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Balance issues due to inner ear problems

Posted , 9 users are following.

Guest
Guest

As a general observation, why is it, when there are so many people affected by this horrible condition, and there is a plethora of information on websites, GPs and even ENT consultants apppear either ignorant of the symptoms or at a loss of what to communicate to the patient. ?

1 like, 12 replies

12 Replies

  • Helianthus
    Helianthus Guest

    Posted

    It's baffling. In my experience the  GPs appear to know very little about illness. Some look it up on this website. Let's try and educate them!
  • jan1958
    jan1958 Guest

    Posted

    It seems to be the case every time! Its true GPs seem to have no idea just refer on. Mine was totally useless apart from signing the sick note week after week. My ENT consulant again had no idea. I presented him with my neuro-otologist report and explained I had to seek my own help as I was despirate and getting nowhere, he certainly looked a bit sheepish!
  • kellie12337
    kellie12337 Guest

    Posted

    It's because there are so many reasons for dizziness. I just don't think doctors know what's going on. I believe they aren't are rushed to get it diagnosed because they haven't been in our shoes and haven't felt the pain and discomfort of this. Alot of the times it goes away on its own and I think doctors think if they wait it will. Waiting actually makes it harder to recover. The faster they find out what is wrong the easier it is to fix. It takes lots of tests to figure out the exact cause of dizziness and even then its not a positive diagnosis. They can't test for an exact disease of the vestibular nerve they can just see its not working correctly and guess.
  • alison17886
    alison17886 Guest

    Posted

    they dont seem to understand what we the sufferers are going through it is a hell of a thing i come close to ending it all and they put me on anti depressants done the diziness no good at all
  • alison17886
    alison17886 Guest

    Posted

    they dont seem to understand what we the sufferers are going through it is a hell of a thing i come close to ending it all and they put me on anti depressants done the diziness no good at all
    • paula59
      paula59 alison17886

      Posted

      Hi again, Im on anti depressants and Ive found they have helped as theyve made me calmer but the main reason Ive not been anxious is because I finally got a diagnosis.  I couldnt believe that pain in your cheek, jaw, sinuses, pains and needles on top of head, jumpy eyes, pain in back of head, eyes feel like they are being pulled out, headaches, and occasionally classic migraine, could all be silent migraine.  I thought I had MS or a brain tumour at the least.  However, we all do seem to have the exact same symptoms and its for that reason that I believe the diagnosis of silent migraine is correct.  Its true GPs and ENTs have absolutely no idea what it is and as its so common, why is this the case.  Its disgusting.  I was told I had anxiety by my idiot GP for months.  Needless to say he nearly pushed me over the top too.  If you feel like that again, ring the samaritans.  Dont suffer on your own.  Much love. Paula
    • arria
      arria paula59

      Posted

      Hi Paula, could you give us more info on article 'article on the MAV facebook website' enuf to google it. Patients is so stingy about links.

      Many thx.  Dig dig dig!

    • marie43202
      marie43202 alison17886

      Posted

      Hang in there Alison, I get what u r feeling too. I have lost my job, lost my licence to drive, can't walk far, rarely step out in fear of an attack which has now led to panic when I do step out for appointments. I have to depend on someone else to do my groceries, missed events for my children, the list goes on...and to have a specialist say to me, "oh, I don't think ur that bad to see chronic pain specialist?", I didn't know what to say to him, other than ...  I'd like to see how he would react in my position.

      Yup, this sucks big time and I am reading these posts carefully to see patterns. We have to be our own doctors. 

      Alison, when u r feeling down, contact any one of us for support. This is a great support group. Please take care smile

    • paula59
      paula59 tasha25575

      Posted

      Hi Tasha, Ive tried about 7 different meds over the past three years and nothing works for me or I couldnt tolerate it.  So I dont take anything now.  I make sure I get enough sleep every night by taking a zolpidem otherwise I wouldnt sleep at all.  I try and go to bed at the same time and wake up at the same time.  I dont let myself give in to it and make sure I keep busy.  I noticed that the days I gave up and went back to bed were worse.  Keeping going seems to help in the long term healing process.  At first I couldnt go out and then I started going out for an hour and increased it, now I can manage all day and still go to work part time.  The more I do, the more I seem to be able to do. My triggers are fluorescent lights and PCs so sometimes I have to leave a shop instantly before Im sick and Im in bad pain.  Eat a little and often and dont get stressed (ha ha).  But social life was latin and ballroom dancing and I cant do that anymore which breaks my heart.  Just have to adapt to live without it. 
    • tasha25575
      tasha25575 paula59

      Posted

      Thanks for your reply! I really think I have possible silent migraines. I take advil and it seems to help some which tells me this is caused by some immflamation. R u dizzy daily??
  • paula59
    paula59 Guest

    Posted

    Hi Peter, I shared an article on the MAV facebook website about it to try to educate my family and friends but I dont know how many of them would have bothered to read it.  If you dont have it, I dont think you are interested.  Im thinking of complaining about my GP as his attitude was so bad over this, he pushed me too far that I ended up on anti depressants prescribed by a different GP to help me calm down as I was so lost with it all.  Its the scariest thing Ive ever had.
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