confirmed anterior repair failed :(

Posted , 10 users are following.

after having my anterior repair in february and having the dreaded bluge back in june it was confirmed yesterday that my repair has failed and it is not the rectoele that was not repaired that had got bigger like my doctor thought,,, my wee girl was 8 months old when i had my repair and i had 8 weeks of not being able to look after her properly, being careful not to do lifting etc,,,all for nothing sad im gutted , the lady i saw yesterday has advised me to try and wait till my daughter is a bit older before going for another repair (she is 18 mths) have to go back again in 3/4 months ,just cant believe i went through all that to still have a the same prolapse return

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  • Posted

    Hello helen. I'm truly sorry to read this, I can only imagine how devastated you must be. I suppose whatever we say isn't going to make you feel much better but thinking of you and sending hugs. Xx

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  • Posted

    So sorry to hear this. I'm in the same situation as you but I am much older & my children have grown up. My AR has failed & I also need a rectoenterocele repair but at the moment I am putting off the op as I just don't feel ready & my GP also says to wait.

    I was so upset initially but now I have told myself that physically and mentally I would be better to wait I feel better about it. It's just getting your head around the idea, you can't change what has happened but once your body has fully recovered and your daughter is a little older things will be easier for you. Try and keep positive. X

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    • Posted

      Cause I'm five mos post op and they fid it all inside no outside csnt see nothing and said was successful n can run a marathon.I mean the first few months were horrible Worst surgery I've ever had done And I have come a long way since then But I feel fabulous now I'm still afraid to lift heavy things I will probably never lift heavy things again I'm sixty years old But other than that I have no leakage No pain Still trying for the stomach to go down doing better Because after surgery I look 9 months pregnant But all is good So good luck to you Two surgeries must be different here Then where you are

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    • Posted

      Back in the Summer Someone mentioned to me About stitches on the outside And that the surgery Are done differently So I was just wondering what the difference was And do they do the surgery Like mine was done
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    • Posted

      I think the surgery is performed basically the same way by all urogynaecologists after all there's really not many different ways you can repair a prolapse. I was the same as you, in dreadful pain after the operation but now I'm absolutely fine and it's been more than 6 years. Some ladies are just very unlucky and their surgery fails for a number of reasons.

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  • Posted

    I'm totally gutted , just can't get my head around it , I was so careful with my baby not lifting her etc till I was told it was safe to do so , I've been in tears all day I'm so scared that if I have another surgery and that also fails what if they are never able to fix my prolspse I can't live the rest of my life like this 😥 X

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    • Posted

      helen you mustn't think like that because they will be able to fix your prolapse successfully. Some do fail the first time but when you have the operation again they will use different sutures probably which will be stronger. I have never known anyone have to live the rest of their life with a prolapse when they don't want to. 😘

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    • Posted

      Hi lovely matron,mine has failed too😢😢😢 I'm on the list for another one. You know how good I was recovering but I knew it felt wrong 2weeks after. been very down and upset since may.you say the second time is better,I so hope so as I can't live with this either😢😢

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    • Posted

      Me too! Had posterior repair in Feb, was so careful for full 12 weeks and after, but now the front wall has gone and showing slight bulge on back wall. Also the feeling of something being before my back passage has got worse which makes it sore to sit. But trying to stay positive seeing a very good physio to try and avoid more surgery although the last view visits she seems to concentrating on my bladder not emptying properly which doesn't give me any grief. The pain around the back passage she thinks are my stitches, have to try and massage with oil. So disheartening especially when you've been so careful.

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    • Posted

      I can't believe it!! I remember how worried you were and there was me telling you not to worry when all the time you were right and I was so wrong. It's understandable that you've been upset and I'm really sorry but it just goes to show I should listen to the advice I give all the time....."listen to your body" because you know it better than anyone 😘

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    • Posted

      Hi lovely,went back 5time between may and July,new it felt wrong and my vsg opening was bulgy.. He got very inpatient with me and said tgastgast physio was my only option.. I went to see a urogy in Swansea where I'm from and the lovely consultant there examined me thoroughly matron with measurement and he diagnosed me with grade 1 cystocele again😢😢😢 matron I am devastated, hate the way I feel and have lost confidence.

      He did say no prolapse is guaranteed to fix but I have no other option. I have been highly recommended by friends back home and I know I asm in the best of hands..itsvfunny hoiw each urogynacologist tell you different things.. I was told that oncevwe have had surgery we need to manage our life around the repair which I agree.

