Advice please

They'd be crazy not to. If they don't you need to find a doctor that will. Under those circumstances I can't see them denying you one. If you bleed as heavily as you say to the point that you pass out these are automatic criteria for being a hysterectomy candidate. Best wishes to you with everything.

Hi Ginny. You have had a terrible time. Your period pain and bleeding sounds a lot like mine. When you go for your appt insist on a hysterectomy. If they mention ablation or trying something else just explain the effect this is having on your life.  To have to give up work and your daughter doing the shopping is not right. You are only 38 for God sake. Stand your ground and say you have had enough. Good luck. Let me know how you get on x

lee x

Thank you to your reply.  I have just put up with it for so long and have tried methods to help with this but i now have just got to the point where i just want my life back and wondered if anyone would think that i would be entitled to a hysterectomy. I know the recovery would be long but then i know that i will lead a much better life after.  I have no idea how long i would have to wait for one.  I am in East Sussex but im hoping the waiting time isnt too long as every month i am getting worse and its not fair on my family. Thanks again

Your symptoms are almost exactly the same as mine were. I went to the GP again when I found a very large lump in my groin after losing weight. It was the fibroid but the GP was worried enough to do tests, FINALLY. Have you had any blood tests? The reason I ask is that I had a CA125 test which came back at a very high level. I didn't have a clue what this meant, but it got me a gynae appointment within a week at which I had an internal and external scan and three biopsies (non of which I was expecting, I thought I was going for a consultation). They saw the MASSIVE fibroids that I knew I had as I could feel them from the outside but also scared me to death by telling me that the blood result was a strong indicator for ovarian cancer. I was immediately scheduled for full hysterectomy. (Dont panic)

I came away and googled.

The high level can also be caused by fibroids and endometriosis. This made me feel a little less scared.

I had the hysterectomy four weeks later and it appears that the blood result WAS caused by the fibroid and the large extent of endometriosis that I had after all. They even decided to leave the ovaries as they looked so healthy.

My point, I hear you ask.

I am actually really pleased that I had this scary blood test done as it massively sped up my hysterectomy. Plus, if I had had ovarian cancer, it was early enough to be totally eliminated by removing the ovaries. Absolutely terrifying at the time though.

It is almost 6 weeks after my hysterectomy now and although I am exhausted, bored and turning into a hypochondriac, I have not had a period for 6 weeks and I am NEVER going to have one again. I can't tell you how that is going to change my life. I am not going to ruin one week of every holiday. I am not going to be meeting with occ health every six months to discuss my recurring absences. I am going to be able to have sex with my husband. I am going to be able to stand up without checking the chair. I am not going to go into panic mode if I realise I have used my last super plus tampax and pad and I am not at home. I am not going to be walking around in a daze because I have doped myself up with naproxen or methanamic acid tablets plus paracetomol to cope with the pain. I can go out on ANY evening and not have to plan, usually unsuccessfully, around when my period is "supposed" to be happening. I will not be in pain.

Push, push, push for the hysterectomy. It is not easy surgery, it is not without potential problems or complications, but it beats the hell out of the life we were trying to live before!!!

I do have a fibroid but was told that it isnt very big and when i had my last internal scan which was about a month ago i was told that my left overy does seem to suffer clots.  I have had quite a few blood test over the last few years but i dont think anything has shown as abnormal.  I am really going to push for a hysterectomy, i really cant wait to live a normal life and do normal mummy/wife things. Thank you so much everyone for your replies, they have put my mind at ease at bit more x

Hi. I'm 39 and having hysterectomy and ovaries removed in May because of endo. This is what my consultant has told me needs to happen to prevent any further endo so they will do it at our age. If you are not planning more children then it has got to be worth not having all the hassles. Still a scary decision but if it gives you quality of life it has to be worth it! Good luck xx

Hi Ginny,  Oh you poor thing!  It sounds like you are having a terrible time!  I would just have one suggestion.  Your periods sounded like mine were before I had my balloon ablation.  The balloon ablation completely stopped all periods for about 3-4 years for me, but then the bleeding started back (though it was different).  The ablation was a relatively minor procedure which only involved being off work for a few days, and I know for some people it solves the problem completely.  Would you consider requesting one of these first?  Just a suggestion, as you are still very young for a hysterectomy, if there's an alternative.  Good luck! Kathy x

If the Dr doesn't agree its what you need, ask to see someone else. I was the same as you. Saw one gyne who said he didn't think I needed surgery...few months later, problems getting worse, I requested to see someone else. He agreed straight away and couldn't understand why I hadn't been done months before! It did help my case that I have had breast cancer and my mom had uterus cancer when she was only 38 (she's 73 now) but even with that, I had to push to get it done. Good luck...its time to get your life back x

Hi,am so sorry u are suffering so much.my story pretty much same and I demanded a hysterectomy.as long as they know u have exhausted all options and are aware of risks they will do it.

The key phrase they need to hear ( and I work for the nhs) is " I have no quality of life". They need to be able to write that in your notes!!

Had mine in October 2014 and just turned 42. If they remove ovaries u may need to have an induced menopause like I did to ensure the op will be a success.

Very best wishes

YES! 

Hi ginny

I cannot comment on whether they would give you a hysterectomy because you asked for one, I m not sure how that works, but what I would like to advise you is DO NOT have an ablation. Don't let them talk you I to it, I had one at 39 and it's more probe to fail if your under 40 and when it fails you will wish you had never had it done. It causes that much scarring that your cervix fuses shut then you get a build up of blood within your uterus that causes extremely severe labour pains, worse than childbirth! This is the reason I am now having my hysterectomy next Friday 3rd)

I wish you luck in yours and the doctors decision, but please think twice before ablation. (They're ok if you have your menopause before 10 years of having your lining burnt away).