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Non Epileptic Seizures inc NEAD

Also known as Seizures - Non-epileptic

Can you help? Discussions needing a reply

All discussions in this group

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  • I've been depressed for 2 weeeks, what should I do?

    Dear Everyone,       I had three seizures at work. Now I am a risk. I can do my job of 28 years. I am on sick leave. My doctor can not say I am fit to work so she keeps printing out sick leave notes. It is a three ring cirus. My doctor told me she could do nothing for me except...

    Posted
  • Am I having seizures?

    So, about 2-3 weeks ago, it was around 10:30PM and I was laying in bed, not really tired at all. but my eyes were closed, then all of a sudden I started getting EXTREMLEY nauseous and dizzy. But i was so dizzy to the point i couldn't move and I just remember the front of my head started to hurt,...

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  • Seizure or Migraine?

    Hi there. I had an odd experience last night while at work. I was standing up and sweeping when I felt an odd wave of tiredness and lethargy, which I brushed off as not getting enough sleep. It soon progressed, however, to having "vignette" vision, including a blurring of the outer edges of...

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  • NEAD and blindness

    Hi all, My mum has been in hospital for the past 8 weeks having seizures and we have just been told there are no more tests they can do and she has to go home. I believe it's NEAD but she hasn't had a diagnosis. One question I have is that since she had the first big one that lasted 3 days...

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  • Keto Diet to treat Non-Epileptic Seizures

    In May of 2015, I had my first seizure in 12 years. Since then I have had 4 more, each consistently spaced out 6 months apart. I have had multiple EEGs and MRIs, all coming back with negative results. It's assumed to be non-epileptic seizures.  Last week I had another. This one was much...

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  • Pseudoseizures?

    Am I mad!!! I think the nurse don't believe me!! well I cant remember a thing from these and now I may have lost my job due to this!!!! I work within the NHS and have been diagnosed epileptic for nearly 21 years but last July I had a status epileticus and ended up in ITU but since then every seizure...

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  • PNES

    I was told it is 90% certain that I have PNES, so now I guess my treatment is going to a physocologist to discuss whatever.  I am on depression meds which are being increased a little.  I was hooked up to monitors for 3 days and had the seizers, the 2nd day I was taken off gabapentin and they...

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  • Discrimination- NEAD.

    Hello, I was just wondering wether anyone else going through Non-Epileptic Attack Disorder has been a victim of discrimination by their school and how it was dealt with. Thanks.

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  • how do i cope with NEAD

    hello everybody my name is tony, i am from manchester and i have NEAD.  i have had the condition for 4 years now and i still find it difficult to live with on a day to day basis i have lost a lot of friends becouse they are scard to help me becouse of my seizures, which i know can be dificult to...

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  • Did I have a seizure?

    Last year I had two fainting episodes, each time I fainted three times consecutively. The first faint actually happened without me closing my eyes or knowing I d lost consciosness and then two more followed within a minute of each other. When I went to the GP, they dismissed me as "just a fainter...

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  • coq10

    I haven't been on this forum for sometime. I have been coping with my seizures when they occur. I am now taking coq10 for over a month now. It is a substance that occurs naturally in the body but depletes as we grow older or with certain meds. So far no seizures. Have a read on google . I have been...

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  • rare type of seizure

    Hello every one. My son is almost 3 years and was borned with a rare type of seizure. During the episodes, his entire body become stiff, stop breathing, eyes open and facing the ceilling. This has also cause him to have a developmental delay. All medical exams came back negative, please if there is any...

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  • Possible Dissociative Seizure

    Im New on here and just starting to get to grips with the possibility of having Dissociative Seizures. I've had 4 seizures since September 2016. I've had a couple of scares on the underground escalator in London, but most of my seizures occur at work - does this happen to anyone else? The seizures...

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  • Nead/depression

    The Nead came first but then the depression came last year. I find life a struggle and my eyesight has worsened but I do try to manage.

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  • How can I work with having seizures everyday?

    I'm 48 male, a month ago started having seizures (never had one before) while in the hospital for numbness on the left side of my face. Two days later after the Dr's run different test on me, I  was diagnosed with non-epileptic seizure. Now I can't drive which have affected my work...

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  • Non-drop epileptic attacks

    hi I have had episodes where I fall to sleep and my husband has problems waking me due to being in a deep sleep. A neurologist has diagnosed non-drop epileptic attacks. Does anybody know how these can be prevented and what the main cause is please. I Also have type 2 diabetes and copd 2 so sometimes...

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  • NEAD

    My daughter has been diagnosed with NEAD. She has just had four seizures in three hours all lasting about five minutes. Does this happen too other people. Up to today the most she had had are two in eight hours.

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  • UNEXPLAINED SEIZURES

    im sending this message to find out if there are any other people out there almost the same like myself, i got a seizure full blown convulsion, for the 1st time at age 24yrs, up until today i dont no what is the cause of it, all test is negative and clear just that now im living my life day to day on...

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  • Severe headaches

    I've been getting severe headaches for the past month. I'm not sure if it's because of the seizures or something else. Does anyone know. 

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  • Daughter diagnosed NEADS

    Our 13year daughter has been diagnosed with NEADS. This is having a huge impact on all our lives. She has up to 100 seizures a day. She also has absenses which can last over an hour. She is seeing a pyschairatrist who has said that there is very little help available. I am desperate to know how I...

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  • Christmas

    As it's Christmas week here's wishing all fellow sufferers a peaceful and happy Christmas.

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  • Difficulties

    It gets really difficult to deal with for both NEAD sufferer and partner and it seems to be difficult to be recognized or to be given advice for dealing with it.

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  • Non epileptic attacks - diagnosed a month ago

    I came back from holiday and started having these strange body muscle cramping fits with pain at first in head. ... within weeks I started having attacks which to me at the time where black outs and I would wake with sore muscles or rub marks on feet elbows back even . My partner video me and I saw I...

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  • Non epileptic absences, normal tests, no diagnosis yet

    I've just spent nearly a full week in hospital after collapsing and being unconscious for 40 minutes and then having 'absent episodes' through the night in the ambulance and hospital. Was fine for a day or two then it all happened again. All tests normal, MRI/EEG/ECG. They don't think...

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  • New (relatively) seizure patient

    Hey everyone I hope this is the appropriate place to ask this question. My fiancé has had three seizures in the last year and a half. She's fallen twice and went to the ER two weeks ago for what seemed like a random seizure. Today she went to the neurologist and his diagnosis was it is a genetic...

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  • Depakote new med

    I just started to take Depakote this past month. Ive noticed i have been so thirsty. I also started another pill called Cymbalta. Now ive been taking then will b a month tomorrow the 7th. Im getting up all hours of the night to drink water, but not peeing it all out. Also on some sleeping pills &...

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  • new patient

    I've been having NEAD for over three years before it was officially diagnosed properly. I am 47 years of age and a married woman with one daughter and one grand daughter. My frustration at the lack of information available is complete because it wasn't diagnosed until 29 of march this year.

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  • Obsessing over Deja Vu attacks...

    Hi, a little background about me, I was diagnosed with anxiety (w/ depersonalization/derealization), pure O OCD, and minor depression. I've always had them since I was little, I just never paid attention, not till 3 months ago when I was so stressed out and it got really bad. From being a hypochondriac...

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  • Seizures on toddlers

    I am wandering if someone can shine some light on this for me. When I was around 3-4 I had reoccurring absent seizures. And i feel like this is a major factor on my issues. Because I lack working memory,social skills, memory recall, empathy and have off and on depression. Has anyone else had a family...

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