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Anyone else really sick of neuropathic pain and weakness?

Posted , 6 users are following.

BigG101
BigG101

2.5 years I've been in pain. Was wrongly treated for Rheumatoid Arthritis for 1.5 years and then finally correctly diagnosed this year. Have had to stop driving, constantly in pain (although slightly better on Carbomazapine than the other three drugs I've tried). But just fed up with severe stabbing pains in my feet constant pain in my hands and above all I feel so weak compared to what I was. I'm 42 and can't cut the grass without collapsing in a heap afterwards and sleeping for the rest of the day completely knackered. I hate this dam disease. I used to be so fit and capable. I've been told it will never get better and the only thing I can do is keep working with the drugs. I've lost all motivation for anything because I can't manage and I just want my old life back. They say they can't determine what the cause has been. Im not diabetic, they've tested me for everything. MRI was none conclusive. What next. Is there light at the end of the tunnel.

0 likes, 3 replies

3 Replies

  • elizabeth20203
    elizabeth20203 BigG101

    Posted

    I have neuropathic pain so can understand how painful It Is. I take Gaberpentin for mine and find that this keeps the pain under control. There doesn't seem to be a cure and the cause Is not always known. Mine Is caused from nerve damage due to Septic Arthritis from childhood and having lots of operations and the knee replaced twice. Firstly at aged 39 and again at 52. I am afraid drugs are the only thing that helps. Carbamzepine can cause tiredness, I was on those a few years ago. Ask the GP If there are any other drugs they can try you on.

     

  • jan1961
    jan1961 BigG101

    Posted

    Hi big,you have my sympathy . I know how you must feel. I have osteoarthritis throughout body with nerve compression left side shoulder right through to foot. The only time I am pain free is in dreamland smile and that sadly is too short. It is hard to accept we can no longer do as we did,it took me about 18 months to begin to accept the changes that had happened in my life,medical retirement from a job I loved ,loosing my work colleagues,the prospect at 50 that I'd never work again,the inability to be as physical as I was,no more long walks,no more long gym sessions,no long cycle rides,of hours in the garden . But accept the changes and rejig the way I did things and what I did I knew I had too to move on and be happy. I hope you get to a place of acceptance soon,Learn to pace as best you can and treat yourself gently. The good news for me is I have a job,part time,in a business I'd never of dreamt of. They are good with my hours and allow me flexibility,yes I over do things at times ,but I figure I hurt no matter if I do nothing or something so I might as well do stuff and be happy ,as long as I give myself rest times,cuddle up Times,and yes get cheesed off times smile

    Be strong my friend and look after yourself

  • Attempt82
    Attempt82 BigG101

    Posted

    Hi BigG

    Unfortunately there is no cure for neuropathic pain, the muscle weakness is a trait of the condition, I've found the best treatment is Amytriperlyne and Fentanyl they both do a better job than Gabapentin, your state of mind is also important and meditation can be a great help, see your GP and ask to see a Cognitive Therapist they can really help, there are lots of us out here so don't suffer alone

    Good luck

    John

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