Anyone else suffer with M.E and peri-menopause?

Posted , 11 users are following.

Hi all,

I am 49, was diagnosed with M.E/CFS three years ago, have been reasonably lucky in that I have been able to change my job and work role to accommodate symptoms etc and up until a few months ago felt in control of the illness.  Then other new symptoms arrived on the scene, namely extreme anxiety, headaches, nausea, hot flushes etc.  My periods are all over the place and my sleep is disturbed in that I am jolted awake each morning with palpitations, and a dreadful feeling of anxiety.  Seen my gp who says sure I am going into menopause but wants to check my head with a ct scan as most days I wake with a headache and extreme nausea.

If this is ok I am going to try some HRT because I feel absolutely awful, never suffered with anxiety before and I feel it is affecting my whole life at the moment.

Any other me suffers gone or going through menopause?  Am starting to feel unable to cope and that is not like me.


Jane xx


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9 Replies

  • Posted

    Hi Jane sorry to hear About your M/E yes I'm going through the menopause darling I have been jolted out my sleep with various symptoms such as fright heart thumps panicky and unexplain feelings at times,I had a CT Scan few years ago thinking something was wrong but it was fine, got use to some things others it's hard. We go through so much at this time life but we can get through it and you will like all of us, I know it's not easy deal with it in the best way you know how and take each day as it comes as they say it's not for ever hugs xxx
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  • Posted

    Hi Jane...I am 49 in October and my symptoms ramped up last October. I developed anxiety and flat moods that come and go. I am still fairly regular so my doctor has said I am peri. I have had anxiety/depression before but this is different. I also wake up with heart racing and a sweats. Its horrible...i also wake up trembling inside sometimes too...its weird. It sounds like your hormones are starting to change. I am just trying to cope with each week as it comes and hoping I finish quickly lol. I have had palpitations on and off today...another symptom that pops up from time to time. Keep in touch on here...its reassuring to read others posts so you realise you aren't alone. smile
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  • Posted

    Hi jane oh the joys of bein a woman . I had a full hysterectomy 6 mths ago so i went straight into menoupause an i have all those horriable symptons . I have been on hrt since an its not makein any diffrence i feel awfull most days i started on a 2mg . An i cudnt lift my head of the pillow for headaches . Then the doctor changed it to 1mg jell an am still the same . Sorry about ur M.E hope you get sorted with the other symptoms take care x
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  • Posted

    Hi Jane welcome to the horrible life we call menopause you just described me to the T I get these symptoms and more I wake up my hands get sweaty my anxiety kicks in full force feels like I can't cope with the day so I get up stay busy most of the day so I don't just sit and think about it I actually changed my living room around yesterday tour my kitchen apart scrubbed the floors by the end of the day I was pooped out but I didn't think about the anxiety I was getting these weird aches in my head the other day think sinuses related but right away I thought something was wrong with me it's so crazy how this anxiety thing can just control us but we have to fight back telling ourselves it's gonna be ok I will admit it can take over my day sometimes and I just feel awful like when my joints aches my shoulders and arms and wrist ache like the Dickens I thought I had some awful bone disease we all think the worst when anxiety kicks in well ladies I hope we can all get through this together (((((hugs))))))
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  • Posted

    Hi Jane I'm also an ME sufferer going into menopause

    I could write here all day the symptoms I've had for over 1 year but I have all the symptoms you have hand except for the hot flushes, don't seem to be bothered by them

    I thought I had beat ME but oh my it has came back big time, it's a nightmare, I think having this condition has heightened all of the meno symptoms

    My neck is badly affected and also my balance, feel off balance all the time, now the anxiety and tension in my neck is preventing me from moving it naturally I think this is just making things worse and causing terrible headaches

    I've beat this before and lived a pretty normal life with a very demanding job. I've had to resign from my job now things got so bad but I'll be back, just need to get through this hormone imbalance

    I'd also like to say I've been on tibolone HRT for nearly 4 months don't feel any different except my migraines are more frequent and I'm very sensitive to the side effects of medication which my dr thinks is all in my head but I know it's real

    I'm 52 now was diagnosed with ME 2001, was very ill for a couple of years then I had therapy which explained what ME is and j got better, never looked back until 2011 where u relapsed due to suffering from severe stress, again recovered then hormones changed, my mum passed away more stress hence more severe symptoms

    If you need to discuss or ask anything feel free to contact me Jane and I'll be happy to help if I can

    Chin up things WILL get better



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    • Posted

      Thanks Brenda, 

      I too had my M.E. under control and then hormones!!, I feel really dissapointed that all symptoms have returned and then some!

      I have a part time job which I can usually cope with but am struggling at the moment which makes me sad.  Just need to accept this is temporary and i am not alone, this forum is a life saver.

      jane x


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  • Posted

    Hi Jane. sorry to hear you are feeling so dreadful. Everyone is different, but if your ct scan comes back normal, I really think hrt may help you as it has helped me. I am on low dose of estrogen gel applied nightly with 200mg progesterone tablets days 15-26 of my 28day cycle (I had to make a cycle as I have had no peroids just irreg bleeding for couple of years now) I have been on it since 1/4/16, & the main things it has helped so far was the mental symptoms(anxiety, erratic low mood, palps, tears, anger) & the headaches. I noticed a difference within 2 -3 wks of starting it. Hope this helps a bit hun, let us know how you get on with your scan. xxx
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  • Posted

    So sorry you feel so bad. Yes, menopause just heightens your existing problems. I don't know, it's like it attacks your resilience and wants you to give up.

    Keep going. Hard to do but we have no other choice.

    There must be an end to it, like puberty.

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