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Epilepsy

Also known as Lamotrigine for Epilepsy, Phenytoin

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  • Anxiety or epilepsy?

    I have terrible health anxiety and posting this might make it 100x worse. I have been experiencing this weird sensation for 8 years now. It first started when I was playing laser tag at 3am hooped up on caffeine. All of a sudden I felt like I was in a dream and that came on as fast as a bolt of lightning....

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  • ESA and PIP Assessments

    The majority of daily paper's over the weekend had articles in them regarding the true cost's to the tax payer for the assessments and processing of claims for both ESA and PIP . The true cost's which the DWP was forced to release under a FREEDOM OF INFORMATION REQUEST from a parliamentary...

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  • Bad Acne because of epilepsy meds??

    Hi all!! I take Lacosamide & Pregabalin, for the last 12 months I have terrible acne on my face (particularly my jaw line and neck) The spots are like cysts and are very painful and very ugly!! As well as this I have gained a crazy amount of weight (3 stone in 3 months) I rarely go out now as I'm...

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  • My Stupid Poem to cheer us up xx

    I am seeing A Doc on Thursday to talk about my pills Am I taking too many?, and what if I get the chills... (well it ryhmed) I do hope you all feel well and seizure free for years to be Remember we are in this together like all of you and me ! Now I know they make us scared and we feel rather sh*tty...

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  • Very very very mild epilepsy at 67

    Hi chaps, during my continuing search for a name to put against my problems I came across a tenuous match with epilepsy but I have nothing compared to most people with the problem. I have had 3 unexplained blackouts over the past 5 years 2 during sleep 1 when awake, NO tongue biting twitching etc I just...

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  • Unusual Convulsions when relaxing

    Hello, I have been struggling to figure out a condition where my body convulses with the epicenter being the stomach and lower back when i try to relax. It prevents sleep. Have you ever comes across this condition? Thank You, 

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  • Tonic Epilepsy with Cardiac syncope?

    This is a long one, hope someone has come across it before. I started blacking out as a child, aged around 11 years old. Had various neurological investigations, EEG, CT, bloods, 24 hour ECG, 7 day ECG, can't remember the rest but nothing came up positive except an elevated bilirubin level. Eventually...

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  • DOCTORS LAUGHED AT ME

    IM ANXIOUS 24/7. hi guys im 21 years old i had epilepsy when i was 6 my doctors laught at me whenever i tell them about my disease hope someone can help me so whenever i hear sudden sounds or suddenly see someone i fall on ground like a tree and starts shaking for like 20 secs. so when i fall my...

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  • CLOBAZAM/Frisium

    I am doing a study for my own use on clobazam/frisium.  wondered if anyone had had any problems with it and if so what were they and how did you cope. Thank you

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  • CLOBAZAN

    I was wondering if anyone takes or has taken clobazam and if it affected them . Also how did you cope with this drug? Did anyone stop taking it and if so why and how did you taper off? Many thanks how if 

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  • Epilim300

    i have had tonic clinic seizures since I was 15 now in my 60s but am now experiencing really bad side effects: weakness, headaches, tremors, bruising, balance issues, just wondered if anyone has suffered the same thanks

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  • Lamotrigine (Lamictal) and the Ketogenic Diet

    I've recently started on the ketogenic diet for health reasons not pertaining to Epilepsy. I've been taking 150mg twice a day (one at 6am, one at 6pm) as per normal since starting the diet. I have noticed that I get a little 'aura' about an hour after taking my medication since starting....

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  • Please help

    So here goes. I suffer from anxiety and i am pn a low dose of fluoxetine. Alot if my anxiety is health related and lately i have been waking during the night having these ‘episodes’ i basically feel terrified i have palpitations and feel like i cant swallow i feel like i am about today. I have read aboit...

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  • Is this epilepsy? Please take a look.

    My mom had a seizure about a year ago.  She just had another one. She was on Keppra and then her doctor told her to no longer take it. She had the seizure when she was not taking the medicine. She does have high blood pressure. She does have diabetes. She went to the hospital, they checked her EEG,...

