Confused!
Posted , 3 users are following.
am so grateful to have found this site and see that I am not going crazy!
I would be grateful if anyone could offer me advice. I am 27 years old and was diagnosed as having an overactive thyroid at the beginning of March which was due to having Graves disease. Since then I have been on 20mg of Carbimizole alongside beta blockers. However apart from a few days I have not felt well since then. I am exhausted every day, I have heart palpitations and often feel dizzy. I feel like I am constantly living in some sort of fog, I know that sounds strange! I have extremely bad anxiety and panic attacks, which is the prime reason I first went to the doctors as they came out of the blue.
These have still not gone away and it makes getting out of the house very hard, although I dont have the energy to do so anyway!
I saw a consultant last week, who had no time for me and seemed to be in a hurry, he didnt ask me any of my symptoms simply checked whether my hands were shaky and then told me to have a blood test.
He then e mailed me to say that I was now underactive and to take Levothyroxine as well as Carbimizole. I just want my normal life back I was constantly on the go and now I barely leave the house! I am at the end of my tether I feel like its all in my head Has any one else been similar to this?
Thanks for listening to me moan!
Ellen
0 likes, 8 replies
mariannie
Posted
I was so lucky in that my consultant at the time was wonderful, drawing me diagrams, explaining doses etc etc. I do remember feeling as though I was going 100 miles an hour, hot all the time, ravenous and still losing weight! The shaky hands were at the most odd times - I went to write and my hand would suddenly shake, then sometimes I would reach out for a cup and it would shake! I'm sure my boss thought I was on the bottle!!
I struggled after awhile having to keep taking carbimazole and felt like I was out of control. I remember not taking it all the time, and then seeing one of the registrars rather than the consultant and she really laid into me, making me quite tearful (which is something which happens with this illness because your body is running so fast). Anyway the next time I went to the hospital, I asked if I could wait any amount of time to see the consultant. I wonder if you could ask to see someone else if they are on duty at the same time, ie the registrar instead?
Anyway I did have to have radioactive iodine eventually, as mine was \"cured\" but then gradually flared up again over about a year. My gland is totally zapped and I now take 125mcg thyroxine (reduced by 25mch after giving up smoking!!).
The exhaustion must be because you have gone under-active. Trawl across the internet and read as much as you can about Graves.
I use this site on another illness (PMR) and it is extremely useful in terms of knowledge and what people can offer - especially some reassurance and support when you are feeling so low and fed up. As mine was so long ago, I feel a bit out of touch with things, but just wanted you to know that you do come out the otherside. I do hope your Gp will explain it a bit better, but also try to find some stuff yourself, so that you can ask questions when you do see the consultant/doctor.
I had a thyroid scan, an ECG, my blood pressure was monitored and I had some other heart investigation - all apparently routine investigations for overactive thyroid. The betablockers migh cause you to feel tired and \"foggy\". Perhaps you need to chat with the GP a bit more about your panic attacks - I think they are not necessarily caused by the thyroid bit - I do remember feeling as though I could not concentrate for a single minute. had moved house at the height of my problem and walked in circles because I could not decide where things could go or anything as I was going so fast!
hope you feel better soon, and hope I haven't gone on too long and that it may make you feel a bit supported!
M
Guest
Posted
When I was diagnosed 2 years ago I was literally on my last legs - all my major organs were in meltdown and I was whisked off to hospital as my heartbeat and thyroxine levels were off the scale. The consultant in hospital promised that he would make me feel better than I had felt for years ( he thought I had gone undiagnosed for years) and I didnt believe him because I felt so ill that I couldnt remember what it was like to feel well (if that makes sense?). After only a few weeks on Carbimazole - I started off on 60mg per day and this was gradually reduced as my levels came down - I felt really well and all my organs had returned to normal. As remission is highly unlikely for me, I had a dose of radio active iodine in November 2008 but it did not work for me so I am still dodging along very happilly on 5mg of Carbimazole per day. I may have a second dose of RAI later this year - will probably work 2nd time I'm told. I still see that same consultant every 2 / 3 months at Endocrinology clinic which is great because he saw me at my worst and has been with me on my thyroid journey. He really did save my life.
If you are underactive at the moment that will be why you feel foggy and hopefully once your medication is correct you will start to feel better. You will find over time that you become really in tune with your body and will learn to recognise certain symtoms and feelings and you will quickly know when you need blood tests done to check where you're at and get your medication re-jigged if necessary. Finally, please rest and sleep when your body tells you it's needed because it really does help.
Never apologise for moaning - we all do it!
Take care of yourself and let us know how things are going.
Lotte.
els3283
Posted
Is anxiety not a normal symptom as my doctor thought it was, but who knows!
I just want to feel 'normal' although forgetting what that feels like!
Thanks again Lotte and Marannie for taking the time to reply
Ellen x
Guest
Posted
Guest
Posted
Did your doc think that the anxiety was your thyroid, I am worried I have two things going on here!! I have given in to it too now and am resting up and my family are being really good and looking after me. I was put on betablockers too but only 20mg twice a day, I asked the consultant how long I would be on them and he said to reduce them when I felt I didnt need them anymore!!!
I hope that you continue to improve x
Guest
Posted
mariannie
Posted
I think panic attacks are partly linked to thyroid problems because your heart rate goes up so much and it makes you feel so unwell, and agitated all the time, that you don't really know what you feel!! All I know is, an anxiety type feeling is one of the worst feelings you can have.
Please let us know what your doc says and if it is a helpful discussion. Fingers crossed it will be.
mariannie
Guest
Posted
This forum is so helpful and really makes me feel like I am not on my own.
Take care, Ellen x