7 months on and still suffering, will I ever recover?

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Hi,

I had my gallbladder removed back in October as it was diseased so I had no choice since I ended up in hospital in the summer with serious issues only to find out it was caused by this and could happen at any moment once I had recovered. It has been 7 months and yet I still suffer from nausea, intense stomache pain, diahrrea and vomiting (only time to time). I have changed my diet so much and have been extremely healthy, however it does not seem to change ANYTHING. I am so drained as I feel I can't go out with friends or do anything, I am just at home dreading lunchtime (as thats when my stomache episodes start mostly). I am about to graduate from university and I feel I will not be able to handle even a part time job because of this.. I have gone to the doctors but test results have been clear and they seem to think its common and I just have to deal with it.. is there anyone who has had their gallbladder removed and has suffered for months but it has eventually gone after a few years? ? 

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    Hi caster am so sorry your going through this. I had mine removed in December and also had vomiting nausea and diarrhea. Was told it was very rare by my surgeon but have since found lots of people who suffered from this also. Thankfully I haven't vomited in 6 weeks and my nausea seems to be slowly going away. Have you tried calcium for the diarrhea. A lot of people take it after the gallbladder is removed and it really helps. You could try caltrate calcium 600 d and start by taking half a tablet 3 times a day with food. If there's no change after 5-7 days you can take 1 full tablet 3 times a day with food. I'm also taking psyllium husk powder which also works by soaking up the bile in your system. Thankfully I have a great gp who has had a number of patients who've experienced these symptoms after gallbladder removal and it slowly got better over time. I know someone who had vomiting and diarrhea for 9 months post op but it got better. Unfortunately we are not told of these side effects prior to surgery but I can tell you that I know a lot of people who had diarrhea and vomiting and nausea for at least 6 months. In fact I've spoken to at least 20 people over the last few months and only 1 person did not have any side effects post op bearing in mind that some had more severe side effects than others. I hope this eases your mind to know your not alone. There are plenty of us that are going through it. Take care xx
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    • Posted

      Hi Acejohnston, thank you so much for your reply I will definately try all the products you have suggested above! will it help with the stomache pain I experience also or just the diarrhea? 

      It is unfortunate that they do not tell you half of what actually seems to happen as I was told I would be fully recovered after 2 weeks and could eat anything which is far from the case..

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    • Posted

      Hi cajster I was told the same would be great after the operation and could eat what I wanted!! Yeah right! Has been the worst experience of my life. The caltrate calcium 600 d is very good for the diarrhea and should also help your tummy as calcium carbonate is good for acid in tummy. Also digestive enzymes are good too for people who've had their gallbladder removed. It works by breaking down the fats in the food you eat. I take psyllium husk fibre with digestive enzymes in them and find them great with the caltrate. Have you diarrhea all the time or just in the mornings? Have you had the dry heaves too? I had them really bad as well as the vomiting. Are you vomiting every day? God love you it's a bloody nightmare isn't it? It will stop though. Take care xx
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      Yeah its been so so hard, I have not enjoyed a meal in ages! thank you so much for the feedback I will definately try all of that smile At first I had diarrhea everytime I ate and then after a few months it faded but unfortunately I got a tummy bug a month or so ago which has set everything off again so now I have diarrhea every other day and multiple times and it has been recently where I have been sick at the same time but I have always felt nausious! I am looking forward to the day it stops thanks for giving me hope!! xx
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  • Posted

    Hi Cajster I've just post a discussion about my post op symptoms and then I saw yours! Just like you, my op was in October and since then I've been 'tormented' by many different side effects. I had an emergency op due to pancreatitis two months only I gave birth my baby daughter. I was having so many attacks after I gave birth, I couldn't breastfeed Her properly. 

    My main symptoms in the first 5 months were: constant chest burning, sore throat, acidic taste in my mouth and some intestinal cramping. I had diarrhea but that has stopped after 8 weeks more or less. Like you I'm very careful with what I eat, only low fat mainly. I've lost so much weight ( the only good thing). Since last month I started having intense nausea during the night  that would wake me up and in the morning. Do you get burning in your stomach. I do a lot after I eat.its driving me mad. 

    May I ask you what exams doctors asked you to do. Iam seeing my surgeon AGAIN very soon and I would like to be more informed about other test that could be done. I did impedance ph tests in January due to my chest spasms but that was all. I really hope we can get out of this. All the best. 

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    • Posted

      Hey Leni75, I have pancreas divisum and have suffered an episode of pancreatitis also! which lead me to hosptial in the summer as well as having gallbladder disease (I later found out after having and MRI).

