Can someone give me some advice!

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I was dignosised with rectal cancer November 2014. I had colorectal surgury to remove  my rectum and anus, with a perment colostomy. I also discussed with the surgeon my family history of ovarian cancer, so we agreed because I have four grown children and my tubes were tied so i thought it would be ok to have my tubes and ovaries removed also. Everything seemed to go well ( I thought). I was back at my surgoen's office because I was in so much pain still eight months after surgery and still bleeding (not to mention along with all the pain I was thrust into medical menopause). My body went bonkers! the surgeon never dissused how this would effect my body. Needless to say this has been a long, stressful and painful journey to recovery. December 2015 I called my surgeon agaiin because I still had enourmous pain and it felt like something was sticking me in my butt. The surgeon asked me to come in his nurse did a check and said I should be healing fine and nothing seemed wrong. Another surgoen came in to check my wound site, he discovered that all my stiches hadn't been removed ( I was horrified!) they removed them and the nurse sternly told me they could no longer see me that I needed to contact wound care for now on. A few months later I was admitted ro the ER for rectal pain STILL and bleeding. They did several test (CAT scan, MRI) I was told that I had a uterine prolapse due to complications to my surgury, and to contact my pryor surgeon. I tryed to call my pryor surgoen, they informed me that their office no longer takes my insurance (I was horrified!) I consulted with two other surgoen's who are reluctant to do any surgury on me. I consulted with my disease and digestive dr. He said that I needed reconstructive surgury, I asked about a pessary because I wasn't willing to do another surgury. I was referred to a gynecologist, who recomended a pessary or removal of my uterus. when I mention the reconstructive surgury like my disease and digestive suggested he immediately snapped and said "does he specialize in gynoclogy?" I politely nodded my head no. So we proceeded with the fitting of my pessary, it was extremely painful and we couldn't proceed with the fitting. The gynocologist firmly said ; look, i cannot do this if your gonna be in this much pain, make a appointment when I decide what I want to do. (tears) WHAT DO I DO NOW? WHAT PROCEDURE IS BEST FOR THIS? HAS ANYONE HAD THIS PROBLEM?

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  • Posted

    Oh my god! You poor thing, this is horrendous! I assume because you mentioned insurance, you're in America? I'm not sure how your health insurance system works? In the UK, we always need to go to our GP (general practitioner ) in order to get a referral. Can you do this?

    Regards

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    • Posted

      Thank you Sue52969 and yes America, I see my GP regularly and she seems as clueless! No help but in order to do anything or see and specialist / doctor I go through her first. She's no help. She knows what's going on she always talking about I don't need this or that. At this point I don't trust any doctors! She has been my primary care since 2010. I see her regularly and she didn't even detect my cancer in the blood work that she was sending me to get. I just want to get pointed in the right direction so I can start my healing after two years if pain and feeling like I don't know what to do.

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  • Posted

    Oh that's terrible, what an awful ordeal for you, I feel so outraged that a patient can be treated in this way.

    When you say  rectal pain,mdo you mean in the area your rectum would have been in?

    Just wondering if it's nerve pain from your surgery.

    With regards to a hysterectomy, I would go for it if you are going to have ongoing problems with fittings of pessaries in the long term.

    I can of course understand why you wouldn't want any more surgery after what you've been through, but a hysterectomy would soon heal and that would be one problem out of the way.

    Hopefully wound care nurses would be able to get the painful area to heal soon. Are you being treated for your wound?

    Whatever you decide I wish you well, and sincerely hope you can get it sorted out.x.

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