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At 2yrs old my son was diagnosed with several development delays and concerns, from sensory, occupational, physical, speech, behavioral and social. He's been receiving services and progressing well.
Over the last year he started complaining of headaches and dizziness. One doctor told me he needed more salt in his diet and not to worry. His primary told me since I had concerns related to attention I should take him to a neurologist. Although very dismissive of my concerns, she sent him for an MRI which resulted in his Chiari diagnosis. She called me and indicated we would treat this conservatively. BUT Many evaluations over the years have indicated very low working memory (6th percentile) and along with the other concerns above, I can't help but think this is all related. Had she spent any time listening to me when I came in, she would have the full picture.
Anyway, I made an appointment at NYU and Mass General for a second opinion. I'm scared. What is the likelihood these are symptoms? How likely will it get worse? Could surgery fix all of his other concerns?
ANY support, comments, suggestions are welcome.
Scared Mom, Kris
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