Anyone with MS have the "marching ants" and what do you do?

Posted , 7 users are following.

I have had MS for over ten years and manage pretty well.  Once in a while I get the Marching Ants where you get tingles all over your body face etc.  I am probably having a small flare up and don't think it warrants steriods, yet.

Anyone else with MS have them and did anything work to make them stop?  It is driving me bonkers!

 

0 likes, 15 replies

15 Replies

  • Posted

    Very high dosages of vitamin D will stop you MS attack dramatically  6000 iu's of vitamin D daily until your vitamin D levels become optimal.  This can take a few months but you should feel a difference within 2 weeks.
    • Posted

      the NHS's official position is that NO evidence currently exists to support this. without a blood test and a doctor advising the use of high dosage vit D, it shouldn't be taken at high doses, it's possible to overdose! look up 'Hypervitaminosis D'...
  • Posted

    ...  I can't stress enough to all MS suferers.  Vitamin D can control your MS attack.  I don't know where I would be with Vitamin D, as I am not able to go on any MS drugs , including steroids, due to very bad side effects.
    • Posted

      the NHS's official position is that NO evidence currently exists to support this. without a blood test and a doctor advising the use of high dosage vit D, it shouldn't be taken at high doses, it's possible to overdose! look up 'Hypervitaminosis D'...
  • Posted

    Before I was diagnosed (1993) my legs went totally numb and I always felt my sheets had ants in them. I had to peel the sheets back to verify there were no bugs in my bed. I also always heard water running like someone left a faucet running. One time my wife left the water on but I thought it was in my head so I ignored it. I went to work and had a flood in the front yard. Oh well. In 2000 I developed optic neuritis and went to the doctor this time. The Optomitrist diagnosed me with MS and sent me to a neurologist. It took 8 years to find out. Sometimes I have a hair on my face that will never leave. It will bug me for days until it just stops. After being diagnosed I noticed my calves had tremors. Little tiny cramps is the best way to explain it. It made the sheets move against my skin making the ant feelings I had. Now I have back pain so bad I can barely function. Most of my leasions are in my spine but is my back pain real or not? I don't know for sure but it sure will stop me. I take a lot of tylonal.
  • Posted

    ...  My question to you is, have you taken my advice and gone on a high dosage of vitamin D as I have already mentioned ? ...  High dosage vitamin D really works !

    Yes, your back pain is real, mainly muscular cause by your MS which is not under control.

    • Posted

      the NHS's official position is that NO evidence currently exists to support this. without a blood test and a doctor advising the use of high dosage vit D, it shouldn't be taken at high doses, it's possible to overdose! look up 'Hypervitaminosis D'...
  • Posted

    ...  and also, the pain is also due to the lession in your brain which are interupting the signals to specific parts of your body through the nervous system.
  • Posted

    I've been on D and B for a long while.  Sometimes in shot form.  I take enough shots as it is so I am not too interested in shots anymore.  I am hoping for a mylon repair drug.  I am tired of preventive medicine and not get better medicine.  I am getting worse so that's not better.  Time is not on my side.  I don't necessarily have attacts anymore I have developed into secondary progressive.
  • Posted

    I was recently diagnosed and one of the annoying symptoms is "marching ants" among other things (ms hug, tingles up and down back.)

    I've been taking vitamin d3....GP recommended it. I don't usually do what she tellsme but this time I did. Seems to work in reducing the severity and frequency. When it does happen I also try to relax and not "panic" about it. It does pass sometimes quicker than others. 

    I am not on any medication as yet though have been playing around with my diet/lifestyle and gettin ok results from going wheat free and dairy free and taking coenzyme q10 and other supplements.

    My symptoms have improved a great deal since starting this.  3 months ago I couldn't walk down or up the stairs without holding on. This situation had gotten progressively worse over the past 2 year awaiting diagnosis. I can now on the vast majority of days walk unaided up and down stairs and when out and about I don't feel like I am going to fall over and have tingling up and down my legs. I know every one is different and react differently. I was very sceptical about trying this regime.....but thought it was worth a try as my quality of life was deteriorating. 

    Good luck

    • Posted

      Let me start by saying. I feel for you Cath.

      I'm a petrified possibly soon to be diagnosed sufferer.

      9 years ago after 10 years of migraine with Aura then tics and pains all over my body I was wrongly diagnosed by my GP with MS. I was referred to a specialist who said I didn't have it only migraine with Aura. Appalled by my GP I went back to him. He still swore 'adamantly' that I had it. Needless to say I changed Doctors. 9 years on I now suffer regular numbness in my head and face. I have trigeminal neuralgia. Tics. I lose my eyesight through blureness regularly. I tremor and have involuntary movements all around my body. My bones or muscles feel ice cold yet hot externally. I struggle to get up the stairs. I have tinnitus. My face arms and legs feel like they're breaking at times and my fatigue is destroying me. The doctor put me on Amitriptyline. I had a dreadful reaction. My bloods are normal. Ct Scan normal. A few times a week my face drops down one side I have a metallic taste in my mouth and I feel like I'm getting worse by the day. I'm really really scared. I'm pushing my partner away and we have children because I'm so worried. I run a beauty business and I'm also a musician in Europe so I travel a lot. I don't know who else to speak too although I have many good friends they're all in denial yet my partner is convinced I have MS. I don't know what to do. I have a doctor's appointment in the morning. I'm frightened it's going to be a wasted journey.

      sorry it's late and I wish you well.

      Nadine smile

    • Posted

      If your MRI and lumbar puncture were both clear you might want to consider Lyme Disease, especially if you've travelled. The forum for it here can be really helpful
    • Posted

      Did you ever find out what was wrong? If not, please ask to get tested for myasthenia gravis. Everything you describe sounds like what happened with my sister. The condition is sometimes mistaken for ms. Good luck :-)
  • Posted

    i have MS, i was diagnosed in 2004. the tools used to diagnose MS are physical examination, MRI and lumbar puncture (LP). an optometrist or GP can suspect MS, they CAN'T diagnose it, you need a NEUROLOGIST for a diagnosis. do NOT take vitamin D without being told to do so by your GP, who should be testing your blood first, it is possible to overdose on the stuff. even if you can take vitamin D, the effects will almost certainly be very limited. 

    as for the crawling ants symptom, the only thing that has alleviated mine is to wear close fitting. but not tight clothing, this seems to cause some kind of interuption of the sensation. sorry, but  we're all very different when it comes to MS, the range of possible symptoms and sensations is huge and very much down to individual experience. sadly there is currently no cure-all for MS, but new meds are being developed, 

  • Posted

    [color=#333333]Actually, the legs feeling dies out as the numbness takes over.  I use to get out of bed just to check there were no ants.  That was when I could exercise.  I can't run now so I ride my recumbent 3 miles or so every other day.  I think running actually causes the dime size muscle spasm that make you feel like ants.  Check out you calf muscles when it's happening and you will see it happen.[/color]

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