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anyone get very painful knees

Posted , 5 users are following.

dobie2
dobie2

hi there fellow Fibros,

Does anyone else suffer from chronic pains in their knees.  it is getting so bad that i am finding it very hard to walk any distance because it takes nothing to start th epain.  i also find that if i am in bed and have managed to get to sleep i am being woken up in so much pain it makes me cry out as i am not able to straighten my knees especially my left one.  i also find that my knees often give way and my step daughter thinks this so funny, little minx she is only 13.

kind regards and gentle hugs

janet

 

2 likes, 8 replies

8 Replies

  • joanne3853
    joanne3853 dobie2

    Posted

    I'm not sure which forum I'm in for this , I'm new and just getting around. Yes I have this I have hypomobility eds dystonia fibromyalgia so I know it's any one if these but I guess it's mostly hypomobility when I had it at its worst my vitamin d levels were really low. Calcium levels were too. As soon as I got my bit d up calcium levels came up naturally. Get your bit d levels checked out. Stay away from sugars , natural sugars are ok but try stay off sweet things it does help with inflammation , 
    • hope4cure
      hope4cure joanne3853

      Posted

      Hi Joanne.WELCOME...u will learn UR way round soon. If I can figure it out anyone can...

      there r so many here to choose..bones joints and muscles ..and EDS 

      I HAVE low vit D and it's the climate I live in. Actually most ppl live north in latitudes above the equator have been tested to have lower levels of vit-D

      Sugar has in the laser 25 years been limited in my diet. White flower is not my friend at all.. A good diet is wise that's for sure.

      there r so many different EDS. I have a lot of mobility in my joints which has led to osteo arthritis in my hips. Had both replaced.. All that extra movement can cause serious joint issues later. As u know EDS was a unknown when I was a child.. Most docs would say wow UR double jointed UR thumbs aren't supposed to do that..I have the hypermobility type, same as u and FM...just to name a few...confused

      Keep looking around u will get the hang....cheesygrin

       

  • hope4cure
    hope4cure dobie2

    Posted

    Hi dobie,

    i have painful knees they r really bothering me. UR knees too have arthritis ?

    Please see UR doc ASAP. That sounds like serious pain. U don't want to risk further injury by not taking care of it now. 

    Both mine have arthritis. Some knees r injured accidents etc or both.. 

    X-rays will help the doc with a diagnosis and discuss treatment plans available to u.

    a prec. For pain meds but DMARDS help mine. 

    Sometimes injections help and pain meds,PT, knee splint. Or surgery. Once UR options r discussed then UR on UR way to recovery..ice them and take anti inflammatories every 6-8 hrs. Most of all rest them no weight bearing for at least a week. Keep them up on pillows and Use a cane/stick for stability . U don't want to risk a fall.. It's just until UR thru the initial recovery. 

    Keep us posted. Not fun being in that much pain.. Get better soon! cheesygrin

     

  • JulieBadger
    JulieBadger dobie2

    Posted

    Hi Janet. My knees hurt especially when going up stairs (10 steps instead of 13 would be much nicer) .  Before I was diagnosed with Fibro I always thought I was going to need knee replacements. My worst area is my back and neck. xx
  • Bouncyville
    Bouncyville dobie2

    Posted

    My knees give way due to hypermobility syndrome which has recently been linked to fibro. Apparently I have shallow sockets and joints which cause dislocation in various areas.
    • joanne3853
      joanne3853 Bouncyville

      Posted

      I have the same my hips are the worst large sockets they displace when I'm walking , they go back when I lay, I get a large clunk when the go back my right sides the worst my left side clucks and creaks when I walk. I get snapping sounds in my left clavicle and I feel like my ribs actually crack although I don't know if it is my ribs but it feels like it is. Sympathies x
    • Bouncyville
      Bouncyville joanne3853

      Posted

      The pain in your ribs could be them dislocating. I am lucky enough to have a gp who is very interested in fibro and hypermobility so he takes every ache and pain seriously. When I mentioned my ribs, especially when I bend down, he said they can dislocate like the other joints.
  • Flowerlady
    Flowerlady dobie2

    Posted

    Hello all, I get loads of pain in my knees now. I were diagnosed 3 years ago, and now my left knee is worst of all. Especially when I wake after a couple of hours sleep. The pain makes we shout out loud, I just can't help it..It's as if its locked and the pain is excruciatingfrownsadsadsad
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