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Non Epileptic Seizures inc NEAD

Also known as Seizures - Non-epileptic

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  • Can pain bring on seizures

    I have been told that I have NEAD but on recent admission to hospital with chest pain I wasn't given pain relief , this triggered a severe seizure which apparently lasted 6/7 minutes , when I came round I asked if the seizure had been caused by the pain , but the doctor told me that pain does not...

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  • Non epileptic seizures

    I'm eighteen and Ive been suffering with NES for a year with ten episodes a day with the shortest being ten minutes and longest about 3 hours, currently having EEGs and MRIs, just wondering if anyone has been able to manage it or been able to live a normal life with it, as im not allowed to travel...

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  • Dissociative Seizures - computer screen problems.

    Hi Having had epilepsy for about 30 years, I have recently been diagnosed with having "Dissociative Seizures" too. My neurologist has confirmed that the epilepsy is actually being managed by the original dosage of medication, these other type of seizures cannot be managed by meds....

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  • My girlfriend had very weird symptoms last night. Any ideas?

    Not sure where I should’ve posted this, but I am worried right now so here goes.  My girlfriend is 19 years old, and is physically and mentally fit. She occasionally suffers from optical migraines which are triggered by intense light, but has seen her healthcare provider about them. Her mother...

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  • EMDR

    Hi All Has anyone out there had any experience with EMDR? What is the experience like & has anyone out there had any success with it?  

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  • Could it be a seizure?

    My husband stretched yesterday whilst waking up in bed and his neck hurt. He assumed he pulled a muscle as he could barely move from pain so took ibuprofen. Fast forward an hour later and he wants to go to the bathroom. On his way out he collapsed, his eyes rolled into the back of his head his breathing...

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  • Black out and Seizures like body shake

    My husband had a fall in the Bathroom at 5AM today. His body was shaking like seizure. He had bitten his tongue.  MRI, Blood Test, EEG all came normal. No significant issue all normal. The only thing was his blood pressure was low, pressure was checked after 20 to 30 mins after the episode of body...

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  • Help

    I have had 4 sets of seizures today each lasting between 30-90mins I am receiving EMDR treatment which works but unfortunately Dr is off on holidays and has been for 3 weeks . After my first and to date only session of EMDR I had no seizures for two weeks. I have another week before I see the Dr again...

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  • Hi

    I'm here to find out more info about stress related seizures.My 23 year old son recently moved back in with us.He joined the army and has been gone for 4 years,last week he had a seizure while sleeping,we had no idea he was having them.He did not have them before he left for the army.Before he moved...

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  • 6 years no help

    So my wife has has pnes for about 8 years now we've been to every doctor I could find including a trip to NY to see a specialist in pnes. So here we are 8 years and not any real help been through so many meds and docs I don't know what to do. At her worst point she was having seizures counting...

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  • Pseudoseizures?

    Am I mad!!! I think the nurse don't believe me!! well I cant remember a thing from these and now I may have lost my job due to this!!!! I work within the NHS and have been diagnosed epileptic for nearly 21 years but last July I had a status epileticus and ended up in ITU but since then every seizure...

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  • Meeting people with NEAD

    Hi, I'm a 35 years old Epileptic woman and 1year and half ago,I've been diagnosed with NEAD as well. It's not as bad as when it started. I'm very lucky with my Epilepsy as It's well controlled and I haven't had any seizure for more than 11 years. I would like to know if it's...

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  • Seizure or Migraine?

    Hi there. I had an odd experience last night while at work. I was standing up and sweeping when I felt an odd wave of tiredness and lethargy, which I brushed off as not getting enough sleep. It soon progressed, however, to having "vignette" vision, including a blurring of the outer edges of...

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  • Struggling to make sense of what's going on

    Hi, I'm Maggie, and I'm 18 years old. In the last year, I've had three instances in which I have seen flashing lights, my vision has pixelated, I've lost my balance, I was unable to speak clearly, and had intense headaches for a while after. These happened after missing doses of my anti-seizure...

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  • NEADs for 4 months, hourly attacks day/night

    At loggerheads with GPs, only to happy to send you private at £500 per hour.  Can this illness be treated ( without  Prozac etc ), is their an effective treatment, i feel abandoned by the NHS, they don't seam able to work as a team anymore, and I get the impression, over 75, go home...

