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8 Replies

  • GeorgiaS
    GeorgiaS jeanp

    Posted

    Yes it is interesting, and hopeful, thanks for posting it Jean!
    • jeanp
      jeanp GeorgiaS

      Posted

      You're welcome! The more I can find out about this horrible ailment the better, though I tend to read stuff and then forget it all and have to read it all again.

      Jean

    • GeorgiaS
      GeorgiaS jeanp

      Posted

      ME Research UK is a good site; they send me magazines about the latest research. I had to make a donation and email them.
  • Lis100
    Lis100 jeanp

    Posted

    Hi there thank you soooooooooooooooo much for posting this.

    This sounds really encouraging.

    Seriously made my day.😃

    • jeanp
      jeanp Lis100

      Posted

      Thanks Lisa. It gave me a bit of hope too, though reseach is a slow old business, so we may not see much relief for a long time. But it might make up for those comments we all get from time to time (you know the ones - "you don't look ill" "everybody gets tired sometimes" "how lazy, using the lift!" Etc, etc.)
  • Beverley_01
    Beverley_01 jeanp

    Posted

    Hi all,

    After writing a longer reply and it then disappearing, I'm just going to say as one of the many not "infected" with cfs/me on here (child birth, pregnancy and operations etc cited by others are not infections) I didn't get the wow factor of the article. Anything other than an infectious cause amounted for about 1% of the total. My symptoms are the same, but I feel if I aren't infected, how can some kind of cure/vaccine working on that premise help.

    There is a another guardian article in February called "it was like being buried alive" also about cfs/me for those interested. Seems we're getting more coverage at least.

    Best wishes

    Beverley

    • jeanp
      jeanp Beverley_01

      Posted

      Hi Beverley. Thanks for replying.

      I didn’t understand the article to mean the overwhelming cause of CFS was definitely infection. Though, according to some of the comments by readers, in the USA you aren’t diagnosed as ME/CFS unless you have had an infection, so that may be skewing the research quite a bit.

      It was mainly Dr Montoya who said the majority of his patients had infections, the others didn’t really specify. I was pleased because researchers are taking a range of approaches, and because this vile condition is being taken seriously, at last.

      Like you, mine didn’t start with a viral or bacterial infection. I suspect it was triggered by a reaction to the metal in a hip implant which subsequently had to be removed and replaced with a ceramic one. But I’ll probably never know for sure. A B12 deficiency doesn’t hep either, and I don’t know if that is just running alongside or there is some cause and effect going on.

      I did have a whole heap of antibiotics after the second hip operation though, which would surely have put paid to any lingering infections I didn’t know about. We may not be infected, but if the symptoms are there, something is going wrong, isn’t it, whether it’s autoimmune or hormones or gut flora or ropey mitochondria or whatever. So the more research the better.

      Thanks for the info about the earlier articles - will seek it out.

      Cheers,

      Jean

    • Beverley_01
      Beverley_01 jeanp

      Posted

      Hi Jean,

      Sorry to hear yours came from an hip operation, the causes are so wide ranging.my own thoughts are that it is trauma of some sort that initializes The cfs/me reaction. The other article speaks of a "central governor" in the brain that starts sending the wrong messages to the body. This makes some sense to me and although I'm not waving my flag at the GAT method and positive thinking (the article is a little derogatory of us cfs /me sufferers in regards giving up which I didn't find amusing) the lady in the article does recover. Hope you find it interesting.

      Best wishes

      Beverley

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