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anyone else in same boat as me?? pain spreading rapidly?

Posted , 12 users are following.

melissa30395
melissa30395

Has anyone elses found that their pain has moved into different areas within a year as mine seems to be spreading around my body like wildfiresad((?????It s like its getting worse everyday too scared what tommorrow will bring when i wake up!sad

2 likes, 37 replies

37 Replies

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  • PiliPalaB4ch
    PiliPalaB4ch melissa30395

    Posted

    Hi Melissa, I have the same issues too. I have pain from head to toe, but, it's never the same from hour to hour let alone day to day! I think most of us are in similar situations, take care. Gentle hugs.
    • melissa30395
      melissa30395 PiliPalaB4ch

      Posted

      i just dont get it how it can be in the back then half n hour later its in your hips your legs your head etc... I sometimes find myself wondering what i have done wrong in my past life!!
  • christine26761
    christine26761 melissa30395

    Posted

    Yes Melissa, but there is light at the end of your tunnel..I've had Fibro 30 odd years and I only suffer from flare ups now..bad at times, sometimes more of them one year to another..isn't it so  like this Fibro, does what it likes, but it's not at all as bad as it was yes ago..it did take me years to get the right medication then dosage..suppose we all can say that, but it works wonders...feeling for you Melissa, gentle hugs from across the seas..be blessed..and have  a lovely weekend..:-) xxx
    • melissa30395
      melissa30395 christine26761

      Posted

      Hi Christine 30 years...wow Can i ask how have you managed? I dont have any family or friends around me so i dont  have a support system that i fully need. I do have a lot of support from my boyfriend more than he is capable of giving sometimes iput him through hell bless him

      thankyou

    • christine26761
      christine26761 melissa30395

      Posted

      Hi melissa...firstly and definately formost , I have a fantastic

      husband who is very caring and compassionate....I am a

      Practicing Christian who relies on the love and closeness of God.....and I have heaps and heaps of unconditional

      love and support from people/friends in my church always

      and whenever and for whatever I happen to be in need of and my needs are never too much for them..five of them are very close good friends too..I truly believe being surrounded by genuine

      people who care for you and love you and who you can be

      vunerable with as such a great help..I was much worse of cours pain etc wise in my earlier years when I had small

      children...having it for soo long..it just seemed to go into a sort ofremission, mind you the flare ups are horrendous..I still take

      the same medication as i did over 20 years ago...and it still works...trying to be as stress free is such a key to living with fibro..it

      loves stress it plays such havoc..i still get exhausted quick...but i can deal with that..i have no family here..only a daughter and her husband and child...all my family live on mai kand Australia and we live in Tasmania....but i must say too..that i took my health

      Into my own hands, way back when i was being treated like i was

      mental..that no one could have all the issues that i was dealing with..i started researching and getting knowledge and when i

      went to see the doc i was informed..it did make him get educate about it too...im not afraid to ask for second opinions either, i

      now have great doctors and specialists who know all a about this

      this rotte autoimmune condition..hope this all help melissa..be

      blessed a d have a lovely day😚😍

  • deb97936
    deb97936 melissa30395

    Posted

    Yes Melissa, I am the same.  I haven't a day go by in 13 years that hasn't been crippling.  After my car accident, my injuries and head injuries have caused on top of it all this dam Fibro condition.  So may injuries spark off all sorts of pain issues everywhere.  It has affected my everything from memory, (which has improved in the last 4 to 5 years overall) to having Fibro fog.  Whole of spine, but my whole of neck and lower spine is the worst.  All the peripheral pain that goes with it, and the internal pains, reall weird sensations, pins and needles in arms and hands, shimmering, cold and hot pain, noring painful aching, migraines, Vocanic heat or extreme coldness, stabbing pain, seering pain, cramping pain, and painful stiffness ... any time of day and night, 24/7....  Then there comes the Flare ups...  Oh my oh my...  nausea..  body racked in all a myrid of pains and deep noring painful aching, sweating due to extreme boiling heat!  The more pain the heavier the sweating.. I can drench my bedding and clothes in just minutes flat...  No painkillers will be touch it ever!   Even my daily pains etc won't settle with painkillers, just my 24/7 head ache can be minimalised with Ibruphren.  The Tramadol, is enough to settle my upper neck spine into my head... But in a Flare 'Nothing helps'...   I rest on a boarderline level now, I have no remission except if I am lucky I will get 6 hours to 12 hours approx NO PAIN, NO Stiffness at all,  once about every 7 months 'IF I'M LUCKY'....  

    Over the last 4 - 5 years my legs and hips have gotten really bad.  Now I have periods that I can't walk, or even lift my leg off the floor because of my hips...  PAIN and STIFFNESS..  just won't permit me.  Before 5 years ago I was still able to walk any where and everywhere.. but not now, dammit!   My legs were the only thing that I had free of pain up till then.  I could exerise my legs walking, on bike or even on a gym but not now.  They have gone just like my arms, permanently locked in with Fibro...24/7....

    So your not on your own possums!   You just simply have to roll with the flow, keep yourself nourished with healthy fruit, vege etc keep up your bodies defensive means, and it's energy.  Find other things you 'can do' or interests that you can throw yourself into and to help get your mind off 'Pain'...  Try to focus past the pain whenever you can...  I understand perfectly well that in major Flare ups that is not possible.  