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  • catamenial epilepsy

    Hello , I have just recieved a copy of a  letter from a nurologist about the diagnosis I have recently been given. Non epileptic disorder which I find is a stupid name because people think " oh Its in your head".  Any way I have always said that Its to do with my peroids , now in...

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  • Can you have drop seizures affecting one side only?

    Hi All. I am 53.  I have a long history of mental health issues. I was diagnosed with a benign brain tumour in my right parietal lobe in 2013. Apparently it could have been there for many years and caused my mental health issues. It was successfully removed. Since then my left leg appears to go...

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  • I've been depressed for 2 weeeks, what should I do?

    Dear Everyone,       I had three seizures at work. Now I am a risk. I can do my job of 28 years. I am on sick leave. My doctor can not say I am fit to work so she keeps printing out sick leave notes. It is a three ring cirus. My doctor told me she could do nothing for me except...

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  • Am I having seizures?

    So, about 2-3 weeks ago, it was around 10:30PM and I was laying in bed, not really tired at all. but my eyes were closed, then all of a sudden I started getting EXTREMLEY nauseous and dizzy. But i was so dizzy to the point i couldn't move and I just remember the front of my head started to hurt,...

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  • NEAD and blindness

    Hi all, My mum has been in hospital for the past 8 weeks having seizures and we have just been told there are no more tests they can do and she has to go home. I believe it's NEAD but she hasn't had a diagnosis. One question I have is that since she had the first big one that lasted 3 days...

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  • Keto Diet to treat Non-Epileptic Seizures

    In May of 2015, I had my first seizure in 12 years. Since then I have had 4 more, each consistently spaced out 6 months apart. I have had multiple EEGs and MRIs, all coming back with negative results. It's assumed to be non-epileptic seizures.  Last week I had another. This one was much...

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  • PNES

    I was told it is 90% certain that I have PNES, so now I guess my treatment is going to a physocologist to discuss whatever.  I am on depression meds which are being increased a little.  I was hooked up to monitors for 3 days and had the seizers, the 2nd day I was taken off gabapentin and they...

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  • Discrimination- NEAD.

    Hello, I was just wondering wether anyone else going through Non-Epileptic Attack Disorder has been a victim of discrimination by their school and how it was dealt with. Thanks.

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  • how do i cope with NEAD

    hello everybody my name is tony, i am from manchester and i have NEAD.  i have had the condition for 4 years now and i still find it difficult to live with on a day to day basis i have lost a lot of friends becouse they are scard to help me becouse of my seizures, which i know can be dificult to...

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  • Did I have a seizure?

    Last year I had two fainting episodes, each time I fainted three times consecutively. The first faint actually happened without me closing my eyes or knowing I d lost consciosness and then two more followed within a minute of each other. When I went to the GP, they dismissed me as "just a fainter...

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  • coq10

    I haven't been on this forum for sometime. I have been coping with my seizures when they occur. I am now taking coq10 for over a month now. It is a substance that occurs naturally in the body but depletes as we grow older or with certain meds. So far no seizures. Have a read on google . I have been...

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  • rare type of seizure

    Hello every one. My son is almost 3 years and was borned with a rare type of seizure. During the episodes, his entire body become stiff, stop breathing, eyes open and facing the ceilling. This has also cause him to have a developmental delay. All medical exams came back negative, please if there is any...

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  • Possible Dissociative Seizure

    Im New on here and just starting to get to grips with the possibility of having Dissociative Seizures. I've had 4 seizures since September 2016. I've had a couple of scares on the underground escalator in London, but most of my seizures occur at work - does this happen to anyone else? The seizures...

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  • Nead/depression

    The Nead came first but then the depression came last year. I find life a struggle and my eyesight has worsened but I do try to manage.

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  • How can I work with having seizures everyday?

    I'm 48 male, a month ago started having seizures (never had one before) while in the hospital for numbness on the left side of my face. Two days later after the Dr's run different test on me, I  was diagnosed with non-epileptic seizure. Now I can't drive which have affected my work...

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