      I get A LOT of burning in my stomache, especially at night for some reason. I do not know if your doctor told you this but the gallbladder also helps neutralise acids in your stomache so since we no longer have it I guess we should take a supliment which neutralises them? 

      When I went back to my doctors he tested me for main stomache bugs and also what can happen after gallbladder operations is that the rest of your digestive system is meant to take over the jobs that the gallbladder use to do and in some cases it does not absorb salts that the gallbladder did (something I also was not told about! gallbladders do a lot more than just break down fat, they also absorb salts and like I said neutralise acids). If your body does not absorb salts then you should see a sort of green colour in your stool so I would watch out for that. 

      The main thing to get done is a blood test and really push to test for a variety of things. Unfortunately I was not able to do a blood test last time as I was too weak and fainted.

      Hope this reply helps! from the feedback I have been getting on this site looks like it does eventually get better so for the first time I am hopeful smile I think what would help both of us (Look at those who have replied from my post for specifications) are suppliments which help with neutralising acids, absorbing the bile etc and the nausea will fade, mine comes and goes which is frustrating but I think since were super sensitive it can be triggered easily especially since you have dealt with pregnancy xx

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    • Posted

      Hi Cajster thank you for your reply. I did heard about the bile neutralising  the acids in stomach in the past and that's the reason why PPIs made my burning worse. But my surgeon or other doctors never suggested to take supplements for that so I've never did. What I take from the beginning is probiotics ( yogurt) which has helped with my gut I think.

      Diarrhea is a normal side effect afterwards because of a constant flow of bile entering the gut but that should got better meantime if not there are bile sequestrans that might help. Side effects are awful by the way. 

      I still don't get it exactly why we get the burning in the stomach but in my view I think I'm refluxing more bile  into stomach  which causes the burning and nausea. Why it happens to some people and not others after this surgeryI don't know but I need to find out. This is destroying my life too. I know if it continues for longer, I'll get gastritis and so on. It's not good. I get really anxious when doctors tell me it will get better when is already all this time and the burning is huge. I want to believe them but it's getting hard. I'm so sorry it happen to you but you're not the only one. I hope you'll feel better soon and get more tests done. Keep in touch x

       

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  • Posted

    Hi how are you feeling? Are you still with any symptoms? I had GB surgery 9 months ago now and my reflux it's really causing me pain in my chest/ back and ocasional burning in stomach. My esophagus hurt everyday now. It's been really horrible.  My surgeon wasn't helpful I'm trying to see someone else. I hope you're feeling better by now. 
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    • Posted

      Hi Leni

      I'm so sorry your still suffering. I'm a bit better but not near 100% yet. My acupuncturist put me on milk thistle and other herbs and there really helping. The milk thistle is great for detoxing the liver. My acupuncturist explained that the cause of gallbladder problems is due to the liver becoming overloaded with toxins primarily estrogen. The bile becomes thicker and sluggish and creates gallstones and gallbladder disease. She explained that the liver and digestive system are closely linked and if the liver is congested you will get all sort of problems ie indigestion, heartburn gallbladder issues. So removing the gallbladder removes the symptom but your liver is still congested so you need to detox it. I've been taking the milk thistle for 3 weeks and it's really helping me. Haven't had the heartburn at all. Still have some nausea. Milk thistle also helps the liver to work more efficiently and balance hormone levels. It's worth a try Leni. Have you tried acupuncture or an alternative therapist? How long is it since your operation? X

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    • Posted

      Hi Leni75,

      I'm feeling a bit better but still having the same symptoms. I am still having to be strict with my diet otherwise I definately notice a difference. I'm beginning to feel like It is something I will never fully recover from but will get better.. have you tried taking calcium carbonate for the acid reflux? I have ordered it and have been taking digestive  enzymes which has helped a bit. I also drink verbana herbal tea in the morning and after dinner which could be another reason as to how things have improved. My surgeon has not been helpful so I no longer go to him since all this is 'normal'. I hope you do feel better soon, I think its a matter of time and experimenting with herbal things, foods and supplements. I have also been doing work outs that are curated towards fat boost metabollism which has also helped a bit.

