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Bleeding

Posted , 4 users are following.

debi00947
debi00947

I was diognosed with Divericular Disease about 2 years ago, I haven't really had that much problem apart from moving my bowels about 10 times a day, but on Sunday I had 7 bowel movements and the bowl was covered in blood! On Monday the same happened so called my GP. She said I had an infection and put me on a dose of Metronidazole and Cefalexin. Tuesday evening I was passing clots so rang 111 and they suggested I go to A&E! 5 hours later I was sent home to start my antibiotics but I'm still bleeding and want to know if this has happened to anyone else? It's scary every bowel movement passing pure blood! Pls help as I've researched and can't find anything on how much is normal! 

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  • angelina1956
    angelina1956 debi00947

    Posted

    I have not experienced this only experience back up, constipation and a bit of pain. When I use the bathroom and I do try and go it hurts but again the doctor said to continue on the medicine yuck it's horrible. When I do take it I feel much worse with stomach upsets and a bit of cramping I'm starting to think maybe I should continue with my liquids and take stool softeners cause the medicine is horrible. But I think in your situation I would go back and maybe being admitted would be better as they can get to the bottom of this
    • debi00947
      debi00947 angelina1956

      Posted

      They have booked me in for a colonoscopy in 6/8 weeks which I think is a long time to wait! I just don't think bleeding at every bowel movement is normal and I have no pain at all! Especially as I go 10 times a day! Hope your feeling better soon x
    • angelina1956
      angelina1956 debi00947

      Posted

      Yes I agree that is a very long time to wait. My docto has asked me if I have bleeding but I don't the issue is I can't go especially if your not allowed to consume ant foods. So I am struggling and hope that I get better soon. I know and understand it's a process and everyone is different but I'm so stressed out, not to mention my anxiety is kicking in and that both does not help. I will go to work today in hopes that I don't get worse. But thank you so much for your caring, and I too hope that everything goes well for you and soon
  • eribaeve
    eribaeve debi00947

    Posted

    I had a very similar experience to you, weeks is diarrhoea which contained more and more blood. A colonoscopy after 8 weeks showed diverticulitis patches. A tibiotics seemed to make it worse, so much so that I couldn't complete the course. My GP was better than the specialist and recommended a Calprotectin test (faecal test) which showed I had off the scale levels of inflammation indicating Colitis. She prescribed steroids for 5 days which completely stopped it and referred me to a physician. Since then I have been on Asacol , an anti inflammatory drug which has stabilised things. I have occasional bad days which I think are more to do with diverticular disease rather than the colitis. I think you need to go back to your doctor and ask for a urgent referral or turn up at hospital yourself. It seems you have to be more demanding these days, not the fault of the doctors but more the pressure they are under. Value yourself or you may be overlooked.

     

    • debi00947
      debi00947 eribaeve

      Posted

      As I've only been bleeding since Sunday do you think I should see how the antibiotics work this week? I'm not sure what to do but am really scared that there might me something more than diverticulitis! Did you bleed at every bowel movement? 
  • eribaeve
    eribaeve debi00947

    Posted

    Yes I did, it seemed like an awful lot to me. I went on antibiotics and it got worse for about 4 days then I got frightened and got an urgent appt with my GP . I'm not sure if it was a reaction to the antibiotics but he stopped them straight away. If you can't get to see your GP before the weekend, I would get up to A&E and tell your doctor that is what you are going to do. You have to be assertive these days, not cheeky, just persistent. Doctors don't like patients under their care bypassing them so will probably take it more seriously. I was a nurse for 40 years so don't hold them in awe. Let us know how you get on. I have been there. I know you can have bleeding with Diverticulitis alone but mine was due to ulcerative colitis on top of Diverticulitis and a blood test and Calprotectin test confirmed it.
  • eribaeve
    eribaeve debi00947

    Posted

    I also suffered from frequent loose stools for about 8 months before it got really bad with blood etc. I can't prove it but I think it triggered the Ulcerative 

    colitis and the fact that it stopped immediately I got 5 days of steroids confirmed it for my GP. Everyone is different though, but you should not be put off seeking help. Eve

    • debi00947
      debi00947 eribaeve

      Posted

      This sounds so like me! And thank you for getting back to me Eve! I'm going to see how I am the next 2 days and then contact my GP and get some answers! It's not right I should be bleeding this much! Really nice to know someone else has been there and I do hope you are coping better now xTC and I'll let you know how I get on! Thank you once again 
  • Fluffe
    Fluffe debi00947

    Posted

    Hi.. I got that with Pred Foam.  In fact since the food poisoning I got in May 2015 - it's been nearly almost constant bleeding.  I've got DD and colitis (triggered by the food poisoning) along with IBS.  I had the antibiotics after an A&E visit and now on the steriods which has been just about a week and a half.. some movements are good - some are mush and some is just plain like having a period out the wrong end and the niggle pains are still there but no gasping for air (which is apparently my way of dealing with pain so they say) - though I'm thankful I'm under the ten times a day now. I reacted badly to Octassa and the pentasa was just a bandaid stopping it from getting worse.  The GI nurse (who acts like she's some sort of doctor talking at me like I'm two years old has royally peed me off)... I had the calprotecticn test back in October 2015 when I was on both those drugs at the same time and the results were off the scale too but she did nothing and wouldn't even give me an appointment with the specialist.   I too don't have an answer either about what it too much or too many times.  After a visit to the A&E - the ball is finally moving in the right direction and I fell like I'm getting somewhere... I see my specialist next week.
    • debi00947
      debi00947 Fluffe

