confused :-(

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Had a crappy Morning, cant stop crying. I dont understand this illness at all. Heads all over the place and cant even explain how i feel to anyone as if i dont understand it how are they meant to? Had a row with my partner perhaps it is that which upset me more idont know i feel so confused at the minute x

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  • Posted

    It's a very hard illness to get a grip on. It get's explained wrong by doctors.

    Basically, your immune system releases antibodies which stimulate (no not attack) the thyroid. The pituitary gland releases less TSH, because something is doing the job for it (the antibodies).

    So the symptoms are all caused by the thyroid behaving normally as it should when affected by these antibodies.

    The docotor will give you tablets that inhibit your thyroid function (treating the symptoms).

    You will feel better again, your antibodies will go down for a while. You will go for regular blood tests and eventually the doctor will put you back on the thyroid suppressing medication.

     If you want to get off the medical merry go round, take vitamin d3 3000iu per day starting now, forever. It will stop the antibodies from being produced by your immune system, which is the underlying cause of the whole thing that the doctors seem so confused about. 

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    • Posted

      Thanks richard thats helpful. I basically missed 2 periods so contacted my gp. She tested for pregnancy and chlamidiya! Then did a blood test which came back abnormal and told me i had an overactive thyroid and would refer me to the hospital fir them to take over my care. Wemt to hosp for the first time friday and was told to stay on 10 tabs a day for one year. After this year theres a 50/50 chance it will be cured if not i need surgery. Also do not not try for a baby for the next 12-18months qhich is what i desperately want right now. Thats been over the laat 2 weeks. I feel like im on an emotional rollercoaster and dont know whether im coming or going. 
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    • Posted

      Thats great rochard? Thank you. Nice to finally read a more positive. Ao just take those alongside meds is it? Hope im not sounding dull but im pretty clueless aboit all this. Ive never taken anything more than a paracetamol in my life x
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    • Posted

      Hi Richard, can I just ask what dosage you take of vit D? I'm about to come off carbimazole and don't want my symptoms to come back! I'd read about vit D being a good thing to take but not sure of dose.
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    • Posted

      3x 1000iu per day, I often have days when I only take 2 though. It's not possible to overdose on vit d3 unless you take 40 a day for months.

       

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    • Posted

      Radishes are very good for keeping the thyroid from misbehaving too. Most people juice a cup of them from what I've read. Any type of radish.

      I just ate them raw, not sure whether they were really working because pimples occurred and started taking vitamin d after a couple of weeks. That's when everything seemed to normalise.

       

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  • Posted

    Morning Annmarie,

    so sorry you're having a rubbish morning. You're right that no-one understands this disease - not even those of us who are suffering from it! It's also difficult to know what symptoms are caused by the disease and what are just 'normal' ups and downs. I'm sure that the rowing with your partner hasn't helped at all. You don't say whether you're receiving treatment for the Graves at the moment. If you are early on in treatment then please be assured that things do get better slowly. Take things as easy as you can and try not to expect too much of yourself at the moment. You can't expect people around you to know how this feels so you have to be honest with them, and yourself, about how much you can reasonably do at the moment. Unfortunately, you can't make people understand all the time so sometimes you just have to bite your tongue and make the best of it. 

    I hope things I improve soon. If you are undergoing treatment, are you doing anything else in the way of taking supplements, looking at your diet or anything? Sometimes taking responsibility for your own health and feeling like you're doing something to help yourself can make you feel better about things.

    Take care of yourself. X

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    • Posted

      Thank you for your reply karen this is all new to me and haa happened over the laat 2 weeks. For 2 weeks ive been taking propanalol and carbizamole as prescribeb by gp and consultant now advised to take for a year. Im just confused and a bit overwhelmed by the whole thing as i went to the gp about missed periods and have come away with this! I supppose im still trying to do the same things as before with runningva house and looking after my boy and im feeling so weak at the moment so currently off work. The consultant says give it 4-6 weeks for the tabs to take effect. Richard has just mentioned about taking vitamin d which is the first ive heard about it and i think i eat relatively healthy but is there anything i should be staying away from? X
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  • Posted

    Hi again, 

    Just read yiur reply to Richard and realised how newly diagnosed you are. Unfortunately, the endocrinologists who are in charge of your treatment seem to have a 'one size fits all' approach to treating this illness. That is, you'll be on medication for at least a year. Unfortunately, the anti-thyroid drugs you're on are extremely pdangerous to unborn babies. I was a regular blood donor until I was diagnosed but have been told that I have to wait for two years after I come off the medication before I can give blood again, Just in case my blood is given to a pregnant women or small child. The drugs obviously inhibit the healthy development of the thyroid. 

    I can understand that being told you can't try for a baby must be devastating for you and is undoubtedly not helping your emotional state. However, getting pregnant whilst on medication could be equally devastating in the long run.

    You don't say what your blood levels were so I don't know how over active your thyroid is but I'd certainly speak to your doctors next time you're at the hospital. Tell them your plans and see if they would closely monitor your levels and see if you could maybe come off the medication in less than a year. My levels were sky high when I was diagnosed so I was told a year minimum but I've been on a decreasing dose and hope to come off soon (it's been just a year).

    you will start to feel better once the medication kicks in but it takes a while. Maybe you could do some of your own research on the internet about pregnancy after thyroid issues. You'll always come across scare stories but there's also some good information out there and this forum is a great place to start.

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  • Posted

    In response to your question about diet - just try to keep it healthy, avoid processed stuff and definitely keep away from artificial sweeteners - aspartame in particular has a bad reputation where thyroid is concerned.
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  • Posted

    I know exactly how you are feeling Annmarie, no one understands either. I was diagnosed with hyperparathyroidism in 2010, it was discovered I got this because of being on medication for many years. I thought a change of this would stop the illness, but now realise that as thyroid problems once there it is there. I've suffered with these  symptoms on and of for a long time and have only just realised what the problem is. I am on Thyroxine. I've recently been diagnosed with a water infection, which made me pass out banging my head. It was like " casualty" I,m now suffering a bad headache  and backake as well as still suffering with the water infection, although not depressed

    ( which makes a change this year) I feel very weepy and am also very lethargic. Drs tomorrow, hopefully I'll get some help at last.

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