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Had a crappy Morning, cant stop crying. I dont understand this illness at all. Heads all over the place and cant even explain how i feel to anyone as if i dont understand it how are they meant to? Had a row with my partner perhaps it is that which upset me more idont know i feel so confused at the minute x
1 like, 12 replies
richard12939 annmarie53338
Posted
Basically, your immune system releases antibodies which stimulate (no not attack) the thyroid. The pituitary gland releases less TSH, because something is doing the job for it (the antibodies).
So the symptoms are all caused by the thyroid behaving normally as it should when affected by these antibodies.
The docotor will give you tablets that inhibit your thyroid function (treating the symptoms).
You will feel better again, your antibodies will go down for a while. You will go for regular blood tests and eventually the doctor will put you back on the thyroid suppressing medication.
If you want to get off the medical merry go round, take vitamin d3 3000iu per day starting now, forever. It will stop the antibodies from being produced by your immune system, which is the underlying cause of the whole thing that the doctors seem so confused about.
annmarie53338 richard12939
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annmarie53338 richard12939
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karen0810 richard12939
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richard12939 karen0810
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karen0810 richard12939
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richard12939 karen0810
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I just ate them raw, not sure whether they were really working because pimples occurred and started taking vitamin d after a couple of weeks. That's when everything seemed to normalise.
karen0810 annmarie53338
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so sorry you're having a rubbish morning. You're right that no-one understands this disease - not even those of us who are suffering from it! It's also difficult to know what symptoms are caused by the disease and what are just 'normal' ups and downs. I'm sure that the rowing with your partner hasn't helped at all. You don't say whether you're receiving treatment for the Graves at the moment. If you are early on in treatment then please be assured that things do get better slowly. Take things as easy as you can and try not to expect too much of yourself at the moment. You can't expect people around you to know how this feels so you have to be honest with them, and yourself, about how much you can reasonably do at the moment. Unfortunately, you can't make people understand all the time so sometimes you just have to bite your tongue and make the best of it.
I hope things I improve soon. If you are undergoing treatment, are you doing anything else in the way of taking supplements, looking at your diet or anything? Sometimes taking responsibility for your own health and feeling like you're doing something to help yourself can make you feel better about things.
Take care of yourself. X
annmarie53338 karen0810
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karen0810 annmarie53338
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Just read yiur reply to Richard and realised how newly diagnosed you are. Unfortunately, the endocrinologists who are in charge of your treatment seem to have a 'one size fits all' approach to treating this illness. That is, you'll be on medication for at least a year. Unfortunately, the anti-thyroid drugs you're on are extremely pdangerous to unborn babies. I was a regular blood donor until I was diagnosed but have been told that I have to wait for two years after I come off the medication before I can give blood again, Just in case my blood is given to a pregnant women or small child. The drugs obviously inhibit the healthy development of the thyroid.
I can understand that being told you can't try for a baby must be devastating for you and is undoubtedly not helping your emotional state. However, getting pregnant whilst on medication could be equally devastating in the long run.
You don't say what your blood levels were so I don't know how over active your thyroid is but I'd certainly speak to your doctors next time you're at the hospital. Tell them your plans and see if they would closely monitor your levels and see if you could maybe come off the medication in less than a year. My levels were sky high when I was diagnosed so I was told a year minimum but I've been on a decreasing dose and hope to come off soon (it's been just a year).
you will start to feel better once the medication kicks in but it takes a while. Maybe you could do some of your own research on the internet about pregnancy after thyroid issues. You'll always come across scare stories but there's also some good information out there and this forum is a great place to start.
karen0810 annmarie53338
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anne_33518 annmarie53338
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( which makes a change this year) I feel very weepy and am also very lethargic. Drs tomorrow, hopefully I'll get some help at last.
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