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I have been battling my GPs for a couple of years now to recognise that my symptoms pointed to an inflammatory condition and they weren't all just down to osteoarthritis and obesity... especially since Prednisolone that was prescribed for a chest infection gave me such significant pain relief as a "side effect"!! Nothing ever showed in my bloods and I was told I had Fibromyalgia.
Until Friday! Apparently my anti CCP, which should be around 20 was 900+!!! I feel vindicated and justified, but also pretty worried. GP has referred me to rheumatologist urgently and prescribed 10mg Prednisolone for now. I have most of the symptoms of RA, but also some of Lupus. Has anybody else ever had such a high result, and what was the outcome? I know we can't second guess but it would be good to know that maybe it's not so bad as I'm now fearing. 😔
I'm also wondering whether to pay for a private consultation with a rheumatologist who also works for my local Health Board, as I've been led to understand there may be a two-month wait. Has anybody taken this route and is it worth it, do they then keep you on their list but under NHS terms, or could I be assigned a different rheumatologist by the NHS eventually? I have found one online that I would like to see and am happy to pay for one consultation, possibly two, but no more. Would welcome any advice about this too.
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