anyone else had this on amitriptyline

Posted , 7 users are following.

I was diagnose a couple of months ago (been trying to find out what the problem is for almost 10 years and had symptoms for over 15 though) my octor put me on amitriptyline to start with and I went from always waking up tired but at least able to wake up, to sleeping for 12-14 hours and not being able to wake up, or be woken up by someone else and still feeling just as exhausted as when I went to bed. has anyone else had this happen?

My doctor has just taken me of it and I'm starting on gabapentin so I'll see how that goes. incase that doesn't work can anyone suggest any other meds that I could talk to him about?

0 likes, 7 replies

7 Replies

  • Posted

    I try both of them and it didn't work my doc now put me on cymbalta I haven't started it yet but I hope it works
  • Posted

    I take pregabalin
    • Posted

      My Doctor mentioned that one, he also said it's not funded here (NZ) and would cost $200 a script which is way more than I can afford unfortunately. Thanks though biggrin
  • Posted

    Hi I take Gabapentin and initially it helped me to return to work after six months off

    But I believe it's not helping me now and hasn't done in a while, I keep meaning to go back to my GP but she just blames everything on Fibro and never listens to anything I have to say,

    My rheumatologist put me on Amitriptyline but I couldn't function in work and didn't rest at night that well so I had to stop them,

    I now find magnesium very good and going gluten free, but best of all exercise although at first it almost killed me I worked through the pain and tiredness and after a month can now lift my right arm almost straight up and cross it over my body to take my own top off I'm over the moon, it's not been easy though

    Wish you luck in finding something that works for you x

  • Posted

    Hi KTreva;  yes when first starting on Amitriptylline, it does make us sleep longer (what doseage, as a small doseage and then build up as your body needs it).  I also take Gabapentin, actually started on this first, as a Nerve Blocker....I only use the Amitriptylline for the "burning" pain, and only started on 5 -10 mgms, however, did go up to 25 during our Extremely Hot November here in Australia....A lot of us have agreed that heat exacerbates our symptoms (whether it be a hot bath/shower...or just the weather)....and then the Cold sets off other symptoms, like our muscles cramping/numbness etc....let us know what you feel re this?...Bron
  • Posted

    Hiya...Starfire! this is only my exoerience with this med..we are all different though , Amithriptilyne is  the only med I take for Fibro...gives me a great pain free sleep..- no pain..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once  it was just constant  pain almost everywhere and sleepless nights..I take it 7pm before bed..it really does work wonders ( for me..that is,) we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...all the next day..dropped to 10mg for a while-still not too good but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time..yes it does knock me out to give me that great sleep which is just sooo needed, to be able to deal with the pain etc the next day..but once I'm up and dressed..I'm fine.....however I will sleep most of the day if I'm not woken up..if hubby is out really early he will just ring me up to get up...it's that easy to wake..I do wake up easily. It's great...do need to take it for a while and let it settle in to your system..16yrs down the track....once up and about I'm just fine.....when I was first on them I was like a zombie..but it's like a miracle med for me... it takes a while to settle in. ..also, please remember that less stress is the key to Fibro....be blessed..have a lovely day..:-) xxx

    PS.  I think we have all had this rotten Fibro for at least 10 years prior to diagnoses too..but this blog us just amazing...

     

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