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    • Posted

      Hi cajster

      Glad to hear Your a bit better. The calcium carbonate will definitely help you. I'm still taking the caltrate calcium 600 d and the psyllium husk powder with digestive enzymes and thankfully haven't had the diarrhea for months now. Still have the nausea but am going to acupuncture and it's helping. She has put me on milk thistle which is a must after gallbladder removal as the liver needs to be detoxed and helped to work more efficiently. Would recommend as has really helped with the heartburn and indigestion. All we can do is try as much alternative things as we can to help our bodies adjust. I have heard of people having nausea vomiting and diarrhea for over a year and it suddenly stopping so there's still hope for us all. My gp keeps telling me it will settle down but could take another 6 months. She has seen this before with other patients and told me she only has 1 patient who has diarrhea long term and there on bile binders. X

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    • Posted

      Hey,

      Yeah I have also been taking psyllium husk powder which has helped so I owe you a thank you for the advice as I have followed through with it and it has helped me smile I have never tried milk thistle and never heard of what you explained to Leni75 with regards to the liver so more useful info to be aware of! I can't believe there is so much more to what my surgeon let on.. good to know that there is still hope to fully recover! I hope you are a lot better and feeling happier about eating x

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    • Posted

      It's crazy cajster but when my Acupuncturist explained it to me it made sense about the liver. My surgeon did tell me that hormones can cause gallbladder problems but my acupuncturist explained that high estrogen particularly from the contraceptive pill, hrt and other hormones drugs can cause high estrogen. The liver can't cope with the excess estrogen and that's when all the problems begin. I was on a hormone drug for a few years prescribed by my endocrinologist and guess what it says on the bottle can cause increased estrogen! Also linked to this is hormonal problems like ovarian cysts, fibroids and irregular periods. The liver is responsible for regulating hormones. When I had my scan last October they also found a cyst and a fibroid but didn't tell me until a few months later! They just focused on the stone. I never realised the real function of the liver! Unfortunately it's too late now. The milk thistle is worth a try too. Hopefully another few months and we will all feel better. Keep in touch and let me know how your doing. Take care xx
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    • Posted

      Hi Acejohnston 

       That's good news. Thank you for the explanation about the liver. It does make a lot of sense. I got this problem just at the end of my pregnancy as you know and it must have been all of those years of taking the pill.

      I'm still taking one sucralfate per day at least to try to protect the gullet but it hurts more & more. The pain in chest is getting worse and goes straight to my back as well. I decided to try a natural supplement called rhodiola rosea which I read is for bile reflux but I only start now and I can't comment yet. I take teas like chamomile and lemon balm to relax but the pain in my esophagus is always there. I'm scared that it will never get better and im not able to swallow or something worse. I had my op in October last year and I've been in pain since then. Doctors are useless but I'm still trying to find one that can send me for more tests. I need to find out what it's this pain, if it's bile or not, if it's the liver or the bile ducts. I can't rely only on natural things but I'll be carry on using some things  or try new ones if they help. 

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    • Posted

      Oh Leni I'm so sorry your still suffering. Please try the milk thistle. It can do you no harm. Im taking the drops so I can alter the dose if needed. It detoxes the liver which has a knock on effect on the digestive system and is good for heartburn and indigestion too. It's really helped me and I haven't had that burning heartburn or indigestion since I started it. Today has been the best day I've had in 7 months. No nausea. The acupuncturist started me on herbs to balance my liver and I saw her yesterday and she upped the dose and I feel better today. Hopefully it will last! Would you consider Chinese medicine. Leni anything is worth a try and unfortunately western medicine has little to offer us after gallbladder removal and doctors don't really want to know. I really hope you feel better soon Leni. Thinking of you. Xx
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    • Posted

      Hi Cajster

      may I ask you where did you had your surgery? Mine was at St. Peter's hospital in Chertsey, Surrey same hospital where my daughter was born 2 months before my op.  My surgeon was one that was in the emergency that day. And it's not normal so many months afterwards to be suffering this way I think. Life will never be the same unfortunately but I'm trying to see other specialist to get another opinion. Probably it will again be a waste of time but I have to try for the sake of my life and my family. Why are we suffering when other people I know that did this surgery are living normal lives. i start to believe my surgeon 'I'm an unlucky one case in thousand. But I still need help nonetheless. I hope you'll keep improving x

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    • Posted

      Hi Leni75,

      I had mine done at parkside hopsital. Originally I was in Kingston hospital (June-July) when everything happened for me but I thought it was best to recover from the symptoms I was suffering from and gain back some strength before having my operation in October. I think those who have the operation whilst its all happening recover the hardest, don't know if you had the operation whilst suffering from the symptoms? but then again everyones different and it may of been constant for some, whereas with me it was like I was having 'episodes' x

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