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  • Has anyone had success with a child using zonisamide?

    I have a 9 year old daughter with drug resistant absence epilepsy and she has tried about 6 anti-epileptic drugs without any success and have also done the ketogenic diet.  We are now being encouraged to try zonisamide and I am worried about potential side-effects.  It would be great to hear...

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  • 3years seizure free until this week

    Hi I have been taking lamotrigine for the past 3 years, with no problem until this week when I had a seizure.  I take lamotrigine the dose has remained the same and nothing has changed.  Does any one have experience of this?  I was only diagnosed 3 years ago and now do not know what I...

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  • Horried side effects of Epilim

    My mum (78 yrs old)has had her epilepsy medication changed from Phenobarbitol and Epanutin - (GP cock up- too long to go into here).  To Epilim which she started last Autumn.  Since then my mum has developed the following symptoms: ​Deafness; hair loss with new growth being curly; increase...

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  • Did i just have a siezure?

    This is going to be a run-on sentence because I'm using my microphone. Last night I was helping a friend trim his plants at night using green LEDs. When we came back inside to take a break I suddenly felt cold and my body was twitching as if I was shivering. All of the muscles in my body we're...

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  • Epileptic Vertigo

    Hello, I was wondering if anyone could give me some details on their experience of epileptic vertigo. I've had reoccurring 'quick spins' over periods of years, each attack lasting seconds and recurring after months of years to happen a few times for about a week. It doesn't seem...

    Posted
  • Myy Myy

    Seizures in childhood

    Hi. I recently had a seizure like absence seizure although I have not diagnosed with epilepsia. Anyhow remembered that when I was between 7-10 years old,I used to get seizures (I am now a bit over 40). These happened in the mornings when brushing teeth, eating or putting clothes on. It wasn't anything...

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  • Lamotrigine feeling weird in the morning

    Hello  I have been taking lamictal for about a year and a half with no problems but recently I have been feeling slow and out of it in the mornings until a little while after I have taken lamictal does anyone else have this problem?   Please help I cant live like this Thanks! 

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  • 12 year old daughter with fit type symptoms

    Hi I'm not sure if I'm in the correct discussion board here but I need some advice please. My 12year old daughter has just had some type of weird jolting and tensing up movement. She is otherwise well and has no other illnesses. She was sat next to me on her mobile phone and all of a sudden her...

    Posted
  • intense anxiety attack recalling a dream randomly

    So I'm gonna just jump into it I've had bad anxiety for a very long time now but haven't gone to get any kind of medications and have pretty much just been trying to deal with it. But lately it's been worse. Randomly out of no where it will start to feel like I'm going to have an...

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  • We are getting mixed messagesp

    Our 16 yr old son had his first possible seizure 5 months ago.  We found him face down on the floor mubbling and disoriented and he had trouble breathing in his bedroom at 7am.   He said only thing he remembered was the left side of face was numb and a loud noise in his ear and he passed out....

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  • Seizures and having children

    My husband and I are planning our family right now and I have gran mal seizures and am on 4 anti convulsants-carbamazepine, topamax, lamotrigine and epival and the risks the first two carry to the baby are scaring both of us very much. We're just so confused as to what we should do? Does anyone have...

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  • Conceiving at 36 with Diagnosis of Nocturnal Epilepsy

    Hi There, I was diagnosed 5 years ago after a cluster of 40 Nocturnal Grandmal Seizures in a row and admitted for 5 days in hospital. After coming to I was also paralysed on my right side for 48 hours which was touch and go... I have come through that now and had no seizures since (5 years) as I am medicated...

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  • Pregnancy and Lamotrigine

    Hi all. I am considering pregnancy. I am currently taking 100mg twice daily of Lamotrigine. Does anyone know of any risks or complications with pregnancy and this medication? Thank you x

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  • Having a baby

    i'm reaching out to see if I can receive some advice with epilepsy. My partner and I are expecting our first baby, he has seizures on a none regular basis one of which has left him with a large scar covering half of his side requiring him to have skin graphs. recently he has stared to have them more...

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