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Nephrotic Syndrome

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  • Minimal CHnage NS. Relapse

    Hi all, I’m 31 years old and had my last relapse in 2014. I’m recently having another relapse. The relapse started 4 days ago. At the start of the relapse I tried taking crushed garlic clove with honey to see if that would help. But eventually I saw the doctor and gave me prednisone - 10mg daily dose....

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  • Nephrotic Syndrome Patient for 15 years

    Hello, my name is Nick. I was diagnosed with Nephrotic Syndrome when I was 2 years old after I had three cases of pneumonia with about a week in-between each one. By the third one I got really swollen and I was losing protein through my urine. Ever since then I've had to take steroids. I've tried...

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  • Help NS and FSGS

    Hello, I'm a 41 year old woman who has had nephrotic syndrome for the last 3 years and I have just been diagnosed with FSGS as well, my creatinine is 124 and my GFR is 41, I have not responded to prednisone and tacrolimus is not working either, I have been told I'm not a candidate for chemotherapy...

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  • I need help! 15yrs daughter just diagnosed

    Can anyone give me and help or advice! My 15yr old daughter was diagnosed last only last week. I took her to a&e because her legs were really swollen (never happened before). she was admitted and told she must go on steroids 60mg for 4 month minimum. They are doing a kidney biopsy next week suspecting...

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  • My daughter was diagnosed with NS a week ago

    hi all, I am desperate to get some help please. my 3 years old daughter has been diagnosed with nephrotic syndrom a week ago. She is on 50 mg of steroids and penicillin.  She he's been taking her medal for a week now but protein levels are still 5.0 every morning and her swelling is still very...

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  • Newly diagnosed

    Hi I am a newly diagnosed adult with nephroti syndrome. Still to have biopsy. Just wondering how long from biopsy and starting treaent does it take oedema to go?

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  • Nephrotic Syndrome and Cyclophosphamide

    My son was diagnosed with Nephrotic Syndrome in June 2016 at the age of 4 and half yrs. He responds to Prednisone but has had frequent relapses since then every time we try to taper his dose of Prednisone. His diagnosis is Steroid Dependent Nephrotic Syndrome (Minimal Change Disease). Our doctor started...

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  • Chemo or Homeopathic treatment?

    My daughter was diagnosed a few weeks after her 3rd birthday in 2015 with nephrotic syndrome caused by minimal change diseas. We did a kidney biopsy roughly a year later after 2 or 3 relapses. About 3 months later she had another relapse. She has been off her medication for 3 weeks now and she had a...

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  • Nephrotic Syndrome Relapse in Child.. What should i do ?

    Hello,  My nephew was diagnosed with Nephrotic Syndrome 4 months ago at the age of 5 and half years. Doctors started him on 12 ml Prednisone daily and his urine protein levels came down to 0 within 7 -10 days. Thereafter, his dosage was gradually tapered and at the end of 4 months, he was on 3ml...

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  • Working with nephrotic syndrome

    Hi everyone, I have been diagnosed with nephrotic syndrome last week (29 years old) and I'm due to return back to work in 2 weeks following maternity leave. I'm not up to going back any day soon now, iv just started prednisolone, I get tired very easily and quite grumpy. I was hoping to take...

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  • Nephrotic syndrome

    I've come off steroids and am having all over pain and painful joints.Has anyone else felt this way and what did you do about it

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  • Worried

    Hi. First time on here but looking for some advice. My father has had Nephortic Syndrome for many years and it has been well contolled for several.  However 4 days he had to have emergency heart stents fitted and it would seem that the dye used during the proceedure has damaged his kidneys!.  Having...

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  • Nephrotic syndrome - showing protein one day but none the next

    Hey! My son was diagnosed with ns at the age of 3 and had a few relapses early on but these were eventually controlled with immunosuppressant. He is now 15 and up until August he had no releases for 4 year but now he has released 4 times in the past four mounths. Each time he has relapsed it had been...

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  • Minimal change disease

    I have minimal chance disease ,relapse occured after stoping one steriod course for 4 month ,is it has a perment recovery ?

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  • 7 yr old with puffy eyelids, normal urine?

    My 7 yr old daughter has had swollen eyelids every morning for about 6 monthes now. At first I was the only one who could notice but now it's become noticable to everyone else. I started googling and realized she has had a couple other symptoms in the past, (milky urine when she was 3.5 yrs old that...

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  • What hope is there that Nephrotic Syndrome will be cured?

    In an earlier message I mentioned my grandson of 18 having NS since he was a baby. We were told then that there was a good chance he would grow out of it. He never has and his last relapse was bad needing high Prednisalone dosage. Is there any good news out there that we can hang on to? Is ther any...

