10 month old son diagnosed I Need Help

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My 10 month old had a really bad fall and got two fractures in his skull he started to regress in his progress Dr says he has CM1 but it's nothing to worry about. What should I do how serious is it? I could really use help with if it's anything to worry about

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  • Posted

    Hi Ezirah, I'm so sorry to hear about your sons injury, take him to another Doctor if you can. You know when your child isn't right and you need someone that's caring and listens to your concerns and is prepared to help you, not someone who puts himself on a pedestal and thinks he's god! Xx
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    • Posted

      Thank you, I was thinking about seeing another Dr he's at 4mm but he has a lot of symptoms
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    • Posted

      Oh the poor little love, you must be worried sick for him. He can't even tell you what he's going through. You need a good support network, I'm sorry I don't know what's available for you. Are thereany contact groups with other mums and dads in the same situation who may have contact information to the right specialists. I'm from the UK sorry it's difficult, I saw this website not sure if it will be of any help to you: http://www.uwhealthkids.org/pediatric-neurosurgery/conditions-and-treatments/34383

      Take care and be strong. Xxx

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  • Posted

    Hi Ezirah,

    Hope that your son and you are doing well.

    I'm just curious how the doctor explained chiari to you.

    I do agree with 2karen, find another doctor who specializes in chiari.

    Your son needs to be seen by a doctor that specializes in chiari, really what you need is a neurosurgeon to conduct testing. He will inform you what your son will need.

    Just some information, chiari does not go away, the only thing that is done is to make your son more comfortable. He will be able to have a very good quality of life. So don't worry.

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