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body not working

Posted , 6 users are following.

cherl450
cherl450

hiya guys sorry havent beenin touch for a while but i have now moved out of my house into a bunglow well things have not been good as my brain fog been terrible can remember what i did last year but not last week it feels like i have bugs running up arms and legs and my legs still giving onme my balance is terrible and yes my ears are fine my arms are bad cant lift them up to reach because of pain my hands dont work cant grip cups and that have row like fingers and feel so much pain that my gp has not put me on morphine tablets as well as everything else so really not good at moment the other night i said to hubby i just wish i could go sleep for more than and hour and sometimes i wish they out me down im suffreing with terrible bladder problems when i lie down i go toilet every ten minutes my hubby counted that one night i went toilet 22 times and hes diabetic and nevr goes that much i have been checked for diabetics and its all clear so life is hard i can no longer walk without aids and just so tired but hey ho thats life on top of that i have arthritis and heart diease and c.o.p.d and im only 52 i just wish i could take only one pill which would hep me and 1 pain killer that would work have triend herbal stuff maganiusum stuff and heat pads and that but getting no where my gp rekons its not fibro its ms and that someone has missed something or its fibro and something else me i just dont know any more wishing you all well love always cherl

1 like, 15 replies

15 Replies

  • christine26761
    christine26761 cherl450

    Posted

    Poor you Cherl, really feeling for you..it must be just awful not really knowing what the issue really is...with Fibro having sooo many symptoms like other illnesses...very gentle hugs from down under...could you maybe ask for a referral to a consultant familiar with autoimmune  issues...usually aRhumatologist  diagnoses Fibro..well has for most of us on here...you would have already seen one I recon...but a consultant that only diagnoses autoimmune issues should be good???    keep on talking to us on here..we really do care..we live it with you Cherl-some not as bad as others at the moment,,...hope you feel much brighter and better really soon...have a lovely day...be blessed.,:-) xxx
    • cherl450
      cherl450 christine26761

      Posted

      hiya hun was diagnosed by my remotologist but they couldnt do all the tests like mri as i couldnt cope with machine so their using old scans which isnt right as they were from years agao when i was well but ill keep plodding on xxxx 
  • shirl21730
    shirl21730 cherl450

    Posted

    Hi cherl really sorry to hear your going through a bad time...have you been tested for a kidney infection I once had this when I needed to empty bladder lots...I have had fibro for 20 years the pain does tend to move around a lot...once I went to my gp because of shakes in my right arm I was told it was repetitive strain in my hand because I wasn't using a mouse mat at the computer and it was caused by pressure on my hand he also told me if the shakes continued I should go back as it could progress into ME i bought a mouse mat and spent less time on the computer and the shakes stopped I hope you get sorted soon...gentle hugs...take care

    Shirl 

    • cherl450
      cherl450 shirl21730

      Posted

      yes been tested for kidney problems but camebacknegative also saw bladder specalist but same their but many thanks hun ill just plod on as i know people suffer alot worse than me butmy pain hasnt let up for 6 months now and legs and arms are the worse and that bu as they say its just fibro get on with it but id love to see people cope with what we have to and then let them say its just fibro
  • HOTpicks99
    HOTpicks99 cherl450

    Posted

    Sorry to hear you havent been good fibro does have a lot to answer to itsterrible hope u can help to look after you apart from your hubby fibro should be classed as a disablity at least you would have spme sort of help keep going dont let it take over love and hugsx
  • caroline271
    caroline271 cherl450

    Posted

    Hi, chronic bladder infections often come back negative. Often passing urine many times a day in the absence of infection is classed as an overactive bladder. There is also something called interstitial cystitis, are treatments available for an overactive bladder including tablets and Botox. Have you had a cystoscopy and a test gfor bladder capacity ? Sometimes tho this may not actually show anything espwcially with fibromyalgia.

    Caroline.

    • cherl450
      cherl450 caroline271

      Posted

      hiya their yes hun have had this done and other tests done do not show anything at all hun but told im boredline  ms and fibro so hes diagnosed fibro for now going to have more tests done including lumber punture
  • Meg53
    Meg53 cherl450

    Posted

    Oh Cherl what a horrible time you are having, it sounds like you are having a particular awful time. Do you get back pain, I find that when my lower back hurts I get frequency of need to go toilet. My cure is to sit with a heat pack at my back and loosen up the muscles, it takes several applications. I find  sitting too much causes problems, so I try to lie down or stand. When I am at the computer, I either sit with a heat pack, at my back or on a Swiss ball which loosens up the muscles in my lower back.

