Am I wrong to think I've got fibromyalgia?

Posted , 5 users are following.

Hey there,

This message is pretty long, but it's difficult to describe what I'm feeling in a few words. Please try to read it all because I would appreciate opinions.

I've been having symptoms akin to fibromyalgia for the past 6/7 months. It started by an intense bloated feeling in my gut, feeling like there was a blockage in my intestines and my digestive cogs weren't turning normally. This was accompanied by a very loud grumbling sound. I went to see my GP to find out whether I had coeliac disease or some gluten-related condition, but that option was ruled out after a blood-test.

The digestive symptoms subsided shortly after seeing the doctor, and I thought I was on the road to feeling healthy and confident in my body. However, a few weeks after, I started developing pains in my upper abdomen, which are still with me today. The pain seems to alternate between different parts of my ribs and upper back, and the pain is targeted to these areas (in order of frequency):

Left rib (with occasional twicting)

Sternum (accompanied by occasional twitching, especially when I yawn)

Upper back (a pain which is feels deep in my spine)

Left shoulder/shoulder blade

I also occasionally get pains in my leg muscles, like they've been overworked, even though I'm not doing anything strenuous. I also have spider veins running along my ribs, along with dark patches under my eyes, which concern me greatly.

One more thing I should mention is that it feels a bit psychosomatic, in the sense that the pain subsides when my mind is occupied, although there is usually a dull pain remaining. When I'm nervous/anxious, or when my body is on my mind, the pain increases and everything starts to spiral out of control.

My mental symptoms include some kind of depression and anxiety, like I've lost myself, and my personality has suffered some sort of shift, leaving me feeling quite empty inside. I am also a musician, and was very confident of myself in music college, and found that my confidence has dwindled and I've forget all the music theory that I've worked so hard to learn. I sometimes struggle in conversation; I used to be able to explain myself eloquently, but it feels as if I've forgotten a load of words which I used to know. The mental symptoms can be summed up in this nutshell (excuse the expletive but I need to include it to convey the frustration):

"Who the f*** am I again?"

I seem to sleep fairly undisturbed, but I've been going to bed past midnight for as long as I remember, I usually get about 6/7 hours or sleep or not, but I hardly ever go to bed before midnight.

I went to see the doctor again to have my chest checked out (I was terrified that I have the big C). The doctor used a stethoscope and said my chest was clear, she also took my oxygen levels in my blood which were at 98%.

I explained to her that I've considered it to be fibromyalgia, but she said, and I paraphrase:

"I don't think you should be going down that road."

The GPs i've seen don't seem to be at all helpful in dicussing other options as to what I might be feeling, they just checked me out, found that nothing too alarming was going on and just sent me on my way. I try to take my mind off it all, thinking it is psychosomatic. Sometimes it seems to do the trick, but the pain always seems to be somewhere, even if it is dull sometimes.

The only solace I try to get is from my friends and family, but they don't understand what it is I'm going through. My dad says it's all in my head, and friend chuckled slightly when he saw me posting in here, as if I'm being irrational. I'm sick of talking about it to everbody. Does anybody else understand what I'm feeling? It would be nice not to feel so alone with this problem.

 

0 likes, 6 replies

6 Replies

  • Posted

    I would see another doctor for a second opinion. I presented with symptoms for many (15 or more) years before diagnosis of fibro. I wasn't assertive enough with my doctor who told me it was just symptoms of ageing. No-one here can diagnose you and I don't know if you have fibro, but I'm sure plenty people who do have experienced similar attitides to their symptoms.
  • Posted

    Whilst your symptoms might possibly be as a result of psychological issues such as stress, that is different from them being psychosomatic - which is indicative of 'imagined' symptoms.  I dont believe for a moment you're imagining your symptoms but they may well be caused or at least intensified by the worry and stress you feel about your health presently.   Fibro varies from person to person but is usually muscular and particularly prevalent in upper arms or upper legs rather than stomach.  However fibro is also often brought on by the body's immune system badly reacting to stress levels and can have added IBS issues too but usually not in isolation.  I have to agree somewhat with your doctor when she says not to focus on fibro as a first port of call - even if diagnosed as such the treatment isnt much different, ie mostly pain meds and such.  Have a think about your diet - could it be diverticular? Are you eating a restricted or unhealthy diet? Are you dieting - particularly 'yo yo' dieting.  Are you under particular stress with work or family issues:? All of these things will affect mood, memory, rational thought, and of course digestive system.  Would counselling help or perhaps anti depressants or SSRI's?  The body can be severely affected by the mind - without it being 'all in the mind' if you get my drift.  Explore getting your mind healthy and usually the body follows along behind.  

    I have fibromyalgia and I know for certain mine was caused by my body's reaction to stress - whilst the cause was psychological, the symptoms are very real and very difficult to cope with.  Getting a diagnosis isnt the cure, getting yourself into a better place mentally is the best way to help ease the symptoms.

  • Posted

    omg... u are not alone in your feelings! i have had worring symptoms for a year now.... il tell you about my symptoms later but more importantly, i totally undersrand how u are feeling! iv stood there and told my doctor im gonna sue him lol!

    iv fell out with all my family because of the words " its all in your head" iv found out my long term friends were not true friends, iv spent £1000's on scans ect, as docs wouldnt listen so i had to go private, i to thought i had the big c!

    iiv lost my business because of this....

    its all very well your friend is laughing cos you posted on here but its not funny, pain can litrally dive you insane, espescially when you feel noone is by your side backing you, and u dont know whats causing it. i totally understand how you feel. il list my symptoms for you. x

  • Posted

    Hello mrmystifier,

    Your story is very familiar from what I have read about Fibro sufferers. you are certainly not alone. I don't know if you have Fibro, but if you are not happy with your Doc find a more sympathetic one. I would say your first step is to get some meds for depression, then keep going back to Doc for other symptoms to be treated. It can take a few years for Fibro to be diagnosed, usually by a rheumotoligist, when all other avenues are explored.

    As for family and friends saying it all in your head, it is difficult for others to understand, be patient with them. Good luck and please let us know how you get on.

    Take care, Anne

  • Posted

    Hi, I agree to all loxie here said. Loxie's answer was exactly what I was thinking, too. Pls try to get help for your anxiety and stress.My fibro is probably also caused by stress.

    My GP has been treating/checking me for mysterious symptoms for years. Now I finally said: I think it is fibromyalgia and she definitely did not say no. The chest pain can be Costochondritis, (which can be there by itself or together with fibro),  harmless but sometimes painful condition, an inflammation in the rib cartilage and sternum.

    And again, loxie, your answer was really good and well formulated.

  • Posted

    Thankyou so much for your responses everyone, I really appreciate your opinions.

    I've considered it to be stress related, but it's really difficult to tell whether I'm really stressed/depressed or not. I'm a pretty chilled out person outwardly, but I definitely feel that something is going on in my subconscious mind. I've heard that fibro can be caused by the loss of a loved one; my mother passed away when I was 19 (I'm now 25), and I don't feel like I've ever grieved about it properly since there's no benchmark for grievance. I don't feel like I've ever needed counselling for it, but I don't know how much it has affected my subconscious state of mind. Does that make sense? I hope it does.

    The physical aspect feels so real that it feels like I'm playing a game of tug-of-war between being mentally or physically ill, it's all very difficult to figure out. I must include that I've developed itches on my forearms, there's no rashes or anything, but they are certainly super itchy.

    Thanks again for getting in touch x

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