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BPH - currently CIC STILL GET NATURAL URGE

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deb2792
deb2792

Hi to you all! I came accross the site by accident, but I am SO glad that I did. My husband has BPH and recently went in to acute bladder retention. In the last 2 months he has gone from being permenantly catheterised to self catheterising. But my question to you is that he maintains that he still gets the 'urge' to go, but that it passes within a few minutes. When this happens should he immediately go and empty his bladder with the catheter, or should he just ignore it - as it soon passes and go when his next CIC clock based is due. Any replies would be most appreciated!

0 likes, 19 replies

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  • 18R18
    18R18 deb2792

    Posted

    I don't know the answer to this question, but I do know that he should get a real treatment. He is risking an urinary infection and a bladder trabeculation.

    • deb2792
      deb2792 18R18

      Posted

      Hi 18R18. My husband got prostatitus at the beginning of July and was unable to pee at all. They kept him in A and E overnight and catheterised him, and since then we have been backwards and forwards to A and E virtually every day as the thing kept blocking. It was after several visits - each lasting several hours that me husband decided that he needed to learn to self catheterize - although he was not very keen at all! So since early July he has been anable to pee at all naturally. The hospital did try a couple of times to see if he could go if they removed the catheter - but he just kept drinking water and nothing happened only a lot of pain - so they re-catheterised him and sent us home. He says that when he gets the urge to go it is very strong but VERY shortlived - so by the time he gets to the bathroom, the urge has gone. We try every day to see if he can just do one or two drops naturally, but so far not a jot! I have very little faith in the urologist that we were under, as he was just hell bent on doing a prostate biopsy when PSA hit 5 and refused us a scan, unless we had a biopsy. But I thoght that a biopsy was too risky in terms of letting any possiblke cancer outside the prostate, but I might be wrong here? Our urologist almost insists that we have TURP - but I think that is because that is the only thing he is qualified to do. We are currently waiting to see a consultant wqho does urolift and HoLEP, but that is only on 2nd September - when he is back from holiday.

      ​xx

  • Greg123
    Greg123 deb2792

    Posted

    Hi Deb, I recently had PAE procedure, after which I had a foley catheter for about 2 weeks. Then after finding this site  and learning about self-catheterization, I gave that a try. 

     Having the urge is a good thing! What I was told here is to always try to naturally void first, then CIC. This helps prevent a lazy bladder. Your husband should try that. Also it's a good idea to keep track of how much he voids naturally and with the catheter. He should try to empty out more frequently, to help his bladder recover. I hope this helps.

    • nealpros
      nealpros Greg123

      Posted

      Why did you have the catheter? It normally is not required for PAE.

      NEAL

    • Greg123
      Greg123 nealpros

      Posted

      Hi Neal,

      I had a Foley catheter because I was retaining so much urine. Right as the procedure was to start, they drained 2 liters out, and kept the Foley in. The Doctor told me I could remove it in a couple of days, but he was going out of town, and I felt more comfortable keeping it in until he returned.

    • nealpros
      nealpros Greg123

      Posted

      Okay. Thanks for the reply. It looks like it really had nothing to do with the PAE .

      Neal

    • Greg123
      Greg123 nealpros

      Posted

      You're right, but they still wanted me to start with an empty bladder. Ultrasound showed that I was full. The Foley was not fun at all.

    • Greg123
      Greg123

      Posted

      Hi Neal, my wife reminded my that the reason I had a Foley was because the Doctor knew I was having trouble voiding, and he expected that my prostate would become inflamed after the procedure, so he felt that was the best thing to do.
    • richard11472
      richard11472 Greg123

      Posted

      I am considering PAE or another new procedure, FLA, that I learned of on this site. It has been some time since you had the procedure and I wonder if you could describe your experience and recovery.
  • johnclen
    johnclen deb2792

    Posted

    Hi Deb,

    I have the same problem but my acute retention only happens from time to time. The rest of the time I can go normally (although with a slow stream). So I cartheterize myself only when needed. I suggest your husband catheterize when feeling the urge next time and record the output. That will give a good indication on whether he can just wait until the next scheduled voiding. Our need to void can depend on how much intake we have. But if the urge to void is very strong, I would not wait. Especially if he finds the output is high during those times. Say more than 300 ML. I'm not a doctor or health professional, for a better answer you can call his doctor. I hope this helps

    John

    • deb2792
      deb2792 johnclen

      Posted

      Hi John, thank you for replying to me! My husband got prostatitus at the beginning of July and was unable to pee at all. They kept him in A and E overnight and catheterised him, and since then we have been backwards and forwards to A and E virtually every day as the thing kept blocking. It was after several visits - each lasting several hours that me husband decided that he needed to learn to self catheterize - although he was not very keen at all! So since early July he has been anable to pee at all naturally. The hospital did try a couple of times to see if he could go if they removed the catheter - but he just kept drinking water and nothing happened only a lot of pain - so they re-catheterised him and sent us home. He says that when he gets the urge to go it is very strong but VERY shortlived - so by the time he gets to the bathroom, the urge has gone. We try every day to see if he can just do one or two drops naturally, but so far not a jot! I have very little faith in the urologist that we were under, as he was just hell bent on doing a prostate biopsy when PSA hit 5 and refused us a scan, unless we had a biopsy. But I thoght that a biopsy was too risky in terms of letting any possiblke cancer outside the prostate, but I might be wrong here? Our urologist almost insists that we have TURP - but I think that is because that is the only thing he is qualified to do. We are currently waiting to see a consultant wqho does urolift and HoLEP, but that is only on 2nd September - when he is back from holiday.?xx P.S. is 300ml a lot of urine? My husband seems to get the urge at about 150-200 ml - but in the early morning he has to get up around 5-6am to SIC where he voids approx 400-500ml. Once again thanks John for taking the time and trouble to reply to me. I can't wait for 2nd Sept!

    • Greg123
      Greg123 johnclen

      Posted

      Hi John,

      I tried your technique, but honestly there is really no way to know how much you're retaining. The only way I found out was by a an ultrasound. That showed that even though I had no urgency, I still had about 70% left in my bladder. I didn't feel uncomfortable at all.

      I don't understand why nobody (my doctors) suggested self catheterization. Is there a way for you to really know how much you're really retaining?

    • johnclen
      johnclen Greg123

      Posted

      Hi Greg,

      When I went for my ultra sound for urine retention, I drank so much water as to cause a bought of acute retention. I was unable to void  more than a few drops. So of course, the ultrasound showed I was retaining it all.

      So what I did was to urinate normally at home when not having an attack. Then I would insert a chatheter to see how much was left in my bladder after voiding. In my case, it was very little if any.

      Of course this would not work for Deb's husband who is unable to void at all without a catheter. In that case it would mean nothing.

      John

    • johnclen
      johnclen deb2792

      Posted

      Hi Deb,

      I find that when I have the normal urge to go, I will be at around 250 or 300. Occasionally 400. Your husband sounds pretty normal at 150 to 200 with 400 in the morning.

      Good luck with the visit on the 2nd.

      John

    • deb2792
      deb2792 johnclen

      Posted

      Hi John - what a relief! I am so glad that at the moment somethings sounds pretty normal x
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