But who is right?

Posted , 3 users are following.

Hi people on here. I need some specific advice. I am slightly confused because I have just seen my doctor who has contradicted what she 1st said before Xmas, which was it seemed likely i have coeliac disease and the only way to confirm this is with a blood test and biopsies. She now is saying I don't need that and her blood tests at the doctors presume i have coeliac disease. My dietitian disagrees with her and said a camera would be the only way to confirm this. Are they having a laugh? Who is right and what would you do next. I am a strict vegetarian too bear that in mind, i am NOT lactose intolerant though. Sorry but i just want to know once and for all for ME! Confused? You bet!

0 likes, 10 replies

10 Replies

  • Posted

    The only way to confirm celiac is by blood test or endoscopy with biopsies. As far as I know, there are no other ways of identifying it.

    • Posted

      hi Pippa and that's what she originally asked for and she's changed her mind why????

    • Posted

      Maybe she doesn't think you have celiac or she doesn't want to put you through another endoscopy since you didn't cope with it.

    • Posted

      Hi Pippa because i haven't had a camera we can't be definite this is coeliac disease, i was told you have to have a camera but then i'm told no? Either i need this camera or not. The hospital told me they'd see about me having the camera through a general anaesthesic. If they do this and get a result i wouldn't care less. I need to know what this is

      Should I go back to my own doctor to see what she thinks? I am at a loss i am playing with food constantly and could be doing more harm than good. I am worried.

    • Posted

      I would go back to your doctor to sort out the confusion.

  • Posted

    The blood test can show coeliacs markers which then needs to be confirmed by biopsy of your intestinal lining. This is done during a colonoscopy.

    • Posted

      Hi leeniepie, i am sure i've spoken to you before. I have just about had enough this not knowing has gone on over 10 years. I need to know as i know work again but need to stay well. I am just getting a little bit upset - no make that a lot. Thanks you've been clearer than anyone.

    • Posted

      Go and ask why they have changed their mind. You have a right to know

    • Posted

      Thanks i. Didn't think of the obvious, I will. It's straight forward if i had thought of that.

  • Posted

    Hi to the kind people who have responded on here. I have an update, i spoke to my doctor for a second opinion re a camera for coeliac to discover the other doctor wasn't correct, she can't guess this is coeliac disease without a camera and biopsies, so i am now awaiting a response off the hospital ad to whether i need this or not. Thank goodness, my doctor is going to tell the other doctor off for scaring me when i didn't need her to do so! I might get half a chance to find out what this finally is! Phew!

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