Am i Crazy or just Mad
Posted , 10 users are following.
Oh do I just hate the world somedays. Insert swear word.
I have now officially been diagnosed with Fibro, a five year battle. I mean cummon. I have been managing this for so long I feel like I got it down most of the time. I know what not to do and where to ask for help, I gym five days a week and eat healthy. Wish I'd loose the weight faster but then doesn't every woman.
What I don't get, and I'm hoping some of you might have some answers for me here, is the injuries. I get the whole i feel alot of pain where others don't and I hurt all the time, but to a large degree it is mostly just background noise most of the time. What I don't get is how I keep slipping my disc in my back every two months or how my legs keep giving way under me for no reason and I end up tearing the ligaments in my ancle. Its the pain of these injuries that is so extreem and in all my reading on fibro and reading through all your blogs I don't see this as a symptom and i don't understand how the doc's don't seem to care about this, it seems almost irrelevant to them.
Do any of you guys suffer this?
2 likes, 17 replies
Bee70 CharliS
Posted
Welcome to this forum.
Sorry to hear about your situation. Yes I do have constant pains but have not experienced slip disc in my back.
I have been suffering for over 20yrs but only diagnosed Aug 2014 and have lived with pain all this time.
You will answers and support from many other people on this forum.
Good Luck and Gentle Hugs. x
klaregee CharliS
Posted
Yeah, unfortunately im familiar with knee buckling! Was advised to give up strenuous exercise by physio i attended after being misdiagnosed with patella tendon problems. The gym isn't a friend of fibro I'm afraid. I tend to do yoga and I swim and walk a lot, I also have a cross trainer in my house which I have found to be much btr than a treadmill when it comes to injury as u don't get the same pressure on ur joints
Not sure about the slipped discs, I have pelvis and hip problems tho so it is possible!
Welcome to the world of fibro lol xx
nancy01110 klaregee
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klaregee nancy01110
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Thanks, I've put on 3 stone as I've been off work since Jan and unable to exercise at all tho SK feel a bit of a fraud haha. Think I'm mostly comfort eating as iv always been very active and I'm finding it frustrating not being able to even walk down stairs!! My fibro has always been a (literal) pain in the neck but never to this extend and its so lonely!! Thats why im gtn on forums etc. Been throwing myself a pity party and needed a reminder other ppl suffer too lol.
I'm keeping my fingers xd its just a long flare up and I can get back to normal soon, I really do find exercise helps but its impossible to get the energy up when ur in pain..I'm sure u know all about it
I sympathise with u on the medical front, I got told recently that 'half the doctors don't think it exists'. This was by a supposed professional who was giving me a medical assessment on behalf ofy work. Luckily they've been a bit more sympathetic. I got referred to a pain clinic at my local hospital and it has been amazing, the staff include physios, psychologists etc. and they all specialise in chronic pain. I live in Glasgow, Scotland, unsure where u are and what would be available but u should enquire. Don't be afraid to switch docs, I went thru 3 before I found someone I felt was taking me seriously.
Claire xx
nancy01110 CharliS
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Nancy
kaz_40 CharliS
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susan69134 CharliS
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CharliS susan69134
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charlotte1824 CharliS
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CharliS
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It was sugested at a point I was hypermobile but they discredited that theory as only some of my smaller joints are hypermobile but none of the bigger ones.
You all seem to know that it is all good and well for them to tell a person the pain is in your head but on the days when you can't walk it is so bad and you have the MRI's that show actual injuries, how can they still treat you like it is in your head. They can be so contradictory. The same doctor tells me one minute I have a rediculously high pain threshhold and that he knows if I say I am in pain I am in pain tells me in the same sentance it is nothing to worry about and to keep on keeping on. For crying out loud I am 30 years old. I want to start a family and want to know if I can manage being pregnant and they can't give me an answer. I want to live life and am trying everything in my willpower which I bet you can all understand is hard some days, to get up and just live, instead of being cooped up in my little saftey net.
christine26761 CharliS
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derek1979 CharliS
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CharliS
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You are meant to trust and rely on your doctors. They have the education and the know how that we just cant do without. If we could heal ourselves we would instead we go to them and trust they have our best interests at heart. Its like we are too much work for them, as long as they get their pay cheque at the end of each month they will treat coughs and colds and you difficult cases stay away you make my job hard. They are all the same, no matter how many doctors you try or where in the world you are. If the answer isnt given to them on a silver platter its a prescription for pain pills and out the door in five minutes.
I will not take pain pills for this right now I refuse. I end up in hospital first. I am young, they are addictive and notoriusly bad for a persons kidneys and liver. I dont want to have further medical issues later in life because the doctors are lazy.
Bee70 CharliS
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Gentle hugs and stay positive and focused. x
kaz_40 Bee70
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