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I will try and keep it as short as possible, my beautiful son has had reflux since birth. He would scream in agonising pain before and after a feed, as a first time mum 9 years ago I would feed constantly as I thought it was hunger after being sick it was like he was still hungry.
He was in pain alot. I had a health visitor around for a long while as I had PND as a result, on top of exisisting anxiety/depression. She would really try to push for help for him, she said herself its not right.
Numerous doctors appointments and even expressing (I breast fed) and adding medication into the bottles. Switching onto formula at 6 months old, adding medication, having a prescripted formula and specialist formulas for reflux never worked.
Then came food, every meal, even at 5 years old would end in sick coming up or the smell his breath, bless him. He was diagnosed with Autism but I honestly think this reflux affects him the most.
He became increasingly more fussy with his food between 2-4 years old and now has a very bland diet, being sick at the sight of wet food. I've had a dietcian come around to help and advise, but nothing worked and they didnt seem to quite understand the severity of his diet/reflux.
Unfortunetely hes never grown out of it and despite visits to the hospital specialist it was always dismissed as something he'd grow out of. Hes been aneamic in the past and had loose bowel issues as toddler, again just dismissed as nothing.
He turned 9 in October and had an appointment to see a specialist just last week (very long awaited for by both us, mum and dad, the rest of the family and school)
We did not see the specialist himself but a nurse I guess who takes our notes and discusses it with him after to see if he agrees/disagrees with what she thinks is correct.
Despite discussing eveything and more that I've written above, and him being sick in her sink numerous times whilst there she says its habitual, talks about coping mechinisms and a dietcian. ANOTHER different medication and a follow up in 3 months.
I'm angry. Hes sent home every other day from school, we're all frustrated, the school are frustrated, they even cannot influence in anyway so we've decided to arrange a diary that we can shove in these peoples faces.
Hes been on numerous different medications and we've even managed to get him to swallow tablets whole which was an achievement. Obviously the new medication has done absolutely F all, thats why I'm writing.
But with my sons see-through/grey teeth, low energy, a strong smell in his breath of vomit and potentionally damage to his esophagus we're
growing increasingly upset and frustrated.
Its gone on too long.
Any advice whatsoever would be massively appreciated.
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