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  • Idiopathic nepronic syndrome

    Hi,my daughter 2.6 years old have been diagnosed with mcd (Ns) in Dec 2016.after 7 days of pedisinole she was in to remission. But today again. She relapsed in to 3+.after one month. can any one pls advice what could have been caused relapse even in dose with pedisinole. Is there any thing to know about.iam...

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  • My son got diagnosed with Nephrotic syndrome

    Could anyone help me! My 8 year old got diagnosed with Nephrotic syndrome is on 15 ml of steroids twice a day for 7 weeks now and no change! I am so scared for him. I hate that he swells and doesn't look the same. My poor baby, I am so afraid that he will get bullied in school. Please let me know...

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  • Fusty find out

    Hi I just found out about 2 weeks ago I have N.S. I don't know to much about it. I am not on any medication as yet they are waiting for more results. Can you please tell me more or give me any advic e. Thank you

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  • nephrotic syndrome and cyclosporin

    Hi i have posted on here before about my history of Nephrotic Syndrome, After a course of Prednisolone in Jan 2008 i am now relapsing AGAIN.... The dr's have decided to try Cyclosporin Treatment over 2 years and i am very scared about the side effects. I have had years of depression, weight gain,...

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  • My daughter has hadnephrotic syndrome for 3 years andkeeps relapsing

    My daughter got diagnosed with nephrotic syndrome 3years ago in March, she I now 10 years old. She has relapsed more than 5 times now and had been on prednisone for 2years without a break and still comes back, she also takes mycrophenolate (mmf) the dosage of this was increased to try get off the steroids...

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  • Nephrotic Syndrome Relapse Treatment.. seeking help

    My nephew was diagnosed with Nephrotic Syndrome 4 months ago at the age of 5 and half years. Doctors started him on 12 ml Prednisone daily and his urine protein levels came down to 0 within 7 -10 days. Thereafter, his dosage was gradually tapered and at the end of 4 months, he was on 3ml prednisone on...

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  • Nephrotic syndrome membranous nephrothy

    Hi everyone, I was diagnosed with this condition over a year and a half ago. Now at the age of 26 I am only starting to see the results of the retuximab working on my body after 4 months previous treatment. After trying many other alternatives such as cyclosporine, predisnone (steroid) and continually...

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  • Anyone help?

    Hi I was diagnosed with all different type of kidney issues from the age of 18 yrs. Then they said i had minimal change and the final diagnosis was Neuphrotic syndrome. while they were still trying to diagnose and testing different steroids on me my left hip gave up at the age of 21( due to my bones...

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  • Ciclosporine for Nephrotic Syndrome

    My son is 4 and was diagnosed at the start of the year. He has never been able to get off Prednisolone due to relapses. We tried Cyclophosphamide which didn't work and we are now about to try Ciclosporine. It will be a 0.6 ml dose twice a day. If anyone has any experience of this drug I would really...

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  • Turned down for rituximab for Nephotic Syndrome

    Hi Guys I have Nephrotic Syndrome and membranous nephropathy for two to three years.  My star Specialist has tried a number of immunosuppresant drugs including 6 months worth of chemo without success.  He applied to NHS England for funding for a course of rituximab which has been turned down...

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  • childhood nephrotic syndrome

    Hi, I have a 7 year old with this syndrome and wondered if anyone has a child of similar age that they would be interested in talking to my daughter?? I feel that not many people have heard of this syndrome and although it is upsetting for us parents, it is just as much if not more for the children as...

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  • child ?nephrotic syndrome

    We are waiting to see specialist but for 7 months my child who is 6 has has proteinuria. And gorss hematuria and was told she had glomerulnephritis. Recent bloods showed high b12 then repeat two weeks later showed very low b12 and anaemia. Her rceent urine test had 51 mg/l or albumin . I dont know what...

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  • Membranous Glomerulonephritis - just diagnosed

    I am. 60 year old male, newly diagnosed. I have been treated quickly and am currently on a 6 week course of Irbesartan as a starter to see if they have any effect. I work full time. I have been told the disease is in the medium category of mild, medium, severe. My question is about fatigue. What symptoms...

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  • 6 yrs nephrotic syndrome future consequences

    my child aged 6 yrs 10 months diognised with NS recently and he is on 40 mg predsilone daily. Is there any parent or any one who can help me out find out the ways to avoid replapse second time in his life. What all measures we can take in case of my child. Also what are the consequences in terms of mental...

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  • Nephrotic Syndrome

    I've Nephrotic Syndrome since 2001 without any Symptoms just higher pressure and at 2007 I've fsgs and mpgn and every eleven piece of kidney found focal five piece. now I'm trying to save my kideny for long time possible after that what I'll can do please tell me. after transport a new...

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  • Calcium supplement

    For healthy adult, calcium supplement dose that is being recommended is 1200mg per day to prevent osteoporosis. What about patients with chronic kidney disease? I heard that >500mg can increase the risk of Vascular calcification, etc. What would be the recommended dose of Ca to prevent osteoporosis...

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