Anal fissures and problems and general problems

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Hi there, This is my first post.  I wish I'd found this forum a long time ago!  Had a (much delayed) diagnosis about 6 years ago.  I see a dermatologist yearly but having now (finally) read so much more about this problem, I think he's simply checking to make sure no danger signs for cancer rather than helping me to optimise my health.  Next time, I'm going with a list of questions!  But I also have a history of anal fissures and anal itching - and for the first time, I'm realising that this could also be LS.  Does anyone else have this problem and how do you best manage it?  I've begun to use the steriod ointment there as well but I'm worried about it being 'too much.'   I will discuss this with the doctor but I'd be interested to learn of other people's experiences with anal problems caused by LS.  Best wishes, Jo

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  • Posted

    I was diagnosed with LS just over a year ago by which time it had spread to my anus and my back.  I now have a patch on my left breast which isn't itchy but a rather unsightly purple colour.  Re. the anal involvement, my gynaecologist told me to apply the clobetosone to this area too.  It has worked well and is under control with the occasional flare up - especially during warmer weather.  Isn't it a wonderful condition?!
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    • Posted

      Thank you Kathryn - it sure is!  It does help  knowing that we aren't the only ones - I've felt quite humilated and isolated by it but can see that being more open will help with that too.  Best regards, J.
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    Same problems with me. I was told to apply the steroid cream. Like you I get a check up yearly but I now realise it is only to check for cancer. Really wish the doctors would get better trained and aware of the devastating and isolating feelings that LS brings.

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      Thank you Lesile, much appreciated.  And I SO agree about the training point. Best regards, J.
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      Thank you Chel. The cream sounds like it will be soothing.  And givien that inflammation is behind so many health problems, it has to make sense to take it very seriously.  I have a number of problems which are caused in some way by inflammation and have recently started looking at anti-inflammatory foods etc. etc.  I think that Docs can be great but they sometimes tend to focus on little bits of us rather than the whole person!  I've been seeing a colo-rectal specialist for that bit; and the dermatologist for the LS and it's me that is now joining up the dots!  Best wishes, J
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      You are doing most of the things I do. Detoxification makes a lot of sense. Bacteria is a big problem for me with IBS. I also have bowel obstructions caused by scar tissue strangulation. All a nightmare at times. So I try to do my own thing. Doctors don't tell us to detoxify. It';s all about prescription writing which, I am not too fussy about. I try alternatives especially in food and exercise first.

      Thanks for posting.

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      I have had LS since I was young (not diagnosed), but I think that my ongoing use of NSAIDs over the years for daily pain did nothing to make my situation better. I had a n injury years ago and I have been shown the exercises to do to rectify the situation. After years (years!) of not doing ithe programs (yes, more than once I had one set up for me) and trying to do it on my own I finally paid a trainer to stand there and tell me what to do. I had to give up a lot of things to be able to afford it, but the change I have begun to feel is amazing. I no longer need to take pain medication. I sleep better and have a better mood. It also helps that my trainer has an autoimmune disease herself. It took a lot to get to the point to admit to myself that, as simple as it appears to do some exercises at home, if it hadn't happened in all those years (and different states of mind and home) it wasn't going to happen. I need very specific exercises due to the injury I'm trying to overcome. If you simply need to exercise, how about joining a class of some sort (pilates, yoga etc.)? I found that the decision to spend the money on making me better had two benefits. One, it got me working out and two, the investment in my health was healing. 
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    • Posted

      wow elle....what an inspiring response....thank you so much!

      i will do this. i'm going to appoint a trainer to come to my home.

      Now all i have to do is tidy up and finish the various bits of building work! there's always some obstacle isn't there?....some times quite literally!! But you are absolutely right - making a start with some realistic support is definitely the answer. ie do it right...get the warm ups in place and i don't have to start flipping straight away!!

      i had been following a trainers blog and when i approached him he suggested delaying exercise til i had more energy ....probably he 's a heavy burn man. i am aware that too much cardio is adverse, but thats not a risk with me. get started i must. thank you most sincerely.

      may i ask as to the nature of your injury and your progress? was it a car crash? so so glad to hear of your improvement. x

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    • Posted

      You're welcome! Not a car accident. A rather simply injury in my shoulder and neck that I ignored. As time went on, muscles in other areas would compensate for the limited abililties an they became built up while other muscles atrophied. As it was over a period of years it's quite a mess that I have to undo. I've only been at it for 3 months, but I there is improvement.

      I wish you well. 

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      Thanks so much Elle. I 've had a vaguely similiar thing with a slight scoliosis. It improves when cycling i've found ...maybe because i must stretch equally on each side. Your comments are really helpful and thought provoking. Keep us updated. x
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      I can't really tell. I've made a lot of changes recently so it's hard to know what is directly related to the improvements I've seen. 
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      Hi Chel, Forgive the delay in responding - I have been away for a few days.  I have a hiatal hernia (recently diagnosed) and so I'm on a proton pump inhibitatator to decrease stomach acidity but am hoping in time to manage this by what and how I eat.  I think I've got muddled between the need to reduce inflammation issues related to acidity.  All of this together with your very thoughtful posts have made me think about making an appointment to see a naturapath/nutritionist to take a holistic view about what might be best for me.  You've given me amazing and rich food for thought.  Many thanks, Jo.
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