Consider counseling it helps a lot too. Hugs and prayers. If you need someone contact me sleep doesn't come easy either.
    • Posted

      thänks

      i just started counselling...which has been good

      do you have people to talk to?

      hot hear today

      x

       

  • Posted

    If you concentrate all your time, money and energy in trying to get better, you will have no time to  think of anything else. 
  • Posted

    I'm someone who deals best with things when I have all the facts, so I got lots of information booklets from the MS Trust and MS Society.  It's 5 years since I was diagnosed with relapsing remitting MS, and gradually I've learned to take one day at a time.  I go to the local MS Society meetings where I made friends with other MS-ers, who don't need me to explain how I am, they just accept it.  I stopped being able to work 3 years ago.  That was hard to deal with at the time, but I now do things I enjoy and discovered talents I didn't know I had.  I blog about creativity, MS, and me. Counselling, coaching, or solution focused therapy can help, as can meditation and mindfulness.

    Emis Moderator comment: I have removed the blog address as we do not publish these in the forums. If users wish to exchange these details please use the Private Message service.

    http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

    • Posted

      thanks

      i would like toread your blog

      please send me a message

      x

    • Posted

      Hi looluv,

      I've sent you a message with the blog link.  I hope you find it useful.

       

  • Posted

    I keep busy so I don't have time to think about the downsides.  I am highly independant - have hand controls in the car and wheelchair hoist, walker and mobility scooter - bladder and bowel issues, but I still do volunteer shifts at my local community library, and I am a trustee, also run a girl guide unit, a rainbow unit, a local commissioner, and a trustee.  Needles to say I am retired from full-time employment!  My MS is such that I can no longer work in a lab, but I do write to sipplement my pension - you see I am too busy to let my MS get me down - and I am now secondary progressive.
  • Posted

    hi, i'd definately recommend finding a (or some) relaxation exercise(s), it can be a really useful way of helping you get things clear in your mind. because this pain in the bum condition is so stress affected it's also a good idea to have realistic goals, just making it up as you go through each day (as best as you can). keeping in contact with others of us with ms helps, as however varied our individual version of 'it' is, it's always easy to find things in common too. sleep when you can, but don't worry whenever you can't. for me, the magic word would be pragmatism.

    take care, x

    • Posted

      great advice...thanks x 100

      do you do mindfulness?

      x

       

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