Posted , 4 users are following.
Hi again,
I joined 2 years ago and made a post at the time things got really bad.
To summarise, I've had odd tummy aches since I was 16 and 2 years ago when I was 22 things got extremely bad. Initially, I tested positive for h. Pylori and had antibiotics. I felt better for a week and then it all came back a vengeance. Back to the Dr's who said the h. Pylori must have not caused me any issues and that the antibiotics had tricked me into feeling better and that it seemed more like IBS.
I've seen the doctors a ridiculous amount of times for this issue now and I'm just at a loss.
In the past 2 years I've tried the normal ibs medicines (mebeverine, buscopan, alverine citrate, peppermint capsules), I've also tried aloe gel and capsules & silicol gel. Tried probitoics. Tried FODMAP, gluten and lactose free diet. In March I had a sigmoidoscopy & everything including the biopsies returned normal.
Most recent the doctors have just given me a limitless amount of Imodium and sent me on my way. So I'm relying on Imodium to get through work when I make it in. With the amount of Imodium I take, I struggle to go the loo throughout the week (mixed d & constipation) even though really needing to (or I go very little bits and feel awful) and so I take fibrogel or sometimes a similar product from the doctors that I can't remember the name of - then it all hits at once & I start the cycle again.
It makes life stress and work miserable to sit through (I enjoy my job, like everyone I work with & everyone is super supportive) but obviously nobody wants to go to work with constant tummy cramps, pains and D.
Nothing seems to cause it and nothing seems to help it.
Other symptoms I have are fast heart/palpitations often and very irritable/numb/tingly legs (all of these combined when I try sleep). Mentioning this to the Dr, I'm told it's normal of IBS.
It's almost as though they read IBS or hear me say IBS and aren't prepared to consider anything else.
Whilst I am grateful nothing life threatening has been identified, I just don't know what else to do. I don't feel right 80% of the time and I'm so fed up of having to let people down at work when I can't settle my tummy down.
Now I think it is worth mentioning that I'm a bit overweight and would be naive to not consider this to be an issue of any kind.
Sorry this has turned into a rant. I'm just so beyond knowing what else to try.
I've now been referred to a dietician, but aside from re-trying FODMAP and gluten/lactose free diets, I'm not sure what else they'll do for me.
So anyone tried anything I haven't? Or had joy losing weight to help ease symptoms? Any advice is greatly appreciated at this point.
Thanks for reading!
0 likes, 3 replies
margaret22116 gameon
Posted
Hi. I had a lot of your symptoms and diagnosed with IBS anxiety etc which I knew was plain wrong. After a long trek round different specialists I was finally diagnosed with an auto immine disorder. That was 15 years ago. After long treatment I am in remission.
Is your b12 vit d potassium thyroid function all normal?? Oh and I also have had h pylori twice. Have you uad an endoscopy/gastroscopy anything which actually looks at what is going on in the stomach/bowel. Turned out I have gastritis and not ibs. Often ibs is a catch all when they don't really know what is going on.
borderriever gameon
Posted
Personally I am at a loss, you could try looking on this site and see if there are any recommendations.
The other site in the UK is NHS CHOICES on the Web. It is an inclusive site that has an A/Z Health Directory and also a further section on medications you could consider.
Personally your GP needs to be more forthcoming with tests etc so you can move on. If He is stuck you need to see a Specialist for your own peace of mind
BOB
Ger101010 gameon
Posted
Eat a little rice boiled and a little boiled potato i went on this for 3 months boiled or roast chicken grilled cod that was it for about 3 months cleared up mostly but said thats boring eating.
i eat most things i am not on a diet and nothing stops me going places
cut out dairy cut out grains no bread alcohol is a complete no no bar brandy talk about that later
no eggs no mayonaise cut out almost greens cabbage etc
doctors put you on roughage nearly killed me dont eat brown bread it rips u apart
it settled over time not on a diet now eat anything really but some things kill me
u need to try and lead a stress free life if u stressed u stomach will hurt
drink water a few litres a day avoid Coke so beautiful but not good
now after the chicken and fish introduce other foods slowly
dont eat oranges or apples
now the good stuff bananas they slow u up start with one a day see how it goes
My savoir brandy the known cure for a sick stomach with years
I found hennessey the best try a shot 10 minutes before your dinner it works wonders
eating big meals still puts me under pressure
On a good day i have a pain in my left side and out my back liked a pulled muscle on a bad day its a lot worse but i get on with it I am on no diet and can eat anything for a day or two without problems
i had every x ray test tube up down scan and nothing extream allergy to food or nearly all foods !!!!!!!!!!!!
Life is good i get on with it
Ger
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