Anyone had 3 Repeat surgeries

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Hi I am new to this site and looking for help/advice ,Over the last 5yrs I ve had recto/cysto/entrocele prolapse repairs twice also a sacralcolpopexy 33months ago.Ive been in discomfort more often than not and after seeing my consultant I now have the bowel wall down again.I am dreadfully uncomfortable and only existing rather than living as movement is horrible.Im on my 4th consultant as no one seems to now how to help me as my tissue is weak and so they wont hold anything up,my new consultant is reluctant to do surgery also and she is supossedly one of the top specialist in the country,she said it would be the absolute last resort and would rather I try to manage but it is getting unbearable and I dont Know were to go for help should I insist on surgery I just dont know what to do ,I feel I cant live like this anymore its been 5 long years of misery Im 64 and life is just passing me by ,Jinty xx

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    Hi Jinty. I had hysterectomy and anterior repair Oct 14. Within 4 months prolapse was back anterior and posterior. I have a gellhorn pessary now as my surgeon in Liverpool said only option was a full mesh repair and she said that would be a last resort.

    The gellhorn helps but I still have discomfort If I stand too long or walk too far. I take 2 movicol each day to keep stools soft.

    I am 57, can't have intercourse as I can't easily take the gellhorn pessary

    surgeon was off sick for months so not seen her since Feb 2015. Seeing her again this week for a review.

    I know how you feel about life being hard. By body really limits me at times and not being able to exercise much means weight gain which I know does not help.

    considering asking about the op which closes vagina completely!

    Where are you based?

    Blessings Ruth

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    • Posted

      Hi Ruth,

      You are so right about ' body limits' you and 'not being able to exercise much means weight gain' .

      After A&P 4 months ago finding it really difficult to keep my weight down and loose the weight gained during recovery.

      Managing to cover my 2x contract shifts every week but if I overdo things I have to spend a couple of days recovering again. Trying very hard to be ever so careful this time.

      Still have dependant 13 year old at home and really feel for her as this is 2 nd recovery from repair surgery over last 3+ years and I not as able to fully participate in family outing as I was able in past with older children.

      Anyhow feeling very positive about longterm outcomes this time as being extra careful and employer has been exceptionally good this time. On Sunday have long shift on feet (5 hours ) and this week couldn't get me a seat at till until last hour, so they got me a chair from cafe to sit at self's can area. That made such a difference thus week as was able to have a seat when not so busy and really made a difference. So grateful that they are looking after me as I really don't want to gave to go through this again and not easy protecting repair at work !

      Having op that closes off vag.. completely sounds pretty drastic, but if that gives you back quality of life I would think it would be worth it; didn't think they done this as long as still married/ living with partner?

      Anyway do hope you find a solution that is acceptable, take care.

      Phyllis x???

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  • Posted

    Hi Jillian ,

    I have empathy for you and understand exactly what you mean by ' only existing rather than living' ; i've had hysterectomy with anterior repair 3 years ago and had a wait of just less than a year from GP referal to surgery. Knew very little and was really scared when I looked online.

    Eventually my repair failed and 4 months ago had anterior repair redone along with a posterior repair. Having access to this forum this time has kept me in check during my recovery and I am now back at work and doing exceptionally well (fingers crossed and long may that continue). So much more aware this time that I must always be so careful not to overdo things.

    I will not be able to retire until 66/67 so hoping thsee repairs will last.

    Can I just ask was your repairs done by a urogyneacologist and what kind of work are you employed in/ or are you retired? I think that all these things can have a profound affect on the longterm outcomes?

    I do sincerely hope that you find a much more successful long term outcome Which allows you a better quality of life, these ops are only meant to be done by specialised urogyneacologist and along with nes techniques are increasingly meant to be far more successful.

    Lots of lovely ladies on thus site that I hope may be able to give you lots of advise and support.

    Take care,

    Phyllis x???

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  • Posted

    Thanks for replies ,yes my repairs were done here in UK by a urogyny and I am retired,had  to give up work at 59 because of prolapses,cant see a way forward for me    at   the moment.Jinty
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    My goodness ladies, I'm reading the post and threads with a heavy heart. I am 28 years old and have 5 operations and still no further forward. In fact, I'm in a worse state now physically and emotionally. My first operation was the mesh, but it is now banned in Scotland. I have also been told that my tissues are very weak. However, I had exploratory surgery when I changed consultants/countries. I live in Scotland and now attend UCLH. I totally empathise with you discomfort and pain. I find it so draining. As it stands today, no future surgery is on the cards for me as they don't know what to do next. Discussions have started however regarding a ring pessary. It is something I'm very unsure about and is already putting me under more worry. The "what ifs" just continue. I have a lovely boyfriend, but I put a lot of pressure on myself surrounding the relationship as I feel I'm still very young and in my head I'm weird! I also have Rokitansky syndrome, which makes the surgery more tricky. Let's just say I don't feel overly feminine!

    If anyone wants to discuss anything/in more depth, feel free to contact.

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