CAN ANYONE HELP ME WITH TIPS PLEASE?
Posted , 9 users are following.
I have just been diagnosed with Fibromyalgia after suffering with excruciating pain for months-GP believes it was brought on following a course of intensive and quite severe hormone treatment i had in May last year when i was diagnosed with Adenomyosis.In August last year i started noticing paih in my joints,esp my kness,the pain then seemed tograduate through my body and i became sensitive to slightest touch,cant control my body temp and most days i am virtuallu unable to leave the house.Do any readers have any advice they could give me about how they deal with mornings-mornings are an absolute nightmare for me-i cannot move at all withour searing pain in my back,shoulders,feet,knees and esp my hands,which feel as if they are on fire!I have to have my poor husband or daughter basically haul me out of bed,and invariably i am screaming in pai.I cannot make a fist meaning i am unable to grab hold of anything to help pull myself up-is this common?Once i am on my feet i have to be held up for a few mins then i can shuffle to the loo etc-once ive been moving for a time i seem to ease up a little.GP had prescribed.Gabapentin initially which had no effect,then Amytriptiline which again was of no help at all-i am now taking TRAZADONE and am currently on 150 mg twice a day but ive only been on this dosage for a few days but so far im seeing no affect so im still relying on other pain relief.I really would be so so grateful of any advice you could give me as i am really beginning to feel i am reaching the end of my tether.
0 likes, 10 replies
dukeofankh
Posted
Sorry to hear your joining our ranks as a sufferer.
Gabapentin takes a while to get in to the system, about 3wks, and your currently on a low dose You don't list any pain meds but normally you will need these as well as the anti depressant and neuropathic pain meds. If you haven't been referred in the not to distant future ask about a pain clinic and pain management referral.
FM can be controlled/managed but its a bit of a balancing act with most people on similar but different meds etc. As with all long term problems good eating and general health care are important not only for day to day but when you catch a cold or get sick and feel ill it effects you more as you are already feeling "delicate". Don't take this to all sound negative I have met several people experiencing long term pain and whilst its not easy you can get by quite well.
Dont over do things and ASK FOR HELP FROM FRIENDS AND RELATIVES explain how you are affected and what they can do to help. Good luck Steve
doris7
Posted
I don't have much to say about the meds - I only take opiates for pain. However, I have some tips for general "maintenance". As Steve mentioned, your diet can make it easier, for me it means regular meals, five portions of fruit and vegetables, reducing sugar and eliminating gluten (which has helped me with Irritable Bowel Syndrom).
Proper sleep seems to be also very important (good mattress, dark bedroom and natural bedlinen, duvets etc.) with regular hours of bedtime. I find a good daily routine very helpful (I work full time and I regularly drive to my clients' offices).
I avoid unnecessary stressors, noise, strong smells and everything that causes discomfort. I'm not great at sports but I regularly go for a walk (4-5 times a week, an hour or two) and go swimming from time to time.
I believe the key to managing FM is a healthy lifestyle, a purpose in life (Iike family, professional projects, cats...) and support network (family and friends to rely on when it gets difficult).
I hope you'll find what works for you and you'll be enjoying your new lifestyle.
Gentle hugs,
Doris
SHUSHI
Posted
Jeanniep
Posted
niccigne
Posted
I've just read your posts...so sorry to read about your sufferings. I recognise many of your issues and can onlyadd my agreement to much of the feedback you've already received. Can I just add my encouragement that you persevere with the attempt to take small steps towards establishing gentle exercise on a daily basis. This may fill you with horror initially, but after dealing with FMS for over 10 yrs, and having taken every medication on offer, conclude that, for me, after quite a few failed attempts at going through the pain barrier (don't give up' it's worth it!) I began to feel more in control of the condition. Until then I felt 'it' was in control of me not the other way round. On the issue of meds. the only thing I take for pain control now is paracetamol 2 when I get up in the morning and 2 before bed at night.
I do sympathise with you about the mornings, starting each day in pain and exhausted is horrible and so depressing and it wasn't until I got angry with the condition and the way it was ruining my life that I finally found the strength to fight it. Talking to others with the condition via a support group & joining a pain management programme helped me with the emotional and motivational impetus, but as this may not be possible for you geographically keeping on talking via the web may still help? Have you looked at FMA UK's website? It may help...Good luck in whatever happens next hope this helps a bit.
Maber
Posted
Simple stretches are a great way to start! Being in pain makes you want to curl up and stay in bed, but doing that makes the pain worse. Try swimming or just walking but don't overdo as you'll be sore. Hope you find some relief! There's good and bad days don't push yourself when you feel good. There's something called the spoon theory, you only have a certain amount of spoons each day choose how you use them and if they are all used then you can't do it lol. Read it, it's great! http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
susan606
Posted
youngest daughter left for uni and my son (he was 26) moved out of the family home and I moved out of the
area to live with my then fiancé. We married last July and this should be the happiest time for us both.
Unfortunately18 months ago I started to have extreme muscle spasms in my neck, chest, arms and shoulders
I have hadMRI's and ECG's amongst many other tests and have now been diagnosed with fibromyalgia. I am on just 600mg of gabapentin a day which is a fairly low dose and the last 2 or 3 weeks my muscle spasms
have eased a little, well that is until my dr started me on a low dose of citalopram 8 days ago. My muscle
spasm has increased a little, but my biggest problem is that I drop off to sleep quite quickly but awake about 3or 4 am and that's it I don't sleep anymore. I have a pins and needles feeling in he back of my head also. I
am not sure how long I can get by on so little sleep and I don't sleep at all during the day. I currently don't
work as I was a Cover Supervisor at a junior school where I used to work but when I moved from that area
and with the onset of fibromyalgia and the pain that I am often in, my confidence is at an all time low. I am
alone in the house most of the day unless I go to town or go for a walk which isn't much fun alone! I really need advice as to whether you think my insomnia will improve or whether to ask for a different medication. Sorry
for all the detail but I wanted someone to look at the whole picture before forming an opinion, and thank you for taking the time and trouble for reading it.
Maber
Posted
sorelin SHUSHI
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ingrid19972 SHUSHI
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