      Posted

      God you sound like you've been in a bad way for a while! I'm not sure what octassa, pentasa and the calprotectin test are can you enlighten me pls! I'm still bleeding but bowel movements are not as bad today x
    • Fluffe
      Fluffe debi00947

      Posted

      Calprotectin is a stool (fecal) test that is used to detect inflammation in the intestines. Intestinal inflammation is associated with, for example, some bacterial infections and, in people with inflammatory bowel disease (IBD), it is associated with disease activity and severity.  Mine was apparently 4800 when I was taking the Octassa by mouth and Pentasa suppositories.  I was so bad with it, I actually passed out on the train and was getting no change out of that IBD nurse.. grrr.. a waste of space comes to mind!!!!! I tell her about my eye problem to pass on to the doctor and she tells me it’s unrelated - but it too is idiopathic and as I understand eyes are connected to IBD.  (This is the one who just told me to pass wind and not worry... I said to my hubby.. so she’s on call to wipe up the mess!  - sorry... the woman has just irked me to no ends!)  I just want her to pass on the information to the doctor before the appointment as I want nothing to do with her and will be asking if he got the message when I see him. What I’ve found it that this nurse wants to treat everything as being separate and apart from each other rather than taking the whole picture into account and any possible relationships because it’s easier for her and ummm... dare I say - she’s talking out of her butt!!!!!  Sorry... I’ve really gone on haven’t I! I’m now off my big ole soap box... albeit feeling better in the sense that I’ve unloaded a bit!cheesygrin

      The Octasa and Pentasa is from mesalazine family.  There’s something on it on this forum.  It’s https://patient.info/medicine/mesalazine and is used to treat IBD. I seemed to manage to tolerate pentasa more so than Octasa though the pentasa never actually worked – just kept ‘the black knight at bay’ for months and months (too much Family Guy!).  What I have been able to decipher is that it is sometimes also used for diverticular disease as well or they’re studying it and its uses for it.

      I find it’s in the evening when it’s the worst or when I get up.  There are times I swear I could power a small country with the gas and the colour does change from pinky to red with clots or none at all and then wham... back again and the consistency is still changing.. not sure when the predlisone will kick in as I’m on 40 mgs and have been for 9 days.   During the day it’s not too bad though I am having a niggly moment now right in the same place.. though no gasping... at least that’s a good thing! 

    • debi00947
      debi00947 Fluffe

      Posted

      Wow! She sounds a nice caring nurse doesn't she lol X I've had no tests or anything just told to go on the antibiotics for a week! Maybe because I'm not in any pain.... Yet! Hope you get to the 'bottom' of it soon! I'll keep you posted if things change but today I've had a clear bowel movement!! Yippee! 
    • Fluffe
      Fluffe debi00947

      Posted

      Teeheee! Needless to say she's not on my Christmas card list! Grin!  Actually I think it's a case that she goes off with a case of the mouth runs! Yes please.. let's stay in touch!... If it continues for you - which I so so  hope not, it may be worth a referral to see if nothing else is going on if you've not had one or possibly having the GP arrange a CT scan (really weird - like the sound of a roaring dishwasher above you... and you don't swing in and out like a carnival ride) or if your GP will do one of those calprotectin tests as it's supposed to be helpful in determining inflamation.  I must admit I was scared having the scopes done (one in August last year which did put me to tears and one Monday last - but lots of good sedatives like this last one and it's a breeze!!!) It's only when I had to go to A&E and brought my none to happy hubby with me did it start moving forward!smile
    • Fluffe
      Fluffe debi00947

      Posted

      Doh... reading it.. I meant to say if the bleeding continues... which I soooo sooo hope not!!!!
    • debi00947
      debi00947 Fluffe

      Posted

      I got you lol X yes after the weekend if things haven't changed I'll go back to my GP and ask her to refer me for more test! I won't leave it which is a first for me as I have a phobia of Men in white coats lol unless they are good looking! 😜😜 but then again having a good looking doctor checking out your backside isn't nice haha X 
    • Fluffe
      Fluffe debi00947

      Posted

      Hahaha too funny!!!! cheesygrin One thing.. if it's like our hospital.. the department has a habit of not sending out paper appointments i.e. if you're on a two week referral say for a colonoscopy from your doctors and  if you don't hear anything after a couple/few of days in the way of a telephone call or what not, call the hospital just to double check (I think they changed their policy to phone first before making an appointment) - they managed to lose my referral and it was only a week later did I think hey... where's the appointment...called them to find out they'd lost it and well..... but yes.. it's always good to know.  This all started for me as a result of having to take strong antibiotics for an infection and getting food poisoning not long after and sitting on my laurels thinking it was gonna go away and not being pushy enough when it all started!!! The DD was just a nice added touch! 
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