      Matron any positive advice as I'm thinking hius something I have to worry about forbtge rest of my life. You know hoiw well I was recovering, did all in was told,just scratching my head as to why its happened? To top it all also £4000 foir nothing😢 . I have missed you😘

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    • Posted

      ...by stronger I mean to strengthen up your pelvic floor as much as possible. It is a continual frustration of mine that women have surgery and mistakenly think they are 'fixed'. Sadly for many it is just the start of a long journey. As your was an anterior repair you need to take extra care that the 'other side' doesn't follow suit. Think of digging a hole in the sand and the walls falling down. This would mean that you shuold avoid straining, constipation and work on strengtehning the back part of the pelvic floor. Think of holding in wind (squeeze and lift) then doing the same vaginally (squeeze and lift). So many women just concentrate on the muscles in and around the vagina, whereas the largest concentration is towards the back of the pelvic floor - this will get you the best results. Supplement with Vitamin D3 - clinically proven that women with stronger pelvic floors have more of this (and weak pelvic floor has really low levels). As I always say I am afraid weight is crucial, there is no getting away from this epidemic of prolpase problems and our increasing weight/waist lines.

      Draw a line in the sand, this is where you are, and you can change this and turn this around in 2017, get as much help as you can, and if you have more surgery the other things you do will help support it to last you a lifetime.

      Good luck, here to help

      S

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    • Posted

      Thanks love that's great advice.I'm very slim 8stone and otherwise fit.I best a very good diet and don't drink or smoke. I am doing my pelvic floor exercises but wonder if those electric probes work?

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    • Posted

      I can tell how upset you are but try and remain positive and most of all well so that when you go in for your next repair your body is in good shape physically. After Christmas eat healthily and most importantly listen to what Stephanie has advised. It sounds as though you have found a good urogynaecologist so there's no reason why this repair shouldn't be successful and you are right when you say different consultants say different things. It's very frustrating I know. Stay strong and don't be a stranger to this forum, everyone supports one another as you know x

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    • Posted

      ...work on your posture, sit up straight, walk tall. BBC - Bum at the back of the chair when you sit down - so often we develop a C shape and sit on our tail bone. All these corrections will help your core support your pelvic floor. Get a referral to a Physio to work on this. Electronic Toners - I am afraid I have to nail my colours to the mast here - yes they do - but I do have a vested interest (see my name!). Being strong physically and mentally will put you incharge of this and empower you to move forward, There are thousands of women just like you out there, and if you arm yourself with knowledge and work on it, you will be OK.

      Here to help!

      S

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    • Posted

      Matron is definitely correct about long road, she giuded me through this since july, I eill be doing tje pelvic floor snd keigels for the rest og my life. And its actuslly working really well, shen I first got home I peed myself ni control whatsoever.such a long process, but I really have to thank matron cause I knew nothing about any of this, good luck to you too sweetie
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    • Posted

      I hope your appointment goes well welshgirl with the physiotherapist. Is she a specialist in urogynaecology? I think ladies must get fed up with me mentioning this but I just think it's so important. Please keep in touch because you will get a lot of support here on the forum and it's always good just to "chat" sometimes. 😘

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    • Posted

      Yes matron she is. I've had one appointment but will go bacvk Thursday for her to see how I'm doing..I know they take a while to strengthen. Just so upset I have a long wait foir the next one.at least I can strengthen up the muscles cascasnt I?x

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    • Posted

      You can do the exercises in between your appointments but ask the physiotherapist how often you should do them because you don't want to overdo them. Are you going to ask her about the electric pelvic floor strengthener?  I bought one some time ago but just can't get away with it but I know a lot of ladies do find it works for them xx

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    • Posted

      I don't use it much matron as I'm afraid of uti. I've had 3 since the op and don't want anymore.

      I'm wondering if this time its dropped intyo a different place because it feels different, a biut more lower but its not outside

      The consultant won't examine me now till I'm on the table so what if its got worse or the cervix is lower? I'm a worried I know but ni suppose he knows what he is doing lol?xx

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    • Posted

      Matron is right - there is a group of specialist Physiotherapists and the group is called POGP. THe POGP site says - 

      POGP are physiotherapists who have a special interest in women and men’s health. Many have gone on to specialise in this area of physiotherapy. Areas of specialty may include:

      The physiotherapeutic care of women in relation to childbirth, both antenatally and postnatally, including the delivery of antenatal classes for the woman and her partner.

      Specialise in the conservative treatment of bladder and bowel incontinence for men and women and in some cases children.

      May be involved in the care of women undergoing gynaecological and breast surgery.

      Specialise in the treatment of musculo-skeletal conditions both during pregnancy, and immediately postnatally.

      May also be specialists in the treatment of sexual dysfunction in relation to pelvic floor muscle problems for men and women.

      When I reply to messages I shall try to remember to mention POGP Physiotherapists as many women here have seen many specialists along the way, and wometime pelvic issues are so difficuly to treat/diagnose/help.

      S

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