Botox for pbno my story

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Hello friends.

I had botox for my pbno , also injected in external sphincter a month ago...i pee better and sometimes i have no urge to pee at all, after i pee for like 20 min or more, but alot of times urge is still there sometimes with lower intensity other times same as before surgery.the urge is always urethral and sometimes also in bladder but rare.Is still feeling like a constant urethral urgent need to pee almost non stop, that sometimes is stronger or lower.Overall i can t say i am satisfied atm.I also did some dry needling for my pelvic floor dysfunction and results are decent ( only 2 sessions till now ),but i was sick and caughing all the time and that irritated my muscles again ...overall i can t say i recomend botox for Pbno , i wish i had a Bni , cause i will still have to do it prolly...

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  • Posted

    I have very similar symptoms. constant urge. I have a stricture which is 0.5cm away from my sphincter, so I assume it could be causing the symptoms by constantly pulling on my sphincter.

    are you sure you don't have stricture?

    and secondly bni is very risky, retrograde ejaculation is almost guaranteed. id look into optilume bladder neck procedure which is very new.

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    • Posted

      yes 100 % no stricutre , but pbno can have same symptoms as a stricure sadly.for sure after botox goes away i will search for a surgery but i am afraid in Romania i can t do a optilume 😦 100 % my symptoms are not only cause of bladder neck , also prostate that was inflamed(cause of bladder neck) and a pelvic dysfunction that almost all patient with obstruction a long road...but is amazing a simple stricture can give u my symptoms...i had a friend with stricture and he only had a weak stream 😦 prolly u are right , your stricture affecs your sphincter.U will do a surgery for it ?

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  • Edited

    Hello Valentin - good to hear from you friend

    I had Bladder neck incision operation 5 weeks ago.

    I was with catheter for 2 weeks after op to help bladder heal,

    so far there are great improvements in flow and volume of pee

    I am off medications (Mirabegron and Solifenacin) as urologist said to try life with no meds to begin with

    Frequency is still a concern but less than pre operation

    I have uro appointment on 19th April

    my thoughts are this

    give time for bladder to settle and heal for few more weeks

    if frequency is still issue then go back onto medication (Mirabegron and Solifenacin)

    if then after few more months no improvement then i will consider botox in bladder wall

    i'm hoping if i go back on medications my symptoms of frequency will be much better along with the opened bladder neck, the daily pain in penis is not so much than it was last year when my problems started

    I'm surprised for you the Botox did not have much effect, as i am reading in articles it is very effective for frequency?

    keep strong, and let me know if you have any questions, i will update you as i go along

    kind regards

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    • Edited

      Perhaps botox is not helping because it is nothing to do with over reactive bladder! My consultant wanted to put me on Selifenacin and suggested botox in the nearest future. I refused. I changed consultant/ done semen culture test and Stamey's test and bacteria was found. U would be surprise how many urologist consultants are out there who are useless.

      Anyway after receiving antibiogram we have chosen Ampicyllin as MIC is below 2000 units. Also Ampicyllin is relatively safe antibiotic (prescribe to pregnant women). Tomorrow is my last day of treatment ( total 25 days course through drip). All my symptoms are gone ! Pee frequency/ urgency to go to toilet/ burning sensation/ small red spots after ejaculation. I'm feeling like brand new. Consultant told me to wait 4 weeks and retest my semen/ prostate fluid to check if I'm cured. I will let you know. In my opinion there is good chance that you are misdiagnosed

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