    Caffeine can also be a problem causing frequency of urination, so in my case I have cut out most caffeinated beverages, tea, coffee and cola drinks. I can get away with one cup of coffee in the morning, there are limits to what                I am prepared to give up. Mostly I drink herbal tea or water. Cutting out caffeine, including chocolate, sigh...... Has additional benefit of meaning you get a better sleep. Restricting your fluid intake a couple of hours before bed is also a good idea.

    Have you been checked for carpal tunnel, that could be part of your problem with your hands, don't know but worth a try.

    Hope these meandering ramblings are of some use, anyway we are all thinking of you.

    All the best

    Meg

     

    • cherl450
      cherl450 Meg53

      Posted

      Dear meg

      yet dont drink caffeine and dont having any drinks at all after8pm doctors say thou i have got to drink more as im dehdyating even thou i drink loads of water during day and i also have one milky drink at 8 then thats it but makes no diffrence and if im sitting up or standing i hardly go toilet at all but the minute i lie down its terrible i have been checked for carpan tunnel its knowt that and yes get major pain in lower spine but i have arthritis of the lower back so that doesnt help and i always use heat pads doesnt work, i havent had no sleep at all agin because of so much pain i try not to take the morphine but had to last night i was crying that musch all my pain seems to be centred round my muscles and last night i had arm spasms and head spasm and when your in alot of pain this doesnt help so at my wits end broke down again last night and told my hubby i have had enough now im so desparte for sleep ive tried taken sleepers that doc gave me didnt work i cant take amtripline as it makes my ibs play havoc so really dont know what to do but totally exchausted i try and keep busy during day ive just moved into lovely bunglow so im trying to get that sorted and make sure i take a gentle walk as far as i can each day but still no joy i cant sit for more than half an hour as i ger very uncomftable so i try to keep busy but with my falls and dropping things im a danger to my self all i would love is one day pain free and where i could go bed and sleep and not have to keep running to the toilet i have had all the checks on my bladder and specalist just rekons that i have a week bladder when lying flat and theirs nothing that can be done so really at wits end and now getting depression big time but thats hardly supprising if it wasnt for you guys on here i dontknow hat i would do but thanks hun peace and love xxx

       

    • cherl450
      cherl450

      Posted

      sorry meg for my bad spelling hands real painful
  • Meg53
    Meg53 cherl450

    Posted

    I am so sorry you are going through such a horrible time. Can you ask your GP for some medicine for an overactive bladder, as Caroline suggested. I sounds as though getting a good night sleep is a priority. I know how you feel when you go for too many nights without sleep, 'zombie like' and desperate.

    The only other thought I had was meditation, which helps state of mind and calms the body. Best best wishes and keep asking those doctors for help.

     Meg 

      🌺

     

    • cherl450
      cherl450 Meg53

      Posted

      when i went to see new doctshe put me on liquid morphine and said this will help me sleep when i meantione about my bladder she said their really isnt any thing they can give me because of all my other meds but she is sending me back to specalists as she wants a second opionon as she thinks i might have ms rather than fibro and she told me  when some doctorsarnt surethe diagnose fibro which is wrong they should check everything first soim being checked for ms again and also archonditis which is a muscle disorder but either way doesnt hep me does it i used to be a dance teacher years agao and photorgapher well cant do either anymore i cant even hold the smallest of cameras so it heartbreaking ifeel like im a total burden to my hubby
    • Meg53
      Meg53 cherl450

      Posted

      Cheryl it sounds like your doctor is doing everything they can. It is so hard when we think of our former lives and what we could do, and no longer can. My only way of coping is taking one day at a time and trying not to dwell on the past. If I am having a particular sore day, it becomes comes hour by hour.

      Hope they find out more about your condition and can help you more effectively.

      All the very best

      Meg

       🌺

    • cherl450
      cherl450 Meg53

      Posted

      hiya meg

      many thanks will keep you posted hun my love always

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