Anyone with MS have the "marching ants" and what do you do?
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I have had MS for over ten years and manage pretty well. Once in a while I get the Marching Ants where you get tingles all over your body face etc. I am probably having a small flare up and don't think it warrants steriods, yet.
Anyone else with MS have them and did anything work to make them stop? It is driving me bonkers!
0 likes, 15 replies
jaime_00003 Treeinwind
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wendy80842 jaime_00003
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jaime_00003 Treeinwind
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wendy80842 jaime_00003
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BobJS Treeinwind
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jaime_00003 Treeinwind
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Yes, your back pain is real, mainly muscular cause by your MS which is not under control.
wendy80842 jaime_00003
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jaime_00003 Treeinwind
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BobJS Treeinwind
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cath40t Treeinwind
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I've been taking vitamin d3....GP recommended it. I don't usually do what she tellsme but this time I did. Seems to work in reducing the severity and frequency. When it does happen I also try to relax and not "panic" about it. It does pass sometimes quicker than others.
I am not on any medication as yet though have been playing around with my diet/lifestyle and gettin ok results from going wheat free and dairy free and taking coenzyme q10 and other supplements.
My symptoms have improved a great deal since starting this. 3 months ago I couldn't walk down or up the stairs without holding on. This situation had gotten progressively worse over the past 2 year awaiting diagnosis. I can now on the vast majority of days walk unaided up and down stairs and when out and about I don't feel like I am going to fall over and have tingling up and down my legs. I know every one is different and react differently. I was very sceptical about trying this regime.....but thought it was worth a try as my quality of life was deteriorating.
Good luck
nadine71610 cath40t
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I'm a petrified possibly soon to be diagnosed sufferer.
9 years ago after 10 years of migraine with Aura then tics and pains all over my body I was wrongly diagnosed by my GP with MS. I was referred to a specialist who said I didn't have it only migraine with Aura. Appalled by my GP I went back to him. He still swore 'adamantly' that I had it. Needless to say I changed Doctors. 9 years on I now suffer regular numbness in my head and face. I have trigeminal neuralgia. Tics. I lose my eyesight through blureness regularly. I tremor and have involuntary movements all around my body. My bones or muscles feel ice cold yet hot externally. I struggle to get up the stairs. I have tinnitus. My face arms and legs feel like they're breaking at times and my fatigue is destroying me. The doctor put me on Amitriptyline. I had a dreadful reaction. My bloods are normal. Ct Scan normal. A few times a week my face drops down one side I have a metallic taste in my mouth and I feel like I'm getting worse by the day. I'm really really scared. I'm pushing my partner away and we have children because I'm so worried. I run a beauty business and I'm also a musician in Europe so I travel a lot. I don't know who else to speak too although I have many good friends they're all in denial yet my partner is convinced I have MS. I don't know what to do. I have a doctor's appointment in the morning. I'm frightened it's going to be a wasted journey.
sorry it's late and I wish you well.
Nadine
PaineFury nadine71610
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babykissy23 nadine71610
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wendy80842 Treeinwind
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as for the crawling ants symptom, the only thing that has alleviated mine is to wear close fitting. but not tight clothing, this seems to cause some kind of interuption of the sensation. sorry, but we're all very different when it comes to MS, the range of possible symptoms and sensations is huge and very much down to individual experience. sadly there is currently no cure-all for MS, but new meds are being developed,
BobJS Treeinwind
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