    Again, your not on your own.  It's not a death sentence... and HOPEFULLY yes, the great minds of this world can find something of a cure, or remission product...  Bless them..And then we just pray we can afford it!!!

    • melissa30395
      melissa30395 deb97936

      Posted

      i am so sorry that you had to go through all that. I do think there is some excellent doctors but like life theres also ones that do bare minimum and are not interested or have the knowledge for the job or this conditionsad i feel very angry on a daily basis and i read other peoples struggles and it helps me realise i am not on my own but also infurates me further.

      Im the same at the moment i am really sdtruggling with my legs and hips and inside of my legs near to my knees when i walk the pain is hideous i can make it to the shop on the bottom of my road but really struggle on the way back and when iget back in im angry at myself for goingsad

      i used to take tramadol they eased a bit of the pain somedays but it just kept getting worse  and then they stopped working just made me out of it as i started taking more

      i know its hard when your having a really bad day its just black i hate it! They need to there is too many people suffering

  • deb97936
    deb97936 melissa30395

    Posted

    May I ask what part of the Globe you are?   I'm in New Zealand...
    • leeanneb46
      leeanneb46 deb97936

      Posted

      Hi Deb I'm in nz and have just had my doc confirm fibro I have for years also been managing depression. I had never heard of fibromyalgia until now. I thought I was going mad with pain or a hypochondriac.

      I am struggling to understand how this is effecting my life and wanting to know how or when I may know it has reached it's worst ??

      All I can do since started researching this is cry....

    • deb97936
      deb97936 leeanneb46

      Posted

      I have experienced really down low moods, not clinical depression but just down low moods due to the frustrating and very stressful mental anguish associated with this dam Fibro condition.  That was before I was finally diagnosed and my suspicions confirmed.  However of course a diagnosis at least gives us something to 'call it'.  It doesn't solve our issues but at least we can stand now, and feel 'justified' in our explanation/s of what 'is actually wrong with us'....

      Every day....is....  a new day, and some with extra burdens or 'loading' as I put it.  The physical 'loading'... and its this 'loading' on the body that is so dam tiring and it's what builds into 'Flares'...  the Uncontrollable Flares...grrrrr     SO, what do we do ??   Well what I do, which is commonplace for any 'human being or animal' in response to our body and brains ailing....  Lay LOW...    We must all LEARN to respect what I body is telling us when we experience the 'Load' feelings...the developing 'Load to Loading to LOADED....and dam it hurts, or dam it is so heavy I can no-longer stand straight and have to lay prone.  

      From my experience, pushing myself to exercise like I 'once could', and nearly coping doing it..  (I'm talking of myself up to 8 years ago) When I could walk miles but being mindful of my neck/head and shoulders of any whiplashing affect walking, or any stumbling, uneven pathways or tracks that would mean extra muscle burden coping.  Every time I was in the position that I would be pushing my muscles to cope on 'uneven surfaces or walking uphill gradients !! ', the Flares would erupt spontaneously or within the next 4 - 6 hrs later... 'BAM!....  

      For me, every flare could take weeks, and still pushing the odd days in a Flare, would mean a HUGE set back and becoming extremely bedridden..   

      NOW this is where I believe, for me, my Stages from 1 - 5 have increased hard and fast, because I pushed my self in life, whilst also dealing with 'LOADS AND LOADS, of STRESS'....  And I mean REAL BAD STRESS!  Crippling stress.  

      One will lose their confidence very easily, whilst being ever so stressed for so very long.  Pushing to cope with everything on a daily basis, they physical load to, ALL has a profound affect on brain and the body.

      If life is so very hard, and no folk believe you,  then that in itselfs is a shock a put down....

       

    • Bee70
      Bee70 deb97936

      Posted

      Totally agree with you Deb......

      One day and one moment at a time.....is the way forward for us dealing with Fibro.

      Gentle hugs wink xx

    • christine26761
      christine26761 deb97936

      Posted

      Soooo feeling for you deb...sorry its like this...gentle hugs..i agree there with you too when people dont realise how really bad fibro

      gets..theres just sooooo many different issues we have to deal

      with at a time, people think...it cant be that bad, impossible

      to have all that man y symptoms, grrr, if only they knew,

      something we could probably all relate to...its just sooo

      unhelpful to have negative friends/family around us..it just

      stresses us out...stress stress and more stress but it just cant be helped sometimes, .we just seem to take on stress which of

      course fibro just loves, do hope your feeling better soon, really hope you have a lovely day...gentle hugs.....😉😍..

  • jane218p
    jane218p melissa30395

    Posted

    Hi Melissa, I too seem to be in pain in different parts of my body,y legs and ankles were the worst by far but now it's my shoulders and neck! I was diagnosed with fm only recently but have lived with it for about 15 years! I am worried tat soon I won't be able to do anything anymore! Thoughts n hugs for ya x
    • melissa30395
      melissa30395 jane218p

      Posted

      Hi jane

      i know thats exactly how i feel very frustrated angry and upset at the minutesad you will know how i feel then having it so long

      How do you try and cope with it all?

       

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